Jackie, Alumna Mentor | @travelgirl | Feb 24, 2017
@sallyg. It sure is. Wow. You are really lucky. God bless..
That is really close to where mine was. My was at the appendix opening. what symtons did you have? I didnt have any but H-Pylori.. which i caught somewhere in a 3rd world country. I travel alot.
Curious if you had any syrange symptons . My right side ached too. But they tbink that was the h-pylori causing that. Also i has an Ulcer at the site of the cancer too.
@starrlight also just recently joined. She is weighing her surgical options for cecum surgery. Perhaps you have thoughts to share with her in the discussion called:
- Help to reconstruct my life and body due to 2 types of cancer http://mayocl.in/2kG6imV
No my appendix was intact at the time of the surgery for colon cancer located in the cecum next to the appendix. However my surgeon was very aggressive and told me post op that he took everything he saw including my appendix
However I think that my surgeon's actions may be the reason why I am still here today
Sally
Hi
I am a new member to connect and look forward to sharing with others as well as learning from other members diagnosed with colon cancer. At the age of 63 my life changed forever. Two days before Christmas of 2014. I had rapid onset stomach pains and after a number of scans and scopes a colonoscopy found the cancer in the cecum on jan 8 2015.my doctors thought it was perhaps stage 2 at the most
Surgery followed and a tumor over 3 cm, a foot and a half of my colon along with 45 lymph nodes were removed of which 16 had metastized to my liver lungs and peritoneum. The pathology showed stage IV. It was like a bad dream as I had 4 prior colonoscopies due to a family history only to found out the cancer had most likely been missed. Thank God I was in good health otherwise. After healing from the surgery I started chemotherapy of 5-fu and avastin and completed my treatment plan in June of 2015. Then a pet scan was ordered and was told the cancer was gone and I was NED. It was the best news I could have hoped for. So since July of 2015 to present I take xeloda and avastin , see my oncologist every 3 weeks and have Ct scans every 3 month. Every scan including the pet scan done in december of 2016 have been NED.
It is like a miracle and I thank God every day for helping me.
I just made the 2 year point and all things considered my life is good. I have hand and foot syndrome from the xeloda but it has become manageable. I eat primarily a plant based diet, exercise, take supplements, do acupuncture and yoga and try my best to stay positive . I have also worked hard as after the surgery my weight dropped to a very scary 106 lbs and today weigh in at 118-119 lbs which gives me reserves and strength to fight the cancer. It also helps tremendously that I have a wonderful support system of family and friends and always have something to look forward to to keep me going. It has not been an easy time for sure but the bottom line is that I am still here and enjoying every day. And I believe that they are so so close to finding a cure for this dreaded disease and we need to stay strong and positive and help each other and never give up the fight
What a great and wonderful outcome for you, i am not sure what cecum canc. is i have heard it used a few times, i have a tumor in my rectum is that the same thing, and have brst canc. and other which feel it would be to negative to say on this positive site. Will say one thing however i am receiving Avastin in a retina eye injection, just started last week and looked that drug up and it is for rectal and or colon canc tumors, it is suppose to shrink them and seems to really have helped you which is encouraging, not sure why they are putting that in my eye. I still have not contacted Mayo as have been so busy with other medical issues however hopefully next week. I emailed by Spiritual teacher asking why my body has so many maladies in it as i to was healthy never got sick, went to the gym tried to eat right, '{he said that some of the latest thinking is that cancer comes from bacteria in the cells and works it way around being disclosed,
when one has cancer it changes perceptions and provides an opportunity to make advancements.')
He is a survivor of Canc brain tumor and is canc free now and is a Vegan now plus he has a Holistic healing perspective, which i followed several yrs. ago when the brst tumor was a spot, followed that plus exercising however in 08 it had tripled, so i finally went to a canc. clinic where i live and they have been treating me for the brst canc. with Anastrozole which did nothing and mon suppose to start Ibrance, the rectal tumor for found as a mass 2 yrs. ago as a result of a colonoscopy and there has been no treatment as you can read my discussion if you choose to which explains why.
Sallyg and all on this page keep on keeping on you to are survivors, have a Wonderful day as that is all we are given, my prayers are with and for all that have this or any other disease, Canc and other is not unique as all through history there has been dreaded diseases that a cure was found for, so that is enlightening in itself.
@starrlight also just recently joined. She is weighing her surgical options for cecum surgery. Perhaps you have thoughts to share with her in the discussion called:
- Help to reconstruct my life and body due to 2 types of cancer http://mayocl.in/2kG6imV
@sallyg welcome to mayo connect. Wow your inspiring . Thank you for sharing.
I had a stage 1 cecum cancer diagnosed at the age of 53, on 12/19/15.
I had 1 foot of colon and 20 lymph nodes removed on 1/10/16 . Plus i was also diagnosed with follicular lymphoma on 1/4/16. Which they found when doing the ct scan on me, before surgery for cecum cancer.
I am now on a watch and wait treatment plan. My cecum cancer was found when i caught H-pylori somewhere in my world travels.
I was told by my surgeon, of all the types of colon cancer, cecum cancer accounts for less than 15% percent..
I have my next 3 month check up Tuesday. Ct scans and blood work.
And yes when you been diagnosed with cancer your world turns upside down. Sighing. I been on the edge all week since i recieved a reminder call of my up coming appointment..
Question for you? Did you have your appendix removed in the 10 to 12 years prior to the cecum cancer diagnosis?
@starrlight also just recently joined. She is weighing her surgical options for cecum surgery. Perhaps you have thoughts to share with her in the discussion called:
- Help to reconstruct my life and body due to 2 types of cancer http://mayocl.in/2kG6imV
Hi
I am a new member to connect and look forward to sharing with others as well as learning from other members diagnosed with colon cancer. At the age of 63 my life changed forever. Two days before Christmas of 2014. I had rapid onset stomach pains and after a number of scans and scopes a colonoscopy found the cancer in the cecum on jan 8 2015.my doctors thought it was perhaps stage 2 at the most
Surgery followed and a tumor over 3 cm, a foot and a half of my colon along with 45 lymph nodes were removed of which 16 had metastized to my liver lungs and peritoneum. The pathology showed stage IV. It was like a bad dream as I had 4 prior colonoscopies due to a family history only to found out the cancer had most likely been missed. Thank God I was in good health otherwise. After healing from the surgery I started chemotherapy of 5-fu and avastin and completed my treatment plan in June of 2015. Then a pet scan was ordered and was told the cancer was gone and I was NED. It was the best news I could have hoped for. So since July of 2015 to present I take xeloda and avastin , see my oncologist every 3 weeks and have Ct scans every 3 month. Every scan including the pet scan done in december of 2016 have been NED.
It is like a miracle and I thank God every day for helping me.
I just made the 2 year point and all things considered my life is good. I have hand and foot syndrome from the xeloda but it has become manageable. I eat primarily a plant based diet, exercise, take supplements, do acupuncture and yoga and try my best to stay positive . I have also worked hard as after the surgery my weight dropped to a very scary 106 lbs and today weigh in at 118-119 lbs which gives me reserves and strength to fight the cancer. It also helps tremendously that I have a wonderful support system of family and friends and always have something to look forward to to keep me going. It has not been an easy time for sure but the bottom line is that I am still here and enjoying every day. And I believe that they are so so close to finding a cure for this dreaded disease and we need to stay strong and positive and help each other and never give up the fight
Hello, ive just joined mayo clinic connect...my mom was diagnosed with stage 3c colon cancer last month and had a resection with ileostomy...the doctor said that adjuvant chemo will be given but before that we did another chest and abdomen scan that shows 4 hypodense lesions in the liver...so the chemo regimen started includes avastin, oxaliplatin and 5FU...i just want to know if we should do a pet scan as well or any other tests that should be done?
Welcome to Connect, @nannytart.
There are a number of reasons that someone will experience abdominal swelling after surgery. Here are some explanations http://www.healthguideinfo.com/digestive-disorders/p118708/. But it has been 9 months since your surgery. Has you belly looked like this since surgery? Have you talked to your doctor about it?
I never had such a big belly until i had my surgery. I have talked to my Dr. about it and he does`nt seem concernerd.There is no discomfort but I would like to know what caused it to get this big.Silly question but were my intestines put back in a bunch? Should they have been arranged in a certain way There has to be a reason. nannytart
Welcome to Connect, @nannytart.
There are a number of reasons that someone will experience abdominal swelling after surgery. Here are some explanations http://www.healthguideinfo.com/digestive-disorders/p118708/. But it has been 9 months since your surgery. Has you belly looked like this since surgery? Have you talked to your doctor about it?
We sound exactly the same with the way they found our cancers.. Both stage 1.. No other treatments needed, Both got sick eating in a restaurant. I thought I was poisoned too. I ate Chinese food and swore they fed me Boric Acid. I had a horrible burning sensation down my throat and stabbing chest pains. I was fine otherwise .. No Signs or Symptoms always healthy. My blood work is Perfect, X-rays and Ultra sounds Perfect. I listened to the ER DR. also, and called right away to get an Endoscopy and the GI DR. recommended I get a Colonoscopy as well..( He gave me the 2 for 1 special.) They found H- Pylori in my tummy, and an Ulcer in the Cecum of my Colon. The ulcer had a flat polyp under it. That twice tested as pre-cancerous. I had a second colonoscopy to try and remove it without surgery. They removed just a little and that showed pre-cancerous on the biopsy. I didn't trust the local DRs near me. The local surgeon asked me what kind of surgery I wanted to have? Seriously he said I can just remove your Cecum or I can take 6 inches and a couple of lymph nodes. Just in case, he goes, it comes back cancerous. That way I wont have to do another surgery on you. I was like are you kidding me? Your asking me what is the best surgery I should have?
I called the Mayo Clinic in Jacksonville...
They did a third colonoscopy and a CT scan. they knew right away it was a stage 1 cancer. When they did the CT scan I had swollen lymph nodes near my Aorta. It turns out I am Rare But NOT totally unusual I have 2 primary cancers diagnosed at once. Follicular Lymphoma and Cecum cancer. The cecum cancer is gone totally removed.. The follicular lymphoma is on a watch and wait approach. They said, out of every 3 people who are diagnosed with it, only 1 out of 3 ever need treatments. I have no symptoms other than the swollen glands near the aorta. Which 8 months later have shrunk on their own. The largest swollen gland was 21mm by 21mm in December and is now 12mm by 10mm. It is shrinking on its own. So I am just watched.
Every 3 months they do blood work, every 6 months a CT scan, and once a year a colonoscopy. I am a Polyp Farmer they said. At my 6 month Colonoscopy check-up they found 4 more tiny polyps. Noncancerous thank god. or I would be getting Colonoscopies every 6 months.
And YES I now have a perfect Hour Glass Shape.. We can start a new fashion trend .. LOL.. I think it is better than being really sickly . I can handle hour Glass versus deathly sick.. I am way too young to have both of these cancers they said. Sighing .. Oh Well I can't worry about being sick. Cause I feel fine and I know I am in good hands.
Hi/ thank god i was only in stage 1 they removed i foot of my colon and i didnt need chemo or radiation. I never suspected i had cancer i felt so good up nuntil that day that i got deathly sick. I had just left a restaurant and thought i had food poisining i had never had a colonoscopy before but when i went into the hospital that day they recommended it and i am so happy i agreed to it I was absolutely shocked when the Dr. came and told me I had cancer I feel good and life goes on my only complaint is I ended up with a big round belly that I hate. My operation was in November 2015 so it should have flattened out by now my doctor doesnt seem to think its a big deal.
@sallyg. It sure is. Wow. You are really lucky. God bless..
That is really close to where mine was. My was at the appendix opening. what symtons did you have? I didnt have any but H-Pylori.. which i caught somewhere in a 3rd world country. I travel alot.
Curious if you had any syrange symptons . My right side ached too. But they tbink that was the h-pylori causing that. Also i has an Ulcer at the site of the cancer too.
No my appendix was intact at the time of the surgery for colon cancer located in the cecum next to the appendix. However my surgeon was very aggressive and told me post op that he took everything he saw including my appendix
However I think that my surgeon's actions may be the reason why I am still here today
Sally
What a great and wonderful outcome for you, i am not sure what cecum canc. is i have heard it used a few times, i have a tumor in my rectum is that the same thing, and have brst canc. and other which feel it would be to negative to say on this positive site. Will say one thing however i am receiving Avastin in a retina eye injection, just started last week and looked that drug up and it is for rectal and or colon canc tumors, it is suppose to shrink them and seems to really have helped you which is encouraging, not sure why they are putting that in my eye. I still have not contacted Mayo as have been so busy with other medical issues however hopefully next week. I emailed by Spiritual teacher asking why my body has so many maladies in it as i to was healthy never got sick, went to the gym tried to eat right, '{he said that some of the latest thinking is that cancer comes from bacteria in the cells and works it way around being disclosed,
when one has cancer it changes perceptions and provides an opportunity to make advancements.')
He is a survivor of Canc brain tumor and is canc free now and is a Vegan now plus he has a Holistic healing perspective, which i followed several yrs. ago when the brst tumor was a spot, followed that plus exercising however in 08 it had tripled, so i finally went to a canc. clinic where i live and they have been treating me for the brst canc. with Anastrozole which did nothing and mon suppose to start Ibrance, the rectal tumor for found as a mass 2 yrs. ago as a result of a colonoscopy and there has been no treatment as you can read my discussion if you choose to which explains why.
Sallyg and all on this page keep on keeping on you to are survivors, have a Wonderful day as that is all we are given, my prayers are with and for all that have this or any other disease, Canc and other is not unique as all through history there has been dreaded diseases that a cure was found for, so that is enlightening in itself.
Starrlight
@sallyg welcome to mayo connect. Wow your inspiring . Thank you for sharing.
I had a stage 1 cecum cancer diagnosed at the age of 53, on 12/19/15.
I had 1 foot of colon and 20 lymph nodes removed on 1/10/16 . Plus i was also diagnosed with follicular lymphoma on 1/4/16. Which they found when doing the ct scan on me, before surgery for cecum cancer.
I am now on a watch and wait treatment plan. My cecum cancer was found when i caught H-pylori somewhere in my world travels.
I was told by my surgeon, of all the types of colon cancer, cecum cancer accounts for less than 15% percent..
I have my next 3 month check up Tuesday. Ct scans and blood work.
And yes when you been diagnosed with cancer your world turns upside down. Sighing. I been on the edge all week since i recieved a reminder call of my up coming appointment..
Question for you? Did you have your appendix removed in the 10 to 12 years prior to the cecum cancer diagnosis?
Welcome Sally!
I'm sure you've read the messages in this discussion from @travelgirl @bush and @nannytart, and they will welcome you. I'd also like to bring a few more people into this discussion to meet you. Please meet @starrlight @joannem @jww1 @azlinda @retairforceman @ilene1 @user_cha5e73f6 @brucey1 and @soul.
@starrlight also just recently joined. She is weighing her surgical options for cecum surgery. Perhaps you have thoughts to share with her in the discussion called:
- Help to reconstruct my life and body due to 2 types of cancer http://mayocl.in/2kG6imV
Here are a couple of other discussions you may wish to take part in:
- Digestive problems two years after successful colon cancer surgery....http://mayocl.in/2ibWJyr
- Reoccurrence of colon cancer http://mayocl.in/2lr4fXW
- Xeloda http://mayocl.in/2lSV5o9
Glad to have you with us Sally.
Hi
I am a new member to connect and look forward to sharing with others as well as learning from other members diagnosed with colon cancer. At the age of 63 my life changed forever. Two days before Christmas of 2014. I had rapid onset stomach pains and after a number of scans and scopes a colonoscopy found the cancer in the cecum on jan 8 2015.my doctors thought it was perhaps stage 2 at the most
Surgery followed and a tumor over 3 cm, a foot and a half of my colon along with 45 lymph nodes were removed of which 16 had metastized to my liver lungs and peritoneum. The pathology showed stage IV. It was like a bad dream as I had 4 prior colonoscopies due to a family history only to found out the cancer had most likely been missed. Thank God I was in good health otherwise. After healing from the surgery I started chemotherapy of 5-fu and avastin and completed my treatment plan in June of 2015. Then a pet scan was ordered and was told the cancer was gone and I was NED. It was the best news I could have hoped for. So since July of 2015 to present I take xeloda and avastin , see my oncologist every 3 weeks and have Ct scans every 3 month. Every scan including the pet scan done in december of 2016 have been NED.
It is like a miracle and I thank God every day for helping me.
I just made the 2 year point and all things considered my life is good. I have hand and foot syndrome from the xeloda but it has become manageable. I eat primarily a plant based diet, exercise, take supplements, do acupuncture and yoga and try my best to stay positive . I have also worked hard as after the surgery my weight dropped to a very scary 106 lbs and today weigh in at 118-119 lbs which gives me reserves and strength to fight the cancer. It also helps tremendously that I have a wonderful support system of family and friends and always have something to look forward to to keep me going. It has not been an easy time for sure but the bottom line is that I am still here and enjoying every day. And I believe that they are so so close to finding a cure for this dreaded disease and we need to stay strong and positive and help each other and never give up the fight
Aloha
Hello, ive just joined mayo clinic connect...my mom was diagnosed with stage 3c colon cancer last month and had a resection with ileostomy...the doctor said that adjuvant chemo will be given but before that we did another chest and abdomen scan that shows 4 hypodense lesions in the liver...so the chemo regimen started includes avastin, oxaliplatin and 5FU...i just want to know if we should do a pet scan as well or any other tests that should be done?
I never had such a big belly until i had my surgery. I have talked to my Dr. about it and he does`nt seem concernerd.There is no discomfort but I would like to know what caused it to get this big.Silly question but were my intestines put back in a bunch? Should they have been arranged in a certain way There has to be a reason. nannytart
Wow ..
We sound exactly the same with the way they found our cancers.. Both stage 1.. No other treatments needed, Both got sick eating in a restaurant. I thought I was poisoned too. I ate Chinese food and swore they fed me Boric Acid. I had a horrible burning sensation down my throat and stabbing chest pains. I was fine otherwise .. No Signs or Symptoms always healthy. My blood work is Perfect, X-rays and Ultra sounds Perfect. I listened to the ER DR. also, and called right away to get an Endoscopy and the GI DR. recommended I get a Colonoscopy as well..( He gave me the 2 for 1 special.) They found H- Pylori in my tummy, and an Ulcer in the Cecum of my Colon. The ulcer had a flat polyp under it. That twice tested as pre-cancerous. I had a second colonoscopy to try and remove it without surgery. They removed just a little and that showed pre-cancerous on the biopsy. I didn't trust the local DRs near me. The local surgeon asked me what kind of surgery I wanted to have? Seriously he said I can just remove your Cecum or I can take 6 inches and a couple of lymph nodes. Just in case, he goes, it comes back cancerous. That way I wont have to do another surgery on you. I was like are you kidding me? Your asking me what is the best surgery I should have?
I called the Mayo Clinic in Jacksonville...
They did a third colonoscopy and a CT scan. they knew right away it was a stage 1 cancer. When they did the CT scan I had swollen lymph nodes near my Aorta. It turns out I am Rare But NOT totally unusual I have 2 primary cancers diagnosed at once. Follicular Lymphoma and Cecum cancer. The cecum cancer is gone totally removed.. The follicular lymphoma is on a watch and wait approach. They said, out of every 3 people who are diagnosed with it, only 1 out of 3 ever need treatments. I have no symptoms other than the swollen glands near the aorta. Which 8 months later have shrunk on their own. The largest swollen gland was 21mm by 21mm in December and is now 12mm by 10mm. It is shrinking on its own. So I am just watched.
Every 3 months they do blood work, every 6 months a CT scan, and once a year a colonoscopy. I am a Polyp Farmer they said. At my 6 month Colonoscopy check-up they found 4 more tiny polyps. Noncancerous thank god. or I would be getting Colonoscopies every 6 months.
And YES I now have a perfect Hour Glass Shape.. We can start a new fashion trend .. LOL.. I think it is better than being really sickly . I can handle hour Glass versus deathly sick.. I am way too young to have both of these cancers they said. Sighing .. Oh Well I can't worry about being sick. Cause I feel fine and I know I am in good hands.
Hi/ thank god i was only in stage 1 they removed i foot of my colon and i didnt need chemo or radiation. I never suspected i had cancer i felt so good up nuntil that day that i got deathly sick. I had just left a restaurant and thought i had food poisining i had never had a colonoscopy before but when i went into the hospital that day they recommended it and i am so happy i agreed to it I was absolutely shocked when the Dr. came and told me I had cancer I feel good and life goes on my only complaint is I ended up with a big round belly that I hate. My operation was in November 2015 so it should have flattened out by now my doctor doesnt seem to think its a big deal.