CIC sarcoma - has anyone had treatment for CIC::DUX4 fusion?

Posted by bmora @bmora, 1 day ago

I am recently diagnosed with CIC sarcoma on my right clavicle. It started with a small bump on September 27, 2025. It was biopsy twice. Samples from the second biopsy were sent to the Mayo Clinic. I see the sarcoma specialist Monday November 17, 2025.
I did a little research and read this type of cancer has a poor prognosis.
Has anyone had CIC sarcoma? How was it treated?

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

Please sign in or register to post a reply.