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Has anyone had treatment for CIC::DUX4 fusion sarcoma?

Sarcoma | Last Active: Jul 14 8:34pm | Replies (9)

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I had a PICC line placement and first around of chemotherapy yesterday.
The chemotherapy drug cocktail
- Cyclophosphamide
- Doxorubicin
- Vincristine
The PICC line is the best way to deliver the chemotherapy drugs. It’s a 21 day treatment cycle with 6 cycles. I’ll have a treatment once every 21 days. I’ll know after the first cycle of treatment if the treatment is effective because I’ll notice the cancer tumor beginning to shrink. I’ll have a scan 6 weeks after the first treatment. Once the cancer tumor is shrunk enough and I’ve recovered from the chemotherapy, the surgeon, can remove the remaining cancer tumor. I may need additional chemotherapy or radiation after surgery.

Due to the chemotherapy side effects I have to increase my eating and hydration regiment for the best possible outcome. In addition, I must maintain physical activity as well.
The prognosis is not good if the treatment is not effective.

I’ve been down this road before however there is so much more at stake this time.

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Replies to "I had a PICC line placement and first around of chemotherapy yesterday. The chemotherapy drug cocktail..."

Hi @bmora, I moved your discussion to the Sarcoma support group here: https://connect.mayoclinic.org/group/sarcoma/

I did this so you can connect with members like @monicadinslage, who was also recently diagnosed with CIC sarcoma.

Bmora, how are you doing after your first chemo treatment? Staying hydrated?