Anyone have Cluster headaches? What helps?

Posted by mnvo96 @mnvo96, Aug 1, 2019

Any body out has cluster headaches

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Hi Lisa, what follows the most intense is another (part of the same ) headache, just never thought of it that way, the hangover. Usually the worst is over but if it drags on long enough, has its own horrible end too. 😂. All of this does… till that rollercoaster finally reaches the top and starts going down again. I’m so used to dealing on my own it’s the only way I can think of it. Of course I could be all wrong and picked it up reading all I could.
Time limit to posst my getting worse in my head😂 painting?

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Profile picture for eastbayouch @eastbaydave

hi after being out. Hangover headache still but when I was hit, out and down like this was, it just seems to be grinding me out and getting worse. I see people tho I don’t know how they go on but they do. I just don’t know… I have to find a way to cut this pain… even now and it is nothing compared to what it was. I’m concentratrating too much now… it’ll ease! Guitar 🎶

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Hi, @eastbaydave - are you referring to a literal hangover headache, or are you using this term for another type of headache?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Apologies, @eastbaydave. You will be able to add images to your posts in a few days. There is a brief period where new members can't upload images. We do this to deter spammers and keep the community safe. I look forward to seeing the images when you can post later this month.

In the meantime, you mentioned a few self-management techniques, such as an ice bag, a dark room, a pillow over your head and your arms squeezing a pillow to your chest, while in the fetal position if really bad. Are there specific aspects of the cluster headache incidents that these help you with?

Jump to this post

hi after being out. Hangover headache still but when I was hit, out and down like this was, it just seems to be grinding me out and getting worse. I see people tho I don’t know how they go on but they do. I just don’t know… I have to find a way to cut this pain… even now and it is nothing compared to what it was. I’m concentratrating too much now… it’ll ease! Guitar 🎶

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I don’t have a solution. I have tried everything. The only thing that mitigates the headache is total darkness and quiet. Sometimes an imitrex ( prescription) helps I lived with it my whole life. So I know how you feel. Been to multiple doctors, including neurologists.

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I would usually try to say what helps me but tonight I’m posting in pain well over a day straight and no sign of stopping only getting worse. Sometimes like now, i just don’t see any way out. My wife is tired of it too.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Apologies, @eastbaydave. You will be able to add images to your posts in a few days. There is a brief period where new members can't upload images. We do this to deter spammers and keep the community safe. I look forward to seeing the images when you can post later this month.

In the meantime, you mentioned a few self-management techniques, such as an ice bag, a dark room, a pillow over your head and your arms squeezing a pillow to your chest, while in the fetal position if really bad. Are there specific aspects of the cluster headache incidents that these help you with?

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😂I’m laughing at myself again but only at my own idiocy. I started looking to uploading annd wore my diminished head, hour? 2?Laughed thru SouthPark and then got hit. I can tell, usually, how fast and strong it’s coming and how bad it could be.. Occasionally I’ve found, tried it last night ….. have no idea how it’s possible and it doesn’t stop it, but it does slow it down enough to think, and actually, feeling better, ( Any kind of guitar players, and I’m 🤓barely even tho since a kid… shaking so bad, I pick it up and manage to keep a hold onto it. I’ll lay my head on top side and just try to strum. Horrible but that’s not the point.. my brain can’t function but for, I know my fingers, shaking so bad, have their own little brains and know what to do. Little by little, recognizable music to more to I can lift my head and actually start to think and play. I can put it down too finding a focus, stupid me never learns, …oh, I’ll go tell my wife, bam! Think I’d better go back, lay, sit, try again.. …It’s like finally making myself picking up a brush. Everything fights it but I know, somewhere inside, I have to do it. Joy!!!! I just disappear. I can only guess at times I’ve been handed this indescribable gift! Without knowing I’ve turned my focus. Im crying and think everyone here knows just what their own hell is, I go straight to a feeling of I feel like sh-t but I’m out.. I don’t even know it. Just joy…
how to describe my love affair with the ice bag
Get a good one! My old one ‘sweated’ leaked thru fabric! 😂 no fin. Read the ad print orc some capable, not me. Saw pic. Ice bag Order😂😂😂It must’ve been made for Barbie or GI Joe! Wife came thru again. You’re not supposed to keep it in one spot too long but…. I don’t care. I want to freeze anywhere to the point I can’t feel. I also move it around to anywhere on my body.
Ok Gone too far and not going any more till later?thank you all for this.
Still hear, still feel such a failure … never talk, tell, keep it inside.What people see is all that matters. Guess that’s how my dad dealt w WWII. We all have to find our own way but wish wish wish 😂 wishes were 🎶Pennie’s from heaven🎵

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Profile picture for eastbayouch @eastbaydave

Trying to share some painting photos and just can’t figure it out… without sharing all my personal info. If anyone can help I’d appreciate it. Worn myself out once again. Never learn 🙄 Thank you

Jump to this post

Apologies, @eastbaydave. You will be able to add images to your posts in a few days. There is a brief period where new members can't upload images. We do this to deter spammers and keep the community safe. I look forward to seeing the images when you can post later this month.

In the meantime, you mentioned a few self-management techniques, such as an ice bag, a dark room, a pillow over your head and your arms squeezing a pillow to your chest, while in the fetal position if really bad. Are there specific aspects of the cluster headache incidents that these help you with?

REPLY
Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @eastbaydave - glad you decided to post and share about how these headaches have impacted you. I'm so sorry that almost nothing brings relief and that you've had times where you don't leave your room for over a month.

You may or may not have seen similar information on cluster headaches, but here is some information from Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/cluster-headache/symptoms-causes/syc-20352080

You mentioned painting to try to find something positive from this hellish situation you've experienced with headache. I think this might resonate with others who have cluster headaches. If you feel comfortable, would you share photos of a painting or two?

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Trying to share some painting photos and just can’t figure it out… without sharing all my personal info. If anyone can help I’d appreciate it. Worn myself out once again. Never learn 🙄 Thank you

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Profile picture for eastbayouch @eastbaydave

Hi Lisa… I could do that. I’m half laughing half crying and not used to sharing… anything about myself. You’d think I’d learn by now but never do… things tend to come around the same time but not so bad at the moment… I looked and saw the copy link. I’ll give it a try…

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Trying…

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @eastbaydave - glad you decided to post and share about how these headaches have impacted you. I'm so sorry that almost nothing brings relief and that you've had times where you don't leave your room for over a month.

You may or may not have seen similar information on cluster headaches, but here is some information from Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/cluster-headache/symptoms-causes/syc-20352080

You mentioned painting to try to find something positive from this hellish situation you've experienced with headache. I think this might resonate with others who have cluster headaches. If you feel comfortable, would you share photos of a painting or two?

Jump to this post

Hi Lisa… I could do that. I’m half laughing half crying and not used to sharing… anything about myself. You’d think I’d learn by now but never do… things tend to come around the same time but not so bad at the moment… I looked and saw the copy link. I’ll give it a try…

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