Collagenous Gastritis

Posted by e @epvb, Mar 27, 2017

I was recently diagnosed with collagenous gastritis which is very rare. I'm looking for anyone else who has similar diagnosis.

Interested in more discussions like this? Go to the Digestive Health Support Group.

Clean foods are foods we eat with no artificial coloring, no artificial flavoring, no hormones, etc. Buy clean pure foods. Read the ingredients on everything you buy and if you don't know the ingredients,avoid them like the black plague. Food manufacturers are protected by a LARGE LOBBY! They can poison us and get away with it.

Our Diet is destroying our GUT, which is our 2nd brain! It's worse now than when I was a kid. Find out what you can eat and not eat by contacting Dr. Fine, Enterolab. It's reliable! Have you noticed that young people are dying of cancers that only the elderly contracted. We are now eating poison. This is an autoimmune response too! I found out that I had Celiac Disease and Microscopic Colitis. All those years, since a baby of Celiac Disease destroyed my villi.MC was discovered in the 1980s and it killed my father. Many gastroenterologists are no help. They don't know what to do with MC. It helps to know your medical history, it's PARAMOUNT! I now know what destroyed my GI system and test results confirmed it. Contact Dr. Fine and tell him I told you to contact him. He has MC and knows the hell we are going through.

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Profile picture for oakbourne @oakbourne

Clean foods are foods we eat with no artificial coloring, no artificial flavoring, no hormones, etc. Buy clean pure foods. Read the ingredients on everything you buy and if you don't know the ingredients,avoid them like the black plague. Food manufacturers are protected by a LARGE LOBBY! They can poison us and get away with it.

Our Diet is destroying our GUT, which is our 2nd brain! It's worse now than when I was a kid. Find out what you can eat and not eat by contacting Dr. Fine, Enterolab. It's reliable! Have you noticed that young people are dying of cancers that only the elderly contracted. We are now eating poison. This is an autoimmune response too! I found out that I had Celiac Disease and Microscopic Colitis. All those years, since a baby of Celiac Disease destroyed my villi.MC was discovered in the 1980s and it killed my father. Many gastroenterologists are no help. They don't know what to do with MC. It helps to know your medical history, it's PARAMOUNT! I now know what destroyed my GI system and test results confirmed it. Contact Dr. Fine and tell him I told you to contact him. He has MC and knows the hell we are going through.

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Oakburne do you also take Dr Fines products or just concentrate on eating clean?

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Profile picture for reformkat @reformkat

I was diagnosed around 20 years ago. I was only the 7th case my specialist had ever diagnosed. so it was a little rare at that time. I had had symptoms for 10 years or so and had not gone to a specialist. So, now, I have had the symptoms for about 40 years. My doctor said in 2015 that it would burn itself out. It didn't. There was a time when I was so much in pain that I was wishing they would just remove my intestines. lol Sometimes it is still that bad. Do we really need to have to take meds forever for this ?

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Hi guys! My name is Julia, i’m 21 years old, and I was diagnosed with collagenous gastritis when i was 15. I was seen by Dr. Stephens at Mayo Clinic in 2016 and was on some medications. Since then, I have kind of been side lined from any medical help. I have been able to manage the pains from it since then, but recently my heartburn has been awful. Everyday after I eat anything I feel like my chest could explode. I was wondering if anyone who also has something similar (i know there’s only a small number of us with CG) has found anything that helps?

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Profile picture for reformkat @reformkat

I was diagnosed around 20 years ago. I was only the 7th case my specialist had ever diagnosed. so it was a little rare at that time. I had had symptoms for 10 years or so and had not gone to a specialist. So, now, I have had the symptoms for about 40 years. My doctor said in 2015 that it would burn itself out. It didn't. There was a time when I was so much in pain that I was wishing they would just remove my intestines. lol Sometimes it is still that bad. Do we really need to have to take meds forever for this ?

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@juliamichelle65,

Welcome to Mayo Clinic Connect. Heartburn seems like a simple symptom to some, but I know first hand that it can be debilitating when it gets out of control.

You will see that I moved your inquiry to a discussion about collagenous gastritis. I did this so you could connect with members like
@bvanderb, @adri55 and @guthealth who have discussed that diagnosis.

Julia, do you find that there are certain foods that make your heartburn flare more?

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Profile picture for juliamichelle65 @juliamichelle65

Hi guys! My name is Julia, i’m 21 years old, and I was diagnosed with collagenous gastritis when i was 15. I was seen by Dr. Stephens at Mayo Clinic in 2016 and was on some medications. Since then, I have kind of been side lined from any medical help. I have been able to manage the pains from it since then, but recently my heartburn has been awful. Everyday after I eat anything I feel like my chest could explode. I was wondering if anyone who also has something similar (i know there’s only a small number of us with CG) has found anything that helps?

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I am suffering 7 years with chronic digestive disorders , that take me out every day and night . I have Chronic Gastritis, Esophagitis, Class B GERD , small Hiatal hernia , diverticulosis. The worse thing is , I deep wet beach what tastes like sewer water 2000-3000 x a day/ night . My gut can’t handle any kind of food . It just constantly churns and is so loud , non stop . I live on Ultra Pepto . I’ve tried everything under the sun , RX wise , holistic wise , diet and elimination wise . Had so many tests done ✅. Even did acupuncture and 3 sessions of hypnotherapy. 6 Gastro Drs , in 2 states . I’m not celiac and no h pylori . I Eat small and healthy when I can eat . No fast food , no caffeine , low sugar ( just fruit) low dairy . Tried Keto and Gluten free . I’m on waitlist for Mayo Clinic in Jacksonville 6 weeks now . I’m a medical mystery and it’s now getting to me emotionally. I can’t lead a normal life . So much I want to do and I’m always sick . No Dr. has helped yet . I pray daily for relief of symptoms. Even for a day or two of relief. I’m desperately seeking and tried everything they make for gut health on Amazon. Today I will start on antidepressant . I’m sick if I eat or don’t eat and have empty stomach. We rarely go out to lunch and never to dinner . Just cook at Home . My poor body is getting weary of this . 7 years taken away and counting .
If you find out any information, I’ll follow this thread . God Bless you .. I’ll pray for you and you pray for me ok . Rosemary

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Profile picture for reformkat @reformkat

I was diagnosed around 20 years ago. I was only the 7th case my specialist had ever diagnosed. so it was a little rare at that time. I had had symptoms for 10 years or so and had not gone to a specialist. So, now, I have had the symptoms for about 40 years. My doctor said in 2015 that it would burn itself out. It didn't. There was a time when I was so much in pain that I was wishing they would just remove my intestines. lol Sometimes it is still that bad. Do we really need to have to take meds forever for this ?

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Oops deep wet belch not beach . Sorry typo

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Profile picture for reformkat @reformkat

I was diagnosed around 20 years ago. I was only the 7th case my specialist had ever diagnosed. so it was a little rare at that time. I had had symptoms for 10 years or so and had not gone to a specialist. So, now, I have had the symptoms for about 40 years. My doctor said in 2015 that it would burn itself out. It didn't. There was a time when I was so much in pain that I was wishing they would just remove my intestines. lol Sometimes it is still that bad. Do we really need to have to take meds forever for this ?

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I to suffer from chronic gastritis which I can't get rid of even on Pantaprazole PPI. Get rid of the fruit and only eat melon, and ripe banana, only drink unsweetened almond milk which is non dairy and alkaline. I had gerd and H Pylori which is now gone. Good luck!

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Profile picture for guthealth @guthealth

Does anyone know how one may acquire CG. This is one of the diagnoses that has been brought up to me as a reason for my loose stools (twelve weeks since finishing a round of Clindimycin). CDiff has tested negative twice. My next option is a colonoscopy. This is all frightening. Was healthy until this happened.

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I too have CG, diagnosed 3 years ago. I feel your pain. I take steroids which seems to keep it somewhat under control. Have your doctors prescribed steroids at all? It took me about a month to 6 weeks before I started feeling a bit better.

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Profile picture for carolyne @carolyne

I too have CG, diagnosed 3 years ago. I feel your pain. I take steroids which seems to keep it somewhat under control. Have your doctors prescribed steroids at all? It took me about a month to 6 weeks before I started feeling a bit better.

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I took budesonide for a couple of years, but when my skin started tearing off when I brushed past a piece of furniture, and had bruises everywhere, I had to stop it. When you take the steroids like that for a long time, there can be a resurgence of symptoms when you stop, so I had to ease off of it.

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Profile picture for washalien @washalien

I took budesonide for a couple of years, but when my skin started tearing off when I brushed past a piece of furniture, and had bruises everywhere, I had to stop it. When you take the steroids like that for a long time, there can be a resurgence of symptoms when you stop, so I had to ease off of it.

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Thank you for the info on budesonide, that's what I take, nothing else can control the colitis. When I stop taking it the symptoms return in a week to 10 days and it takes months before I feel anything resembling normalcy once I get back on the budesonide. I don't know what I'm going to do if I have to permanently stop taking it. My whole life has changed do to this condition. Other than the colitis I am a healthy 79 year old, walk twice a day, many miles, workout and maintain my big house by myself. I have never had anything resembling this condition in my life.

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