1. < Neuropathy

CIDP and concerns about treatment risk factors

Posted by casey1329 @casey1329, Jul 25, 2022

I'm very concerned because my 71 yr. old husband is to be treated for "Chronic Inflammatory Demyelinating Polyneuropathy" by Gamunex-C ( immune globulin) infusion therapy. Concern stems from the fact that my husband is older ( a risk factor mentioned by Gemunex), has high platelets 434 and Gemunex increases platelet levels. Lastly, my husband tends to get leg blood clots and Gemunex increases the risk for clots. Has anyone had experience with this type of therapy and what do you think about my concerns ? Thank you

Interested in more discussions like this? Go to the Neuropathy Support Group.

elowe | @elowe | 2 days ago
In reply to @mafalda "Elowe, My friends, could not believe my improvements. When I got hospitalized, my weakness was so..." + (show)
@mafalda

Elowe,
My friends, could not believe my improvements. When I got hospitalized, my weakness was so strong I did not have the strength to push the device to call the nurse. After being hospitalized for a month in a rehab facility I went home in a wheelchair not knowing if i will be able to walk again.
Exercise made it, i cant emphasize enough its importance.

Jump to this post

Thank you so much and best of luck to you.

REPLY
elowe | @elowe | 2 days ago
In reply to @itsmeagain "@itsmeagain Yes this is the treatment I have been taking for over three years. I have..." + (show)
@itsmeagain

@itsmeagain
Yes this is the treatment I have been taking for over three years. I have had absolutely no side effects. I’m 82 and get treatment for 2 days once a month.
I did lose a couple of weeks during the bad hurricanes last year (I live in Florida). That caused a weakness due to backsliding but after a week of booster treatment I was back on schedule.
Good luck.

Jump to this post

Thank you, this is very encouraging. I wish you continued success with your treatments and thank you so much for sharing.

REPLY
View MoreView Less
Please sign in or register to post a reply.