Collagenous Gastritis

Posted by e @epvb, Mar 27, 2017

I was recently diagnosed with collagenous gastritis which is very rare. I'm looking for anyone else who has similar diagnosis.

Interested in more discussions like this? Go to the Digestive Health Support Group.

Hi. I never received a pm. Just don'twant to miss any information. Thanks.

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@kellye5

Hi. I never received a pm. Just don'twant to miss any information. Thanks.

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kellye5 I’m not sure what you referring to bout “never received pm”. If it was referring to my previous post bout Budesonide and thanking epvb for information it was to the post published January 17th.

I too do not want to miss any information as there is little out there with virtually no interest from scientific/medical world.

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@kellye5

Hi. I never received a pm. Just don'twant to miss any information. Thanks.

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One of the members had asked to pm me. I received it. We will be travelling there soon. Thanks.

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Does anyone have a favorite hotel connected to Mayo MN that is reasonable for a week?

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@kellye5

Does anyone have a favorite hotel connected to Mayo MN that is reasonable for a week?

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Hi Kelly, You'll find some great recommendations about hotels in Rochester, MN in this discussion in the Visiting Mayo Clinic group:
- What are your accommodation recommendations when coming to Mayo? https://connect.mayoclinic.org/discussion/what-are-your-accommodation-recommendations-when-coming-to-mayo/

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Hey y'all. We are about 20 days out from our week or so stay at Mayo MN. I am so frustrated as I have called every week since getting accepted and an appointment to see if our records have gotten there and nothing until today...one set if records from our GI. I am now told the slides must be asked for from the pathologist...we had NO idea. Medical records is what we were told and they told us they would handle it. Where is the Mayo 101? I feel like an idiot and no the reason our docs here are not getting the records to Mayo is because they are losing a patient...they are delighted because NO ONE on the East Coast has heard of CG!! I felt like I was just a bother....and perhaps I was. Maybe I am supposed to know all of this....anything else I need to know? I have received nothing. No app. time or place. Is there a shuttle at Rochester International airport? I am just a mom from SC trying to get my kid help in MN...with No guidance. I have read maps and other's stories but I am anxious.

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@kellye5

Hey y'all. We are about 20 days out from our week or so stay at Mayo MN. I am so frustrated as I have called every week since getting accepted and an appointment to see if our records have gotten there and nothing until today...one set if records from our GI. I am now told the slides must be asked for from the pathologist...we had NO idea. Medical records is what we were told and they told us they would handle it. Where is the Mayo 101? I feel like an idiot and no the reason our docs here are not getting the records to Mayo is because they are losing a patient...they are delighted because NO ONE on the East Coast has heard of CG!! I felt like I was just a bother....and perhaps I was. Maybe I am supposed to know all of this....anything else I need to know? I have received nothing. No app. time or place. Is there a shuttle at Rochester International airport? I am just a mom from SC trying to get my kid help in MN...with No guidance. I have read maps and other's stories but I am anxious.

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Hi @kellye5 - Sorry you are having problems with the medical records. Here are some links that I think will help you get around. The Rochester Airport does have a shuttle service. Mayo Clinic Concierge Services may also be a good start for any last minute questions. There is a phone number and email address on their page.

Rochester Mayo Clinic Concierge Services
https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services

MAYO CLINIC TOURS - YOUTUBE VIDEOS
Mayo Building - Mayo Clinic Patient Video Guide - Minnesota - YouTube
https://www.youtube.com/watch?v=Hl8T3ubzqsk

Rochester, MN Airport Shuttle:
https://goairportshuttle.com/rochester_rst_airport_shuttle

Traveling by air to Mayo Clinic's campus in Minnesota:
https://www.mayoclinic.org/patient-visitor-guide/minnesota/travel-lodging-maps/by-air

Hope this helps. Also, make sure you bring a warm coat.

John

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@johnbishop Thank you. I know I am beginning to panic. We have purchased real winter weather clothing as SC has no real cold compared to MN...the cold actually scares me!
I will research all of these sites tomorrow. I truly appreciate your time.

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@kellye5 not too worry about the cold. We’re getting a heat wave next week - mid 20s. Once at the clinic you can get around through subways or skyway links between buildings.

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