CIDP and feeling like you are wrapped in wires?

Posted by bearmom @bearmom, Jun 5 5:59pm

Does anyone with CIDP or any other autoimmune disorders have the terrible sensation of their torso being squeezed with wires?

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John, Volunteer Mentor | @johnbishop | Jun 6 7:37am

@bearmom, I don't have CIDP and can't imagine how difficult it is to manage the symptoms you describe. I do have numbness and some tingling in my legs and feet from small fiber peripheral neuropathy but am fortunate that there is no real pain involved. You might want to scan through the symptoms mentioned by other members on Connect for CIDP. Here is a link to the search results that shows the member comments - https://connect.mayoclinic.org/search/comments/?search=CIDP%20symptoms.

Have you seen the Shining Through CIDP website? - https://www.shiningthroughcidp.com/