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Convulsive pre-syncope
Does anyone with autonomic dysfunction or similar ever experience this convulsive form of pre-syncope? Mine is related to orthostatic hypotension and I just thought everyone had these symptoms with it but now I understand it's pretty rare. It's also why I kept falling when all this started happening. I have absolutely no control over my limbs and they just jerk spastically on their own along with more typical symptoms like tunneling and loss of hearing. Honestly I thought it was a type of seizure. I'm just looking for any information about it or more advice. I can tell it's coming and crouch down on the floor. I can't imagine the scene if I was elsewhere and not at home.
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@sb4ca
That does sound scary.
What testing and treatments have you had so far? Are you taking any medications? What conditions have you been diagnosed with? What types of specialists are you working with now?
Yes, what is causing your orthostatic hypotension. That is possibly linked to the additional symptoms.
My cardiologist diagnosed me. I think OH is one form of autonomic dysfunction. The autonomic system controls things like blood pressure, breathing, heart beating and all the things the body does behind the scenes. Once diagnosed I don’t see any specialists. I have to stay hyper hydrated and eat salty snacks per my cardiologist.
@sb4ca I think you have some complexity with this issue of syncope. I am suspecting that because of scar tissue and tightness in your neck from cervical spine surgery and perhaps muscle spasms, that it may be able to affect nerves involved with your heart rate or blood pressure. The body has a mechanism for when blood pressure gets too high that causes syncope. That used to happen to me because I was fearful of trauma and pain and anxious about it and I would pass out. That was described to me as my body's way to diffuse a situation of blood pressure getting too high due to fear that essentially dilated blood vessels to drop pressure instantly. I could always tell when it was coming like you. It sounds like you are in a similar situation. Do you know what triggers this for you?
Have you talked to your spine specialist about this?
What may possibly be beneficial would be to do myofascial release therapy to loosnen tight scar tissue and tight muscle tissue that may be provoking the nerve nearby.
Here is our discussion on MFR therapy.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
There is a provider search at this link.
http://mfrtherapists.com/
@sb4ca
My teen son has a heart defect, Reynauds syndrome, and POTS like symptoms. He never had the Covid shots but had Covid 2 times. I understand that Covid can damage the nervous system.
My son’s cardiologist also suggested super hydration with electrolytes included (like LMNT brand) to help insure absorption and retention to maintain blood pressure and also eat salty snacks. 🙂 He was also told to make sure to get sleep and exercise plus limit video games/screen time. That is really hard for him. 😉