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CIC-DUX4 Sarcoma with metastasis

Posted by prayingfor45 @prayingfor45, Apr 20 8:54am

My son, age 44, was diagnosed with stage 4 CIC-DUX4 sarcoma, left shoulder in Nov 2025. As of 2 was ago another growing on his right hip. Metastasis to brain, lungs, stomach, liver. He's had radiation for his brain and shoulder. Had 1 round of chemo but chose to stop due to effects. Now we're not sure if he can have it again. Veins are shot due to first round. Dealing with seizures from tumors in his brain causing brain bleeds.

Is there anyone out there that can relate? Maybe a family member if the person is no longer here.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 26 12:15pm

Welcome, @prayingfor45. I'm tagging @bmora and @shamrockmnc, who have shared about their experiences with CIC-DUX4 sarcoma in this related discussion:
- Has anyone had treatment for CIC::DUX4 fusion sarcoma?https://connect.mayoclinic.org/discussion/cic-sarcoma-has-anyone-had-treatment-for-cicdux4-fusion/

I'm sure, as a mom, you wish you could take this pain away from your son. Do you live near him?

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