Anyone have Cluster headaches? What helps?

Posted by mnvo96 @mnvo96, Aug 1, 2019

Any body out has cluster headaches

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Profile picture for ClusterHeadSurvivor @clusterheadsurvivor

Hi, I am a 6 year veteran of Chronic Cluster Headaches. I am waiting to have Deep Brain Stimulation Brain Sugery here in Canada.
Has anyone here had it for the same disease? I am a wealth of knowledge within my disease. Done my research, have several videos on youtube and if anyone needs to talk, I am here.
I am a survivor not a statistic. I am a person in a situation not a victim.

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Good Luck! Please keep me posted! I have only recently been diagnosed with this agonizingly painful condition just a few weeks ago. The headaches stated September 15th and have not stopped on the left side of my head. Coming and going a few times a day. I have seen a Neuologist and they have done a MRA which was normal THANK GOD for that and the MRI did show changes in white matter conclusive with migraines. I am waiting on blood work still to rule out lyme disease. I like to think of myself as not much of a complainer at all and I have (well had) a high tolerance for pain but wow, this has now brought me down to an all time low!! Any advice you can give me would be grealy appreciated. I have 3 beautiful daughters who are very actvice and for the past month and a half I have not been too much fun for sure!!! I have tried a few pain meds., next they ordered oxygen. I like your attitude!! I am so trying to stay possitive!!! Would love to hear back from you!! Thank you in advance!! 🙂 Best wishes with your procedure!!!

REPLY
Profile picture for ClusterHeadSurvivor @clusterheadsurvivor

Hi, I am a 6 year veteran of Chronic Cluster Headaches. I am waiting to have Deep Brain Stimulation Brain Sugery here in Canada.
Has anyone here had it for the same disease? I am a wealth of knowledge within my disease. Done my research, have several videos on youtube and if anyone needs to talk, I am here.
I am a survivor not a statistic. I am a person in a situation not a victim.

Jump to this post

I like your attitude. Wow, can you give us the links to the videos please? I do not have this condition but do suffer migraine headaches sometimes. I think they are hereditary because one of my grandmoms used to get them also. One of my sisters gets them frequently, mine are under control and very infrequent.

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Hi, I am a 6 year veteran of Chronic Cluster Headaches. I am waiting to have Deep Brain Stimulation Brain Sugery here in Canada.
Has anyone here had it for the same disease? I am a wealth of knowledge within my disease. Done my research, have several videos on youtube and if anyone needs to talk, I am here.
I am a survivor not a statistic. I am a person in a situation not a victim.

REPLY
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