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Diagnosed with Uterine Cancer (Leiomyosarcoma)

Gynecologic Cancers | Last Active: Jan 31 6:34pm | Replies (70)

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@rdm62

I was diagnosed with leiomyosarcoma in 2011. Three years before that, I had surgery to remove fibroids. Turns out the fibroids were suspicious for cancer at that time, but my doctor didn't catch it. Then 3 years later, symptoms returned and fibroids returned. After a biopsy, I was at Stage 2A. My only treatment was surgery. I had a complete hysterectomy. It was determined that radiation or chemo wouldn't be helpful. So far, it has been 11 years and the cancer has not returned. There is hope out there. Leiomyosarcomas can be aggressive and can be fed by estrogen or progesterone. I have had both Covid vaccines and every booster available, but since I have no ovaries, I'm not producing hormones, so it's not a factor for me. Just remember, synthetic mRNA has been around since 1984. Researchers took what they learned from those early vaccine studies using mRNA to develop the Covid-19 vaccine, so it's not like this was a completely new thing. However, acute stress from having Covid can cause the adrenal glands to produce more hormones which can change your menstrual flow. And as you know, there are so many other factors that affect our hormones. Hard to narrow it down to one thing. Try not to focus on that element, and instead focus on staying positive.

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Replies to "I was diagnosed with leiomyosarcoma in 2011. Three years before that, I had surgery to remove..."

I am so glad you have not had a reoccurrence. This cancer is a real beast. Unfortunately my was not caught in the early stages but I’m learning there are options. My tumor tested positive for hormones , so I’ve been taking a hormone blocker because your body naturally produces hormones (even without a uterus and ovaries). It has helped so far along with six rounds of chemo , 5 radiation sessions and tons of crying and prayer. I’m in a much better place.

Thank you. I'm not sure if you will see this, but you encouraged me. I was diagnosed with leiomyosarcoma in January 2023, after having a total hysterectomy. It metastasized to my lungs, on my 2nd round of treatment. Trusting God and staying positive, all the way. I