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Omental caking from carcinomatosis suspected
I'll try to make this short. Over Christmas I was found unconscious from covid, pneumonia, sepsis and organ starting to shut down. I lost 4 days and don't remember anything. Now yesterday I was getting a lot of discomfort in my chest and stomach area. Went to the ER and they did a CT Scan and suspect omental carcinomatosis. It's difficult to even find any information on it and from what I've read it comes from ovarian cancer but I've had a total hysterectomy. Since I just found out about this and I have an appt on Friday with a rectal surgeon/doctor for other problems I'll hopefully find out more. Just curious if anyone has any information on this. I truly hope they are mistaken but for some reason I feel like something is going on as I've lost 30 lbs (but that could have been covid) and have constant left sided pain. A few years ago I had arranged for my body for research as I have an inoperable meningioma on the brainstem, a Bochdalek hernia surgery that failed, two uretas, plus a few more incidental findings so this comes as no surprise to me.
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I am so sorry this is happening. I am hoping your appointment will be helpful.
I encourage you to Write down your questions, anything you think of before you go in. It's always helpful to have them ready so you don't forget anything.
Prayers!
Tomorrow I go and I do have so many questions. The main one is if it is what they're saying where to go? Moffit or Orlando Cancer Center. I think it will depend on who has the most history in dealing with this. On top of this I have brain fog from Covid. I've lost 30 lbs and it hurts to sit on the toilet (LOL)...has to be something funny about this whole thing. Thanks for your prayers.
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2 ReactionsHi @carsok, Phew, you’ve been on a quite a wild medical ride since the holidays! How frightening to have lost those 4 days due to covid and now this new complication. I hope everything turns out well for you. I see you have an appointment tomorrow with a surgeon so hopefully you’ll have good news.
I’m loving that you’ve kept your sense of humor through all of this! I get it! I was the same through all of my cancer odyssey and humor really helped get me over some of the worst parts. I can totally relate to sitting on the toilet and having those butt bones hurting!! I had lost 40 pounds during my ‘trip’ and wow…besides being cold all the time, finding a comfy chair was difficult.
Best wishes on whatever lies ahead! I’ve heard good things about Moffit and of course, there’s Mayo in Jacksonville…just sayin. 😉
Hugs…Let me know what’s next for you, ok?
I will. Hopefully tomorrow some answers. I've been to Mayo for other things so there are lots of choices.
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1 Reaction@carsok, any update?
I meet with a surgeon to have a biopsy next week. Do have an appointment coming up with Moffit. It's the not knowing that's hard. Wish I had a definite answer. I'm still losing weight but the wheels move so slow and everyone has a different opinion. Did have a PET Scan and hopefully the biopsy will give a definite answer. Thanks.
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