@mjp0512 - From what I have seen and heard (not personal experience). You got that backwards. Most PC is slow growing (but not sure your situation), Colon Cancer will take you quickly.
@briang1958 - Normally, I would wholly agree with you and would offer the same advice. However, after 9 months of Orgovyx/Nubeqa and an IMRT cycle, my PSA went from 0.19 in Aug, to 0.23 in Dec, to 8.80 last week. I guess "slow growing" is for other people. Doubling time of 1.2 months is no bueno. Since chemo looks like it's coming on pretty soon, I'll let it whack whatever other cancer there is too. No need to go looking for something else to think about. Just my opinion and my case, of course.
@briang1958 - Normally, I would wholly agree with you and would offer the same advice. However, after 9 months of Orgovyx/Nubeqa and an IMRT cycle, my PSA went from 0.19 in Aug, to 0.23 in Dec, to 8.80 last week. I guess "slow growing" is for other people. Doubling time of 1.2 months is no bueno. Since chemo looks like it's coming on pretty soon, I'll let it whack whatever other cancer there is too. No need to go looking for something else to think about. Just my opinion and my case, of course.
@briang1958 - Normally, I would wholly agree with you and would offer the same advice. However, after 9 months of Orgovyx/Nubeqa and an IMRT cycle, my PSA went from 0.19 in Aug, to 0.23 in Dec, to 8.80 last week. I guess "slow growing" is for other people. Doubling time of 1.2 months is no bueno. Since chemo looks like it's coming on pretty soon, I'll let it whack whatever other cancer there is too. No need to go looking for something else to think about. Just my opinion and my case, of course.
@briang1958 - Normally, I would wholly agree with you and would offer the same advice. However, after 9 months of Orgovyx/Nubeqa and an IMRT cycle, my PSA went from 0.19 in Aug, to 0.23 in Dec, to 8.80 last week. I guess "slow growing" is for other people. Doubling time of 1.2 months is no bueno. Since chemo looks like it's coming on pretty soon, I'll let it whack whatever other cancer there is too. No need to go looking for something else to think about. Just my opinion and my case, of course.
@mjp0512 Fortunately, my cancer turned out to be castrate sensitive, so Orgovyx+Erleada are holding it at bay for now, but it was also fast-growing: it spread to my spine before there was anything detectable in the prostate at all.
My oncologist in 2021 told me that roughly 1 out of 20 prostate-cancer cases is fast-spreading like that (typically the patients are younger — I was 56 at the time). I read elsewhere that the fast variety can develop and spread so quickly that it all happens between annual PSA tests: one year clear, the next year, stage 4 (that happened to one of my hospital roommates).
That's the problem with the common wisdom about prostate cancer: for every 19 times it's right, there's one time it's dangerously wrong. 😢
@heavyphil - PSA of 8.80 was just last week so no scan yet. I'm sure one will be scheduled when I see the doc next week. I'm guessing he'll repeat the PSA just to be sure too. Then again, maybe not, since ALP was elevated also. He may go straight to PSMA PET.
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@briang1958 - Normally, I would wholly agree with you and would offer the same advice. However, after 9 months of Orgovyx/Nubeqa and an IMRT cycle, my PSA went from 0.19 in Aug, to 0.23 in Dec, to 8.80 last week. I guess "slow growing" is for other people. Doubling time of 1.2 months is no bueno. Since chemo looks like it's coming on pretty soon, I'll let it whack whatever other cancer there is too. No need to go looking for something else to think about. Just my opinion and my case, of course.
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2 Reactions@mjp0512 - I am so sorry.
Right - every case is different.
Short answer...yes.
I had my first one in 2010, polyps, not cancerous though so have been on the three year cycle since.
Despite surgery, SRT, triplet and doublet therapy, no issues.
I've had 69 radiation treatments, SRT, WPLN and SBRT.
I don't want to die of something I may be able to determine early and treat or manage.
As always, discuss with your medical team...
Kevin
@mjp0512 Man, that sucks…scans show anything with that PSA??
Phil
@mjp0512 Fortunately, my cancer turned out to be castrate sensitive, so Orgovyx+Erleada are holding it at bay for now, but it was also fast-growing: it spread to my spine before there was anything detectable in the prostate at all.
My oncologist in 2021 told me that roughly 1 out of 20 prostate-cancer cases is fast-spreading like that (typically the patients are younger — I was 56 at the time). I read elsewhere that the fast variety can develop and spread so quickly that it all happens between annual PSA tests: one year clear, the next year, stage 4 (that happened to one of my hospital roommates).
That's the problem with the common wisdom about prostate cancer: for every 19 times it's right, there's one time it's dangerously wrong. 😢
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4 Reactions@heavyphil - PSA of 8.80 was just last week so no scan yet. I'm sure one will be scheduled when I see the doc next week. I'm guessing he'll repeat the PSA just to be sure too. Then again, maybe not, since ALP was elevated also. He may go straight to PSMA PET.
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Hug
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