COVID-19 and MAC: What are you doing differently to protect yourself?

Posted by kathyhg @kathyhg, Thu, Feb 27 8:33am

Is anyone doing anything differently to protect themselves now that we are facing the reality of covid-19?

@lilypaws

Hey Collen, I make a mistake when I made my post name. I put down "lilyoaws" when it should have been. "Lilypaws" is there a way I can change it? For some reason I'm not scared of the Covid-19. I guess because I have to stay home, I can't walk outside because of my back, which I'm waiting to have surgery. I did go out yesterday and picked up my daughter and went to get a couple of my pants altered. We also stopped at Dairy Queen and got a shake from the window. Of course, with masks on. Went to the grocery store with masks on and my daughter handle the groceries. How great that was to get out, even though I hurt from walking through the grocery store.

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Lilypaws, you give me confidence about going to the grocery store next week! You went so many places!

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@lilypaws

Hey Collen, I make a mistake when I made my post name. I put down "lilyoaws" when it should have been. "Lilypaws" is there a way I can change it? For some reason I'm not scared of the Covid-19. I guess because I have to stay home, I can't walk outside because of my back, which I'm waiting to have surgery. I did go out yesterday and picked up my daughter and went to get a couple of my pants altered. We also stopped at Dairy Queen and got a shake from the window. Of course, with masks on. Went to the grocery store with masks on and my daughter handle the groceries. How great that was to get out, even though I hurt from walking through the grocery store.

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@lilyoaws, I have submitted the request to change your username to lilypaws.

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@ginak

@anniepie I’m glad you are able to get your deliveries. I was having such a hard time getting a delivery in my area, I finally gave up and went to the market myself. With my gloves and Clorox wipes and mask, (which fogs up because of my glasses, lol). I worry about the time we start to re-open. I think people will stop being vigilant and it will cause another “wave” of illness.
I’m sorry you’re so isolated, but you seem to still be in good spirits. I will keep you and the rest of us in my prayers.
And for anyone else with the fogging glasses problem, I heard if you fold a tissue and put it under the nose piece it stops the fogging. It works! Although if it moves you start getting little piece of tissue in your mouth! You have to be VERY careful with the folding and placement. LOL 😂

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@ginak Thanks so much Gina. Lots of people on this site have more difficulties than me — so it's all no biggie, really.
True — the food deliveries continue to be trial and error. It's really hard to tell what size things are. (So I ended up with huge meat trays when they looked so small in the photo! And giant bags of blueberries for my tiny freezer! Just crazy).
Yes! My glasses fog up heaps too when I wear a mask — laugh. Thanks so much for the tip — we'll see, but a stray tissue will also be good for a laugh anyway. You are such a balm, Gina. Please look after yourself. Annie x

Liked by ginak

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@lilypaws

First of all all your e-mails come in my suspected spam and I accidently erased them sorry I miss so much. This is Jeanie (lilyoaws) My thoughts go out to you. I also have an immune disease, but not as bad as you do. I can't go to the grocery store, but going to pick up my daughter today. My thoughts and prayers are sent your way. Don't use zoom, just skype. My husband is a security manager at Wells Fargo. It's very dangerous and can take info from your computer. I am going stir crazy too. I'm waiting to hear from Mayo Clinic to have a low back fuse from t-10, L5, and S-1. It's a big surgery, but can't wait to get it over with. They are thinking about opening elective surgeries up. Bless your heart it must be so hard for you. I do puzzles on my computer. I am in pain from my back and have to do an injection with a very small needle into my stomach to increase my bone mass. Sorry I'm talking about myself. Take care of yourself and pray.

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@lilyoaws Thanks very much Lilypaws (Lily?) and you please look after yourself too. All the best with the surgery. We'll all help each other get through this. Annie x

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@lilypaws

Hi Tina. "lilyoaws
I live in the Des Moines area. I can go pick up my prescriptions. I call ahead and they get them ready, then when I go pick them up there's a number posted that I call and they bring it out to my car. I could have Hyvee deliver, but I need to get out of the house. Can't do any exercise because of my back pain, so I've gained 10 lb's. But I got Gastro Perisis again and now have to eat small meals doing the day. It's where your stomach doesn't digest food. I feel better today, with less pain. Hope to lose weight now. Wish we lived closer.

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I wish we lived closer too. I know there are people in my area with MAC because my regular physician is mystified by my thyroid numbers going wacky because she has another patient with the same disease with the same meds and she's doing fine. I thought, she's a different person. She said my pulmonologist is also treating her. My insurance does not cover Mayo so I can't go there. So far I'm happy in Davenport but I can go to Iowa City if I see a need.

Liked by anniepie

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Even though Mayo is out of network for me they have better surgeons there than Iowa City. I have to have a low back fusion from T-10 to my pelvis. It's a big surgery, but my surgeon has 4 qualifications and one is a professor for doing my kind of surgery. They have to open me up in the front and back.
I hope you get better. Iowa City is good too. It's surprising how much our Aetna Medicare pays. I suspect the surgery will be expensive, but so far the cost has not been to bad, except for my injections to increase my bone Mass. It costs $600 a month, but will continue to go down in price.
Take care of yourself.

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@tinaesims

I wish we lived closer too. I know there are people in my area with MAC because my regular physician is mystified by my thyroid numbers going wacky because she has another patient with the same disease with the same meds and she's doing fine. I thought, she's a different person. She said my pulmonologist is also treating her. My insurance does not cover Mayo so I can't go there. So far I'm happy in Davenport but I can go to Iowa City if I see a need.

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@tinaesims Hi Tina. If you are on Rifampin or Rifabutin — as part of your NTM treatment — your thyroid counts can go low, sometimes very low. This does happen to some people. Some other people don't have much problem.
Rifampin particularly interferes with Levothyroxine meds, reducing their effectivesness, so you can become low thyroid. (Technical info: Rifampin can be a moderately strong to strong CYP3A4 Inducer in interactions with Levothyroxine, and with Rosuvastati,n etc. Doctor could check Drugbank.com for more information about these interactions).
This certainly happened to me. Rifampin reduced the effectiveness of the Levothyroxine I take, so I ended up with low thyroid T4 and high TSH. It also flattened the Statins I was taking, so I ended up with high cholesterol (high lipids) all of the time.
In the end the Pulmonologist took me off Rifampin and replaced it with Clofazimine instead.
All the best, Annie

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@anniepie

@tinaesims Hi Tina. If you are on Rifampin or Rifabutin — as part of your NTM treatment — your thyroid counts can go low, sometimes very low. This does happen to some people. Some other people don't have much problem.
Rifampin particularly interferes with Levothyroxine meds, reducing their effectivesness, so you can become low thyroid. (Technical info: Rifampin can be a moderately strong to strong CYP3A4 Inducer in interactions with Levothyroxine, and with Rosuvastati,n etc. Doctor could check Drugbank.com for more information about these interactions).
This certainly happened to me. Rifampin reduced the effectiveness of the Levothyroxine I take, so I ended up with low thyroid T4 and high TSH. It also flattened the Statins I was taking, so I ended up with high cholesterol (high lipids) all of the time.
In the end the Pulmonologist took me off Rifampin and replaced it with Clofazimine instead.
All the best, Annie

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Hi everyone, I hope you are all safe at this time. I'm thinking of all of you and send my prayers, Annie

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@anniepie

Hi everyone, I hope you are all safe at this time. I'm thinking of all of you and send my prayers, Annie

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@anniepie I liked your post. How nice of you to think of all of us. And sending prayers is the best. You probably know that I'm the one having a big lower back fusion surgery on June 9th. I have had to wait to a long time because of the Covid-19. Finally the MN governor opened up to have elective surgeries. Bless you and sending thoughts and prayers your way.

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@lilypaws

@anniepie I liked your post. How nice of you to think of all of us. And sending prayers is the best. You probably know that I'm the one having a big lower back fusion surgery on June 9th. I have had to wait to a long time because of the Covid-19. Finally the MN governor opened up to have elective surgeries. Bless you and sending thoughts and prayers your way.

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@lilypaws Thanks Lily, and best of luck to you — hope it goes well in June.

Liked by fiesty76

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@lilypaws …Good luck to you with your surgery!!

Liked by fiesty76, Juli

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Hi all, a friend just sent me a link to an article by the epidemiologist Michael Osterholm on the effectiveness, or more importantly, ineffectiveness of wearing cloth masks. Distancing remains the best protection: https://www.cidrap.umn.edu/sites/default/files/public/downloads/special_episode_masks_6.2.20_0.pdf

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Hi, @lorifilipek, I read the article you posted by link. Thank you. I know I am a very "wordy" talker/writer, vbg, but so is the author . Now, understanding more about the issue of masks, I will continue to wear cloth coverings when outside because any protection, even if 3% prevention of virus spread is better for me with chronic respiratory issues than none at all. I was particularly disappointed to read what was written about the lack of scientific study and results prior to the CDC's release of their articles. How tragic for us all that we can no longer take at "face value" reports and recommendations made by those national institutions we put our faith in. Troubling times for sure. Again thank you for your post.

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@lorifilipek

Hi all, a friend just sent me a link to an article by the epidemiologist Michael Osterholm on the effectiveness, or more importantly, ineffectiveness of wearing cloth masks. Distancing remains the best protection: https://www.cidrap.umn.edu/sites/default/files/public/downloads/special_episode_masks_6.2.20_0.pdf

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@lorifilipek Thank you for the info. I would like to add that the reason there is no vaccine for aids is because no human being has effectively been able to clear that virus from his/her system. In the case of Covid19 people have been able to do that: hence a vaccine will be forthcoming at some point. I haven’t finished reading the thirty pages, and maybe it says that – but just in case. Also, I agree with fiesty76. 3% is better than 0%. Common sense in all of this is key. Thank you again. irene5

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@lorifilipek

Hi all, a friend just sent me a link to an article by the epidemiologist Michael Osterholm on the effectiveness, or more importantly, ineffectiveness of wearing cloth masks. Distancing remains the best protection: https://www.cidrap.umn.edu/sites/default/files/public/downloads/special_episode_masks_6.2.20_0.pdf

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@lorifilipek Hi and thanks for the informative article…It was very comprehensive. I was charmed by his closing quote from Christopher Robin… "You're braver than you believe and stronger than you seem, and smarter than you think."….."Be safe, be kind." It took me 30 pages to realize this is the same author that I posted on FB two days ago with Straight Talk on Covid-19. It, too, was an excellent article and thankfully it seems he did not drink as much coffee before he wrote it. haha. Stay safe!! Kate For your reading enjoyment:
https://www.bluezones.com/2020/06/covid-19-straight-answers-from-top-epidemiologist-who-predicted-the-pandemic/

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