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Fiona
@fiona

Posts: 1
Joined: Jul 12, 2011

Costochrondritis/ Tietze syndrome

Posted by @fiona, Jul 12, 2011

Would love to hear from anybody who has any info on this disorder. I get flare ups 5-6 times a year.Costachrondritis has been mentioned but I have yet to get a diagnosis despite MRI and CAT scans and x-rays. Stabbing, sharp pain starts in the left rib cage and within days I have upper stomach and back spasm which is only alleviated by complete bed rest ie. being still. During an attack, just moving my arm in a certain way, or coughing will provoke a spasm. I feel generally unwell , tired and out of sorts. It has been suggested that allergys may set it off.Sometimes when I have an extra strenous exercise session or even cleaning house can start it off. Flare up will last usually 7 -10 days. Cortisone shots into / between ribs on left side have worked pretty well but I dont think that is the answer long term. Anybody know if there is a blood test to look for Tietze? Apparently the difference between that and costachrondritis is actual inflammation in cartiledge…I have also read that the condition is associated with arthritis and auto immune conditions…I am in remission from moderate colitis. Also I noticed during last episode that my hands felt arthritic -sore tender finger joints. I would love to hear from somebody who recognises these symptoms – I am frustrated and bewildered and fed up with this seemingly untreatable and difficult to diagnose condition. Otherwise I am a healthy , engaged and youthful 50 year old! Last question: What kind of doctor does one see to discuss this condition?

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Divavalenta
@divavalenta

Posts: 1
Joined: Apr 07, 2012
Posted by @divavalenta, Apr 7, 2012

I have the same symptoms for the past 2 years. It is very frustrating and it is affecting my everyday life, when I ger a flare up I am completely useless and when it passes, I tend to find myself not doing much hoping I won’t aggrevate it and cause another flare up. My doctors don’t help, they have never even offered the cortizone shot. I take muscle relaxers and just recently lyrica. I need answers. Hopefully there is someone out there preferably with medical experience that has some advise.


Gaurv Shshank
@shshank_gaurv

Posts: 6
Joined: Jun 22, 2017
Posted by @shshank_gaurv, Thu, Jun 22 9:43am

[Am only sharing my experience here]
I have had this for 8 years now.
Doctors gave me Lyrica then Later Gabapentin (those medicines don’t seem to help that much).
Physiotherapy Helped a lot. My condition is 70% better than what it was initially. But it’s stagnant at that. If I don’t go for my Physiotherapy Sessions for a week, the symptoms are back again. I too keep Muscle Relaxant and Zerodol as SOS.
Vitamin D3 + K2 7 + Calium, B12, Iron + Calium combo helps a bit in Pain & Tiredness respectively.
Manual Physiotherapy Sessions + IFT is what they give me every alternate day. (That way my condition is Stable).
Specific Isometric Exercises may help.
Any diet which helps in this is not known. Only adviced to have higher protein diets by my Physio.
Lifestyle – You need to avoid lifting heavy weights from the side which has pain.


Gaurv Shshank
@shshank_gaurv

Posts: 6
Joined: Jun 22, 2017
Posted by @shshank_gaurv, Thu, Jun 22 9:59am

I saw a NeuroPhysician.
Left hand fingers do have lots pain.


Lisa Lucier, Connect Moderator
@lisalucier

Posts: 152
Joined: May 10, 2017
Posted by @lisalucier, Thu, Jun 22 4:16pm

Hello @shshank_gaurv, and welcome to Connect. Thank you for providing some of your experience with this condition and what has helped and not helped you as you’ve lived with it. I’m glad to hear about your improvement, but it also sounds frustrating that it stagnated at about 70 percent better. I’m tagging other members, @dawn_giacabazi @barbvh @annieecruz and @divavalenta who have talked about costochrondritis and/or Tietze’s syndrome in the past so that they join in and share their experiences.

You mentioned your physiotherapist suggested a higher protein diet. Just wondering if you have tried that, and if so, if it helped at all?

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Gaurv Shshank
@shshank_gaurv

Posts: 6
Joined: Jun 22, 2017
Posted by @shshank_gaurv, Tue, Jun 27 12:24pm

Hi @lisalucier
Thank you so so much for replying. I don’t expect it, because after posting the comment I realised I had replied to a 6/7 year old post (2011,2012).
Yes the high protein diet helps me keep my condition stable. Am a vegetarian so getting proteins in my diet is not that easy. I rely on Kidney Beans and Chick Peas mostly as my sources of protein.
But if I don’t have any protein at all then the symptoms r just too much and am in severe pain all day. The spasm and the radiating pain from spine to abdomen are there almost all the time. The left hand is also numb almost all day. And Shoulder is stiff and sore.

It also does give you some breathing issues. (Don’t know if it’s only in my case or others experience the same)
My Physio did some Manual Neck Procedure and it helped a bit in breathing.
Can Chiropractor help in this situation..


Lisa Lucier, Connect Moderator
@lisalucier

Posts: 152
Joined: May 10, 2017
Posted by @lisalucier, Wed, Jun 28 3:05pm

Hi @shshank_gaurv,
Indeed, this discussion thread was started quite a while ago. However, I’m glad that you have re-ignited the conversation. It is an important one. We’ve also had the experience where past members will return to help others, even after an absence of several years. New activity also encourages other people to join in who may up until that point only have been reading. For that, I’m thankful.

If the manual neck therapy worked well with the physical therapist, do you need to seek out the services of a chiropractor? Or do you think that a chiropractor may have something additional to offer?


Gaurv Shshank
@shshank_gaurv

Posts: 6
Joined: Jun 22, 2017
Posted by @shshank_gaurv, Fri, Jun 30 12:44pm

Hi @lisalucier
Thanks a lot for Replying.
I do think the Chiropractor might have something additional too offer, but Am just guessing, am Not really sure about it.

You know lot lot better. You should advice on this.
If you were in my position how would you go about the whole thing (Medicines, Therapy, Diet, Exercise.. )
I mean the Roadmap


Lisa Lucier, Connect Moderator
@lisalucier

Posts: 152
Joined: May 10, 2017
Posted by @lisalucier, Sat, Jul 1 10:25am

Hi @shshank_gaurv,
It appears you may be under the impression I am a medical professional. I am not, and am therefore not in a position to provide medical advice. Mayo Clinic Connect provides a place for community members (patients, family members, caregivers) to share their experiences and connect with those who’ve faced similar experiences.

You may be interested to read more about Connect here: https://connect.mayoclinic.org/about-this-community/.

As moderators, we help connect people with similar health issues and ensure that the community is safe, welcoming, respectful and inclusive. Here is some information you may be interested in about how and why we moderate:
https://connect.mayoclinic.org/about-our-moderators-and-mentors/. As we continue to keep this discussion going about costochondritis, the likelihood of other members joining in increases.

Researching costochondritis on Mayo Clinic’s website, chiropractic adjustment is not one of therapies recommended, per http://www.mayoclinic.org/diseases-conditions/costochondritis/basics/treatment/con-20024454. Additionally, here is information you may wish to read about chiropractic treatment, what you can expect, how to prepare and potential risks: http://www.mayoclinic.org/tests-procedures/chiropractic-adjustment/basics/what-you-can-expect/prc-20013239.


virtuous69
@virtuous69

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Posted by @virtuous69, Wed, Jul 5 5:14pm

I too have costochrondroits which can come on quite suddenly between my ribs usually on the left side. Will happen often when I change sides when In bed and can really travel from side to back etc. Most painful spasm I,ve ever endured since child birth pain. Takes my breath away. Fortunately only lasts s few minutes for me.I try not to move, take in large breaths slowly to get oxygen to my muscles and wait it out. I have Fibromyalgia also. I’ve done so much information hunting with no definite answers: just inflammation of the connective tissue between my ribs. My primary doc tells me to take Advil and rest, should I have a long episode. What is the other condition you spoke about starts with a T? Had not heard of it before?


Lisa Lucier, Connect Moderator
@lisalucier

Posts: 152
Joined: May 10, 2017
Posted by @lisalucier, Thu, Jul 6 1:51pm

Hi, @virtuous69. I’m sorry to hear about all the pain you’ve been experiencing.

You asked about Tietze Syndrome. It’s another name for costochondritis. Here is some additional information:http://mayocl.in/1QRHoJk.

You mentioned your doctor suggested taking over-the-counter pain medication and rest when you have long costochondritis pain episodes. Are you finding any relief with that regimen?


virtuous69
@virtuous69

Posts: 59
Joined: Mar 09, 2017
Posted by @virtuous69, Thu, Jul 6 5:09pm

@lisalucia:. Thank you for your reply and link to Tietze. Yes, just breathing deeply and waiting the spasm symptom out, not moving, is the only thing I can do. I generally only have a few moments of that painful sudden spasm.Interestingly, I’ve always been baffled by the cause other than reading an inflammation of the cartilage between the ribs..
But the link points to osteoarthritis and ankylosing spondilitis of which I have both may give me more understanding. I have Fibromyalgia also so that must factor in. Doc said if you press on both sides of your breast bone and it’s very tender, most liking costochrondrtis and not heart attack. Advil was recommended when I had a one time long severe episode. Helped.


Gaurv Shshank
@shshank_gaurv

Posts: 6
Joined: Jun 22, 2017
Posted by @shshank_gaurv, Sun, Jul 2 7:09am

Hi @lisalucier.
Good Evening!!
It’s 17:37 here. Don’t know why I mentioned the time but it might help you figure out why the replies are 20 hours apart mostly due to time difference.

Yup I did think that you were a medical professional. But even if you are a non-medical professional but the experience you get by moderating such Interactions gives you a much better idea how to go about it and that is exactly what happened.

The two links you shared about CostoCondritis was exactly what I was looking for and expecting from You.

It helps me know about my Medications and Therapy and their side effects and also about Lifestyle and Home Remedies. Though the Lifestyle and Home Remedy section should have had more info.

Thanks a lot for all the information. It is really helpful. I feel much more confident now.

Individual Experience : Vitamin D3 somehow is alleviating my pain & helping me keep much more active. Yesterday after years I drove around 150 Kms (approx 100 Miles) without feeling tired in City Traffic. That might be normal for everyone but it’s kind of an achievement for me.


virtuous69
@virtuous69

Posts: 59
Joined: Mar 09, 2017
Posted by @virtuous69, Wed, Jul 5 5:21pm

What is Tietze Syndrome?

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Gaurv Shshank
@shshank_gaurv

Posts: 6
Joined: Jun 22, 2017
Posted by @shshank_gaurv, Thu, Jul 13 12:00pm

Hi @virtuous69

Tietze syndrome (also called chondropathia tuberosa or costochondral junction syndrome) is a benign inflammation of one or more of the costal cartilages.

https://en.m.wikipedia.org/wiki/Tietze_syndrome

The main presentation of the syndrome is significant, acute pain in the chest, along with tenderness and some swelling of the cartilages affected, which is commonly palpable on examination. Perceived pain is often exacerbated with respiration. Although many times it can be extremely painful, to the point of being debilitating, Tietze’s Syndrome is considered to be a benign condition that generally resolves in 12 weeks. However, it can often be a chronic condition.

Costochondritis symptoms are similar to Tietze’s, the prime difference being that the pain radiates to the arms and shoulders in the latter.

http://www.mayoclinic.org/diseases-conditions/costochondritis/basics/definition/con-20024454


ladibabe
@ladibabe

Posts: 1
Joined: Aug 25, 2017
Posted by @ladibabe, Fri, Aug 25 5:58pm

Hi, I saw this discussion and had to join in. I recently was diagnosed with Tietze Syndrome and have been completely confused with how I got this. I have swelling in the middle of my chest and spells when my breathing is so restricted and or chest pain that feels like my breast bone is broke in two. My lite symptoms is the feeling of a heavy chest.

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