Collegenous Gastritis what works and what doesn't

Posted by susie57 @susie57, May 21 4:08pm

I would like to share information about collegenous gastritis with someone who has the condition like me. I have had to learn a lot of what works and what doesn't on my own.

Interested in more discussions like this? Go to the Digestive Health Support Group.

Lisa Lucier, Moderator | @lisalucier | May 21 11:56pm

Hi, @susie57 - This is a somewhat rare condition, and it certainly warrants finding others who share this diagnosis and can provide suggestions of what has and has not worked.

I'm tagging @wendy2001, who has also talked on Mayo Clinic Connect about collagenous gastritis.

I also thought you might like to see this video by Dr. Joe Murray in Mayo Clinic Gastroenterology & Hepatology https://www.youtube.com/watch.

Here is a study on collagenous gastritis therapy by the same physician, Dr. Murray, and others:

- Collagenous Gastritis: Characteristics and Response to Topical Budesonide. https://pubmed.ncbi.nlm.nih.gov/34864160/

szelisk | @szelisk | May 22 7:01am

I've been on budesonide several times. They put me back on for the last 6 months, having another endoscopy and coloscopy in a couple of weeks. If the collagenous colitis shows back up, then I'm going to biologics.