Covid and ARDS and not getting approved for SSDI

Posted by josh80 @josh80, 10 hours ago

Hi everyone, my name is Josh. I became sick with Covid pneumonia and ARDS back in 2021. I spent nearly 5 months in 3 different hospitals, I was in comma for nearly 7 weeks and was told I died 3 different times. I had to learn to talk, walk, and eat all over again. Everyday has been a struggle since then. I was on oxygen almost daily, I have came along way since I became sick, but the shortness of breath during regular activity and the fatigue felt for days after doing some sort of activity has been difficult to deal with. Some of the medication I was on for my anxiety had some terrible side effects that gave me awful thoughts that I’d never felt before. My SSD has been denied over and over. I will never be able to do the work I’ve done all my life and I feel so useless. It’s been so overwhelming that it’s caused problems in my marriage and family to the point my wife of nearly 25 years filed for divorce. It’s to the point I really don’t know what to do, I’ve tried finding a part time job to help get back into the workforce but can’t even find that, because of my health condition I know no company will hire me full time. Blue collar work is really all I’ve ever known. My heart rate skyrockets during activity and panic attacks are something I’ve also had to learn to deal with. I was considered a essential worker during the pandemic and so was my wife and oldest son, we didn’t get to hide inside our homes like a lot of people did and it’s taking it’s toll on all of us. I feel like I have just been kicked to the side and forgotten about by the people leading our country. I’m almost 46 and worked my entire life. Americans work and pay in to Social Security and then are denied it when we need it and it’s very frustrating. My life will never be the same and it’s cost me my marriage because of how I’ve been reacting to the situation. I’ve lost medical insurance and can’t really afford any insurance so that has led to my Drs just forgetting about me, I know I’m not alone and others are probably dealing with some of the same issues. I wanted to put some of my story out for others to see and maybe get some support in return. I’d been thinking of joining a Covid support group for a while but just couldn’t bring myself to take the first step. I hope this helps someone else and they realize they are not alone in dealing with what happened to people that have been affected by Covid, I know I’ve felt like no one would understand for a while now but I know I’m not alone in this situation.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Hi Josh, it was truly shocking and shameful how you have been treated, sometimes it’s just overwhelming to hear about people like you who were so deeply affected by this virus. I don’t have much information to share with you but there’s a lot of people here that have also experienced this nightmare and they found help here with links to help them and also support groups, I know you haven’t tried this venue yet but you really need to get yourself connected, you will get much needed support and help to send you in the right direction. I know that covid is a monster and it shouldn’t be taken lightly, in the meantime you must really protect yourself from getting infected again because you are very vulnerable and you don’t need any further complications, I sincerely hope that you get the help you need so that you can recover your health and life back, best wishes to you.

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Hi @ josh80. First thank you for all your years of helping others. Your journey beyond challenging and yet so many here have varied similar stories so you have found the supportive place for successful healing and coping info! If I may suggest one of the most helpful yet seldom referred is a trauma level mental health provider. They have the extraordinary resources and training dealing with patients and requesting services especially for this new illness that is unlike anything else with its multitude of ever changing symptoms and detrimental effect on every aspect of life. 😵‍💫 Regarding your SSDI denials, documenting your inabilities of daily life critical thru trauma provider and verifying ER, hospital, pulmonologist, neuro physical therapist, ENT, speech therapist, primary care …. Know just getting thru a day exhausting so your healthcare systems social worker hopefully can assist directly with records dept and may offer ECM (enhanced care management) higher level of personal assistance that can
assure steps/follow up done for all aspects of life such as seeking now needed disability
attorney who will recover their limited fee when SSDI awarded🤞While waiting on records, suggest keeping a daily journal of symptoms, reactions, what you cant do or extraordinary time/effort to do anything which also shows the difficulty such as just writing, finding words, and the unseen actual time it takes if can do that at all like taking me almost 2 hours to do this post🙃! . Hope this helpful and wish you the quickest healing journey🌈

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