Diagnosed with Uterine Cancer (Leiomyosarcoma)

Welcome @cjacobs99, I added your discussion to the Gynecologic Cancers group here: https://connect.mayoclinic.org/group/gynecologic-cancer/
I did this so that you can connect with other women who have uterine cancer and/or uterine leiomyosarcoma like @rred @ventibug @naturegirl5 and others.

The exact cause of uterine leiomyosarcoma is unknown. They often occur spontaneously, for no apparent reason. Uterine leiomyosarcomas commonly grow quickly. It's natural to want to find a reason why this happened and to find things to blame, like COVID, lifestyle, past exposures, etc. But you can make yourself crazy trying to find the cause. Sometimes cancer just happens. It sucks.

Did they say what stage your cancer was? Will you need additional treatment like chemo or radiation? How are you feeling?

Just diagnosed, state 1b.

Thank you.

@ace1048 Were you diagnosed with Uterine Cancer (Leiomyosarcoma), Stage 1b? If yes, how are you feeling? This is so very difficult and as your doctor likely told you it is a relatively rare cancer of the inside muscle (myometrium) of the uterus. I can tell you that I was completely stunned when my doctor called me to tell me that my biopsy showed cancer (mine was endometrial adenocarcinoma). It took me several days to come out of that shocked state to look at what I should do for treatment.

Here is the description from Mayo Clinic:

-- https://www.mayoclinic.org/diseases-conditions/leiomyosarcoma/cdc-20387733

Will you need additional treatment such as radiation, immunotherapy or chemotherapy? What is your treatment plan?

My leiomyosarcoma was Dx in June of last year. I had a gyn appointment and everything was ok. Then 5 months after that, I had the two Covid vaccine shots. Three months later I had Stage 4 Uterine Leiomyosarcoma. I believer there is a connection. I am researching and I will pass the research on to my grandchildren. I believe it will be much like the Camp Lajeune class action… year later and too late to save the people it effects. There are studies from other countries that have shown there are nano particles in the blood stream of people who have had the vaccine. I continue to research!

The problem with hypothesizing about connections between Covid/vaccine and cancer is that most of the people who would have gotten cancer in the past year anyway, even if there had been no Covid pandemic or vaccine, have had the vaccine and/or Covid in the recently. So all these people can say "hey, I just got that vaccine, maybe that's why I got cancer." But that doesn't mean anything unless overall rates of cancer have gone up since Covid or since the vaccine. I tried to look this up, but the American Cancer Society's "2021" Cancer report seems to be based on data from 2017. I'm not sure where to find more recent data.

I did have two doses of the vaccine about a year before I was diagnosed with endometrial cancer and a booster about 6 months before. I also had Covid after I was diagnosed. Personally, I don't think there's any connection.

It looks like the NCI/CDC/ACS/NAACCR Annual Report to the Nation on the Status of Cancer for 2019 was just released last week. So maybe we'll know in about 3 years whether cancer diagnoses are up this year.

My gyn couldn’t feel my football-size tumor even after I was Dx’d. I was pissed that it wasn’t found earlier as I had gone to see her and other drs the past year for my symptoms. Oh well. Surgery removed most of the leiomyosarcoma from my pelvic area. It was a massive intense surgery. I had my first chemo session a day ago. Fingers crossed the cancer can be controlled.

I was diagnosed with leiomyosarcoma in 2011. Three years before that, I had surgery to remove fibroids. Turns out the fibroids were suspicious for cancer at that time, but my doctor didn't catch it. Then 3 years later, symptoms returned and fibroids returned. After a biopsy, I was at Stage 2A. My only treatment was surgery. I had a complete hysterectomy. It was determined that radiation or chemo wouldn't be helpful. So far, it has been 11 years and the cancer has not returned. There is hope out there. Leiomyosarcomas can be aggressive and can be fed by estrogen or progesterone. I have had both Covid vaccines and every booster available, but since I have no ovaries, I'm not producing hormones, so it's not a factor for me. Just remember, synthetic mRNA has been around since 1984. Researchers took what they learned from those early vaccine studies using mRNA to develop the Covid-19 vaccine, so it's not like this was a completely new thing. However, acute stress from having Covid can cause the adrenal glands to produce more hormones which can change your menstrual flow. And as you know, there are so many other factors that affect our hormones. Hard to narrow it down to one thing. Try not to focus on that element, and instead focus on staying positive.

@cjacobs99 How are you doing?