1. < Colorectal Cancer

Had colon cancer and now CEA is rising: Scared

Posted by segerfan @segerfan, Apr 26, 2022

Colon cancer 10 year and now raised CEA
Just had a colonoscopy and it was fine. Went for my yearly check up and CEA is evaluated to 7. no weight loss, no loss of appetite. I am under a great deal of stress, family, marriage lose of a grandchild. Went back to vaping. Doctor is going to do a ct scan. I am scared to death.

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lida55 | @lida55 | Jun 12 4:57am
In reply to @colleenyoung "@lida55, is your husband being cared for at Mayo Clinic?" + (show)
@colleenyoung

@lida55, is your husband being cared for at Mayo Clinic?

Jump to this post

No unfortunately. We live in Iran.

REPLY
lida55 | @lida55 | Jun 12 4:53am
In reply to @roywalton "If you don't have access to CTDNA or Signatera (ask your oncologist), then just trust the..." + (show)
@roywalton

If you don't have access to CTDNA or Signatera (ask your oncologist), then just trust the standard of care in your area, and in your case the CT or PET. Again, The concept of assay variability is the issue here.... because a CEA value of 1 2 3 or 5 is really the same number, it's only one that number climbs to 10 or 20 is it meaningful at all. I believe a good oncologist would not act on a CEA value alone.

Jump to this post

Hello.my husband cea reached to 6.2. 😭

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lida55 | @lida55 | Jun 12 4:51am
In reply to @colleenyoung "@lida55, any update?" + (show)
@colleenyoung

@lida55, any update?

Jump to this post

I am very scared. Exactly one month ago we had a very bad situation in our life and my husband lost his job and now this cea6.2. We have to go to oncologist next week and surely she is going to do petscan. I dont know what to do. A rise from 4.9 to 6.2 can be because of stress or no sign of cancer recurrence???😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭

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lida55 | @lida55 | Jun 12 4:47am
In reply to @colleenyoung "@lida55, any update?" + (show)
@colleenyoung

@lida55, any update?

Jump to this post

Hello. Thanks for yoyr supportive answers.
We did exam yesterday and unfortunately my husbands cea went up and it is 6.2 now. 3 months ago it was 4.6. Now it is more than 5. 😭😭😭😭😭😭

REPLY
lida55 | @lida55 | Mar 5 8:29pm
In reply to @colleenyoung "@lida55, is your husband being cared for at Mayo Clinic?" + (show)
@colleenyoung

@lida55, is your husband being cared for at Mayo Clinic?

Jump to this post

No unfortunately. We are in iran Asia

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 5 4:53pm
In reply to @lida55 "Hello dear Mayo. My husband's pet was clear but the cea was 4. . They found..." + (show)
@lida55

Hello dear Mayo.
My husband's pet was clear but the cea was 4. . They found two polyps and temoved it. Cea goes to 4.3. Then the doctor said he has inflammation in colon and gave some medicine,cea falls to 4.1.
Now his cea is 4.6 and again i am wooried to death. What should i do.
I also remember you said dont worry. These numbers are low.but when it stops this cea????😰😰😰😰😰

But his cea again jumps to 4.6. Now i am worried.

Jump to this post

@lida55, is your husband being cared for at Mayo Clinic?

REPLY
2 replies
sundancerdb78 | @sundancerdb78 | Mar 4 11:07am
In reply to @myjiggers1 "You fill me with more hope! Thank you! I decided over the weekend I was going..." + (show)
@myjiggers1

You fill me with more hope! Thank you! I decided over the weekend I was going to live at least 10 more years and not this piddly amount they fear. Can I ask what you did beyond the chemo? I am not a good fisher! Lol I do work in a bank and love customer service helping people. God bless you! ❤️

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Jiggers You're heading in the right direction. When they asked me to continue with the chemo, my daughter said "YOU ALMOST KILLED HIM, WHY SHOULD HE CONTINUE"?
My feelings are you have to immerse yourself in something that would change your mindset!
That's what I tried to do! I have fished all my Life, but more 'IMPORTANT THINGS got in my way!
Fly fishing like many things takes a High Level of concentration and commitment! But I didn't shirk my duties to make a living1
I was lucky in that regard! I messed them together!
I have been married to the First Women to serve as a National Bank President in the state of New Mexico!
So I understand what your life is like!
But Jiggers there must be something you did as a child or a grownup that you have not done in a while?
Knitting, Gardening, playing a sport, reading, learning a new skill!
Where I live in New Mexico we have a GREAT COMUNITY COLLEGE, that has Special Programs for Seniors or adults called Encore! I have studied religion for most of my life!
It entails one two hour class once a week.
It's a great place to connect with others! Plus it has totally changed my way I look at religion and Life!
Last year I found out I have Dyslexia all of my Life! After being called STUPID i JUST Accepted it! But it put a drive in me to be better!
After 3 college degrees I still had a question as to why I was who I was.
Finally went to the local school district and got tested! They finally answered my question! I had Dyslexia! It has totally changed my life!
My point to all of this is that your health remains in YOU!
Just Dig in and start enjoying the years you have remaining!
Please, don't ever hesitate to contacting me with any questions1
LAST, I WOULD JUST LIKE TO STAY WITH MAYO CONNECT! IT HAS SAVED ME1
YOU ARE GOING THROUGH MANY THINGS WITH YOUR CANCER THAT OTHERS ARE JUST BEGINING!
GIVE THEM HOPE AND BLESSING1
THANKS,
SUNDAANCE aka RB

REPLY
lida55 | @lida55 | Mar 3 10:40pm
In reply to @sundancerdb78 "SO SORRY! BLESS YOU! I went through STAGE IV COLON CANCER 25 years ago and then..." + (show)
@sundancerdb78

SO SORRY! BLESS YOU!
I went through STAGE IV COLON CANCER 25 years ago and then almost died from the chemo! When I came back to life I said " I WOULD NEVER GIVE UP"! That's when I decided to cure myself! Luckily my job entailed working and traveling in a bus doing business from Mexico to Canada!
In 365 days I fly fished I was on a river for approx. 200 days.
My Sales were off the chart!
My point is it is up to you to heal your body!
All the WONDERFUL MONITORS at Connect know my story!
I'm 78 now and still doing well.
Although Lyme Disease has entered my Life, which makes life tougher!
Caner has never returned!
Sundance aka RB

Jump to this post

Thanks a lot
God bless you and live long🥹

REPLY
lida55 | @lida55 | Mar 3 10:36pm
In reply to @sundancerdb78 "SO SORRY! BLESS YOU! I went through STAGE IV COLON CANCER 25 years ago and then..." + (show)
@sundancerdb78

SO SORRY! BLESS YOU!
I went through STAGE IV COLON CANCER 25 years ago and then almost died from the chemo! When I came back to life I said " I WOULD NEVER GIVE UP"! That's when I decided to cure myself! Luckily my job entailed working and traveling in a bus doing business from Mexico to Canada!
In 365 days I fly fished I was on a river for approx. 200 days.
My Sales were off the chart!
My point is it is up to you to heal your body!
All the WONDERFUL MONITORS at Connect know my story!
I'm 78 now and still doing well.
Although Lyme Disease has entered my Life, which makes life tougher!
Caner has never returned!
Sundance aka RB

Jump to this post

Thank you
God bless you🥹

REPLY
myjiggers1 | @myjiggers1 | Mar 3 4:39pm
In reply to @sundancerdb78 "SO SORRY! BLESS YOU! I went through STAGE IV COLON CANCER 25 years ago and then..." + (show)
@sundancerdb78

SO SORRY! BLESS YOU!
I went through STAGE IV COLON CANCER 25 years ago and then almost died from the chemo! When I came back to life I said " I WOULD NEVER GIVE UP"! That's when I decided to cure myself! Luckily my job entailed working and traveling in a bus doing business from Mexico to Canada!
In 365 days I fly fished I was on a river for approx. 200 days.
My Sales were off the chart!
My point is it is up to you to heal your body!
All the WONDERFUL MONITORS at Connect know my story!
I'm 78 now and still doing well.
Although Lyme Disease has entered my Life, which makes life tougher!
Caner has never returned!
Sundance aka RB

Jump to this post

You fill me with more hope! Thank you! I decided over the weekend I was going to live at least 10 more years and not this piddly amount they fear. Can I ask what you did beyond the chemo? I am not a good fisher! Lol I do work in a bank and love customer service helping people. God bless you! ❤️

REPLY
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