Colon Resection for Diverticulitis and Chronic Constipation

Posted by tracy430 @tracy430, Jan 27, 2019

Hi All,

My name is Tracy. I had sigmoid colon resection just about 7 weeks ago for diverticulitis. Before surgery, I could count on one hand the times in my life I needed to take a laxative. Now, I don't really have a choice, as I am suffering from chronic constipation. My surgeon gives me no recommendations, with the exception of more fiber, more water and to be more optimistic that it will improve. I get more depressed by the day, as this is coloring every aspect of my life. My surgeon told me having this surgery would "give me my life back". So far, it's taken all the joy from it. Any input would be appreciated.

Thank you.

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@deedeee

Hi Everyone! I’m new here and hoping I could get some insight on post robotic resection for diverticulitis. I’m interested in issues I may have down the road and if it is worth it. I was told it wasn’t emergent like next week but needed to be done eventually in next couple of months due to having frequent bouts with diverticulitis and pretty much constant left lower quadrant pain and having to take antibiotics frequently. What post surgery side effects have you had and are any of you glad you had it done. Just looking for support and guidance. Thank you!!

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Hello @deedeee and welcome to Mayo Connect. I see. that you are looking for information about surgery for diverticulitis. @linda82 has posted to you with some great information about her surgery as well as how she approached her recovery. I would encourage you to read her post.

How long has diverticulitis been a problem for you?

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@deedeee

Hi Everyone! I’m new here and hoping I could get some insight on post robotic resection for diverticulitis. I’m interested in issues I may have down the road and if it is worth it. I was told it wasn’t emergent like next week but needed to be done eventually in next couple of months due to having frequent bouts with diverticulitis and pretty much constant left lower quadrant pain and having to take antibiotics frequently. What post surgery side effects have you had and are any of you glad you had it done. Just looking for support and guidance. Thank you!!

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I am 3 months out from robotic surgery for the same reason as what you are experiencing. My surgeon was also concerned that it might perforate which would require emergency surgery by whatever surgeon was on duty at the ER and wouldn’t be done robotically. So I opted to have it done right away after the holidays. Unfortunately I had one more episode at Christmas while visiting family in another state so I was miserable the entire time from both the diverticulitis and the strong antibiotic. Had it not been December I would have had it right away.
I am a widow so I had to line up family members and a close friend to help me after the surgery with meals, walking with me, and just to be there for me. They were a tremendous help.
I was in the hospital for 3 days. They get you up and walking pretty much right away. I didn’t take the strong pain meds for that long after I got home. And yes, there is blood when you go try to have BM the first few time and it is scary. But I was assured it was all normal. That stopped before I left the hospital.
I was on a low fiber diet for several weeks and am just now adding more and more things to my diet. After living in great fear of just about all food it is scary to add things to your diet. That is one of the things that is so helpful about being in this group. Knowing other people’s experiences and what worked or didn’t work for them is getting me through.
I feel better now, but still have occasional pain on my left side neat my incision. It comes and goes. My BM’s aren’t quite back to normal but it’s getting better.
I lost quite a bit of weight and because my appetite isn’t what it used to be and because I get full fast, I haven’t gained it back. But I haven’t lost more either. Part of the weight loss was because of the frequent episodes of diverticulitis so I went into surgery weighing much less than normal.
I am very glad that I had it done. Those constant visits to the ER and the strong antibiotics were making me miserable. I also had almost constant pain in my left side. I had an episode the last two trips I took so I think my quality of life should only get better after the last year I experienced.
Good luck to you.

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@foxj

I am 3 months out from robotic surgery for the same reason as what you are experiencing. My surgeon was also concerned that it might perforate which would require emergency surgery by whatever surgeon was on duty at the ER and wouldn’t be done robotically. So I opted to have it done right away after the holidays. Unfortunately I had one more episode at Christmas while visiting family in another state so I was miserable the entire time from both the diverticulitis and the strong antibiotic. Had it not been December I would have had it right away.
I am a widow so I had to line up family members and a close friend to help me after the surgery with meals, walking with me, and just to be there for me. They were a tremendous help.
I was in the hospital for 3 days. They get you up and walking pretty much right away. I didn’t take the strong pain meds for that long after I got home. And yes, there is blood when you go try to have BM the first few time and it is scary. But I was assured it was all normal. That stopped before I left the hospital.
I was on a low fiber diet for several weeks and am just now adding more and more things to my diet. After living in great fear of just about all food it is scary to add things to your diet. That is one of the things that is so helpful about being in this group. Knowing other people’s experiences and what worked or didn’t work for them is getting me through.
I feel better now, but still have occasional pain on my left side neat my incision. It comes and goes. My BM’s aren’t quite back to normal but it’s getting better.
I lost quite a bit of weight and because my appetite isn’t what it used to be and because I get full fast, I haven’t gained it back. But I haven’t lost more either. Part of the weight loss was because of the frequent episodes of diverticulitis so I went into surgery weighing much less than normal.
I am very glad that I had it done. Those constant visits to the ER and the strong antibiotics were making me miserable. I also had almost constant pain in my left side. I had an episode the last two trips I took so I think my quality of life should only get better after the last year I experienced.
Good luck to you.

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Hello @foxj,

I appreciate you sharing your story about surgery and recovery experiences. I'm sure it will help @deedeee and others as they look towards surgery for diverticulitis. Surgery can be difficult to look forward to and hearing how others adjusted to the changes is very reassuring.

I have had three surgeries of the upper digestive tract and everything you said about surgery and recovery was similar to my experience. Keep posting and encouraging others. I hope you continue to feel better!

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@researchmaven

deedeee, I assume that prior to deciding on surgery, you dramatically changed your diet to focus on food that would not irritate your diverticuli?

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I have and I’m still trying to decide whether or not to proceed or see how much the diet changes help.

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@linda82

I also had frequent bout's that "episodes" were getting closer and closer together. I stayed on so many med's for every episode. My Dr's told me the same. (proof from colonoscopy, CTscan and MRI)
I decided after my last bout during Thanksgiving being alone in pain that I was done living like this.
I decided to schedule my surgery after the cold/flu season. (hate hospitals) I also wanted to be in the best health.
I was scheduled for robotic. But, they had to end up cutting me from belly button down. DUE to so many years and episodes the scar tissue and damage was severe.
I had 12" removed.
The day after surgery they want you up and moving and eating. Getting up did not scare me but eating! The first thing I did that morning was had them remove the Ketamine. By the afternoon they took my alarm off, and I could walk the halls and get up without help.
I had lunch and some dinner and felt fine.
You will be running to the bathroom a lot and there will be blood. It will be scary to see.
I was able to leave the hospital after my 2nd night. (that morning the nurse stood around while I took a shower)
When I got home I had the schedule of med's to take for the first week.
My husband had a spreadsheet and med's lined up for times and check off.
I stayed on low fiber that week. I got up (it helped keeping my bed in zero G and not trying to sleep on side) every couple of hours and WALKED! I also drank ALOT!
This will be the most important for you to do. EAT Drink and walk.
The most post op side effects are mental for me. When you live in fear of the "episode" and eating for so long the anxiety and fear is still with me a year later. Weird I have not had any episodes but, still have the fear.
I am very glad I had the surgery and glad I did not wait any longer.
Of course, you still need to have proper diet and exercise. You will feel full fast. Keep to small portions.
It is so nice to have normal BM's in the AM and not worry the rest of the day. (but this will take a 4-6 of mths) At first you will go a lot and all day. Get good pads for just in case of accidents. (you may not realize it)
I also, used this site for help and guidance (before and after) and it is awesome.
Make sure you understand everyone is different health wise.
I had the surgery on my 60th B-day. (no other health issues)

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Thank you so much for the information. I’m glad you are doing better.

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@hopeful33250

Hello @deedeee and welcome to Mayo Connect. I see. that you are looking for information about surgery for diverticulitis. @linda82 has posted to you with some great information about her surgery as well as how she approached her recovery. I would encourage you to read her post.

How long has diverticulitis been a problem for you?

Jump to this post

Yes this is exactly the information I was looking for. I’ve had issues for about 5-6 yrs now.

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@foxj

I am 3 months out from robotic surgery for the same reason as what you are experiencing. My surgeon was also concerned that it might perforate which would require emergency surgery by whatever surgeon was on duty at the ER and wouldn’t be done robotically. So I opted to have it done right away after the holidays. Unfortunately I had one more episode at Christmas while visiting family in another state so I was miserable the entire time from both the diverticulitis and the strong antibiotic. Had it not been December I would have had it right away.
I am a widow so I had to line up family members and a close friend to help me after the surgery with meals, walking with me, and just to be there for me. They were a tremendous help.
I was in the hospital for 3 days. They get you up and walking pretty much right away. I didn’t take the strong pain meds for that long after I got home. And yes, there is blood when you go try to have BM the first few time and it is scary. But I was assured it was all normal. That stopped before I left the hospital.
I was on a low fiber diet for several weeks and am just now adding more and more things to my diet. After living in great fear of just about all food it is scary to add things to your diet. That is one of the things that is so helpful about being in this group. Knowing other people’s experiences and what worked or didn’t work for them is getting me through.
I feel better now, but still have occasional pain on my left side neat my incision. It comes and goes. My BM’s aren’t quite back to normal but it’s getting better.
I lost quite a bit of weight and because my appetite isn’t what it used to be and because I get full fast, I haven’t gained it back. But I haven’t lost more either. Part of the weight loss was because of the frequent episodes of diverticulitis so I went into surgery weighing much less than normal.
I am very glad that I had it done. Those constant visits to the ER and the strong antibiotics were making me miserable. I also had almost constant pain in my left side. I had an episode the last two trips I took so I think my quality of life should only get better after the last year I experienced.
Good luck to you.

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Thank you so much for the information. I am also a widow and having help is also a concern. Plus the surgery is scary because I worry about complications and quality of life afterwards. I appreciate you taking the time to answer my question. Hope you continue to improve.

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@researchmaven

deedeee, I assume that prior to deciding on surgery, you dramatically changed your diet to focus on food that would not irritate your diverticuli?

Jump to this post

Basically I was just told no seeds or nuts or steak or bbq.

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@hopeful33250

Hello @linda82

You provided some helpful information regarding surgery for diverticulitis. I'm sure @deedeee as well as others will find your post and suggestions helpful. It is important to have a plan in place for meds, eating, drinking, as well as walking. They are all important when you have any surgery of the digestive tract. Eating small, frequent meal is essential.

I'm glad that your surgery and recovery went so well and that you can offer important tips for others considering surgery for diverticulitis. Did you lose much weight either before or after surgery?

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Thank you. I agree.

The medication and notes area a must. I scaned it to my Dr.'s after the first week with comments or concerns.
The year before my surgery I had 3 - 4 episodes and lost 20lbs.

I had 4 mths to get ready for my surgery.
I stayed on low residue diet and Mesalamine to keep inflammation at bay around the clock.
There are other med's you can get but, this one was the best for me to tolerate. I depleted all the stock from my surrounding areas. I even called the MFG. Sun Pharma and they did stated that this medicine was on extended backorder, and they do not know when it will be available.
All my local pharmacies pulled together to get the amount needed until surgery day!

After my surgery I lost another 7lbs.
1 year after surgery I have gained back 5lbs.
Note- for my height I am at my "good" weight and BMI (I think I do not gain because I do not eat after 6pm. I make sure and make my breakfast or lunch my "main" meal and rotate these on how I feel.

After the surgery.
Tired all the time. This lasted a long time and my Dr. was concerned.
I had to get motivated. (only took a couple pain pills, really did no need)
I have an infrared dry sauna. When I was allowed, I used it, and it would give me the energy I needed to move. I also used after exercise if need for soreness. It was a miracle worker for me.

I felt full and no hungry pains. I had to make myself get the proper food because I felt "full" all the time.
The fear of eating was the hardest to get used to. I also had the FEAR of the resection not taking and come apart. I know crazy but, my mind has been my hardest challenge.
Start small and start adding 1 thing at a time. Especially Fiber.
I have always drunk water but need more fluids needed after surgery.
I would make my cocktail every day.
It consisted of white grape juice (no sugar) coconut juice, Gatorade, vitamin water, and mineral water.
I would also drink chamomile and peppermint tea. Best for fullness and nausea.

After the 4th mth. I started having normal beautiful BM's LOL
Another must is a potty squatty. the best for going. Never sit there, never strain.
Now foods I was avoiding (fiber) I eat every day.
For me fresh spinach, figs, avocados, kiwi, banana, artichoke hearts. oats with sliced almonds etc.

I did pick up a habit that is bad! Because you feel so full in the late afternoon instead of eating, I would have tootsie pops or hard candy. Sugar was replacing my meal. NOT GOOD

PROTEIN is a must for the muscle. And that is what I lost so much of.
I have always worked out but, now use more resistance.
I think in the last year I had to take MiraLAX maybe 4times.
But, if you eat right and MOVE your body you do not need.
Last GET OUTSIDE every day and get your D!
Mine was very low and only prescribed med I take. (went from 23 to 87)
I also have always had hard natural nails, and they became so weak and brittle.
I ask my Dr. and was told because they had to open me up that is normal.
I have also been taking Biotin for that, and it is helping.

I wish I had the surgery sooner before the damage that made it go from robotic to being cut open.

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@deedeee

Basically I was just told no seeds or nuts or steak or bbq.

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Deedeee,

Cleveland Clinic give a good overview: https://my.clevelandclinic.org/health/diseases/10352-diverticulitis

Mayo Clinic has instructions on how to recover from a diverticulitis flare-up and what to eat afterwards:
https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/diverticulitis-diet/art-20048499
It is important to have confidence in your MD...or even to get a second opinion IF you think doing makes sense. If so, find the right kind of MD on the Castle and Connolly website. They list the best MDs based on research. The Healthgrades websiite reports what conditions an MD treats most often.

I know that kind of gut pain is difficult. I was told I had diverticuli in my 30s. While my current MD said I no longer have them, to this day I cannot eat fruit skin, strawberry seeds, etc. If I so, it feels like something sharp is moving through my gut.

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