CLL and immunization experience

Posted by 54321kl @54321kl, Aug 19 1:08pm

I am wondering what experience, if any, people with CLL have had after receiving HepA/Hep B, Tdap, pneumococcal immunization, and Shingrix immunization. I appreciate any input, as I was very ill after receiving my second Covid-19 Pfizer immunization. I also recognize the importance of the vaccines.

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John, Volunteer Mentor | @johnbishop | Aug 19 1:22pm

Hello @54321kl, I thought I would share a search link of Connect that lists related discussions and comments from members on CLL and immunization experience. It might be helpful to scan through the discussions and comments while you wait for members with experience to respond. Here's the link with the search results - https://connect.mayoclinic.org/search/?search=CLL+and+immunizations

marynoelle | @marynoelle | Aug 20 6:51am

Hi 54321kl, I received my pneumococcal immunization, and Shingrix immunization. No side effects whatsoever. Also didn’t have any side effects from the COVID shots.

njhornung | @normahorn | Aug 20 8:28am

In reply to @marynoelle "Hi 54321kl, I received my pneumococcal immunization, and Shingrix immunization. No side effects whatsoever. Also didn’t..." + (show)

I only had the typical injection site tenderness. To be fair, my cll is stage 0 so do not know if the reaction could vary with the stage. I do know my oncologist encourages me to keep my immunity up with vaccines.

marynoelle | @marynoelle | Aug 20 8:28am

marynoelle | @marynoelle | 1 hour ago
Hi @54321kl I received my pneumococcal immunization, and Shingrix immunization. No side effects whatsoever. Also didn’t have any side effects from the COVID shots. I received my pneumococcal immunization, and Shingrix immunization. No side effects whatsoever. Also didn’t have any side effects from the COVID shots.

nana120 | @nana120 | Aug 20 9:50am

I have had CLL since 1996 and rules may have changed, but my first hematologist did not want me to have the shingles vaccine at that time. He said it was a live virus and could activate shingles. Fast forward to 2016 and I had the worst case of shingles for 3 months, so if you can tolerate the shot I would recommend it over the possibility of shingles!

singularity | @singularity | Aug 20 3:34pm

I had the same and got the same zero outcome.
Even so, everyone is maddeningly unique so take are anyway.

terry1976 | @terry1976 | Aug 21 8:27am

In reply to @nana120 "I have had CLL since 1996 and rules may have changed, but my first hematologist did..." + (show)

You make an excellent observation because the original vaccine was live virus, although attenuated. The "new" Shingrix vaccine is NOT live virus, but recombinant and delivered in 2 doses. It's typically available to anyone over 50.

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