Mayo Clinic Connect
Has anyone had experience with CPPD? How was it diagnosed? What joints, symptoms?
I appreciate your posting about CPPD. As I was not familar with this disorder, I went to Mayo Clinic’s website and found the following information, https://www.mayoclinic.org/diseases-conditions/pseudogout/basics/definition/con-20028152.
As you read through this information, I’m sure you will find a lot of answers to your questions about symptoms, tests to diagnose as well as treatment options.
I was wondering if you were posting this question because you (or perhaps a friend/family member) has been diagnosed with this condition? We would enjoy getting to know you better, so please post again and let us know how you are doing.
I have OA. I went to the rheumatologist because I noticed changes in my ankle alignment and discomfort on inside bursa to calf on knee. I take a wholistic approach to life so I asked for an assessment and option discussion. She agreed. When I went back after blood work and X-rays she spread the results on the table And began chondrocalcinosis on the pages of X-rays of feet knees and hands. Then immediately when for the drugs, colchicine, plaquenil, methotrexate. I refused until I could review the results and consider what I was being told. Turns out these drugs are for CPPD attacks which I have never had. I told her I understood that CPPD could be a symptomatic and these drugs were not appropriate. In reviewing the X-ray reports she underlined chondrocalcinosis that was preceded by the word “no”. Only on joint has “subtle” chondrocalcinosis. The others were typical OA degeneration. As I read on, to have a true diagnosis synovial fluid is analyzed. I understand there is no remedy, only for attacks. During my initial visit she mentioned HA injections and never returned to the discussion. I am also interested in PRP and stem cell. Any discussion on these issues?
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UWash Ortho and Sports Medicine also has a good explanation.
I see that you are wondering if there are any conversations about stem cell treatments. Here are a few that are taking place on Connect, although they may not be specific to OA, you may find them useful:
In those discussions you will also find posts by me that include a free telephone service that can help offer information on stem cell treatments (who to trust, what they are, what they can treat, etc.). This service can help identify unaccredited services that may be offered elsewhere. If you have any questions or cannot find that information, feel free to ask.
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