Crohn's Disease that isn't on the ease
I posted on here sometime before in December of 2020 with the news that I was diagnosed with Chrons disease that was heavily concentrated in the small intestine. Since then I have been on Remicade treatments and have seen no improvements to my condition. I have had my Prometheus levels come back saying that I have formed no resistance (antibodies) to my medication, and there is a high chance of having an infection in the gut that is making the Chrons flare stay. What is worse is that my symptoms have seemed to ravage me far more than what they had done in years previous. My symptoms used to be every other day maybe twice a week, and now they are here to stay 24/7, with a little mild irriating pain here and there that I manage and use work to help me ignore. I have been having black tarry stools on and off again for the past three years, but for the past three weeks, I have had nothing but black stools and intense stomach pain every time I use the restroom. I waited 6 hours to get into the ER by the advisory of my nurse a week ago. There it was confirmed that I was still having blood in the stool, I had recently developed a UTI, and my liver's alanine aminotransferase was at 143 and the aspartate aminotransferase was at a 98. That is around 4 and 2.5 times the normal amount of enzyme production for the liver. I also today was told that my stomach was biopsied and it had intestinal metaplasia, which was likely from the H. Pylori I had when I was 17 that was treated. I feel horrible, lightheaded, nauseous, and have fevers that will reach 100.4 every day. I eat bread only to find myself in pain for hours and then falling asleep in my room from the exhaustion. I wake up often feeling worse and I hate undergoing this cycle as I am trying to get better. I move out in 4 days, I'll have to stay for a month in a place where there is nowhere for me to break down when I feel nauseous and in stabbing horrible pain. I do try to eat so that I avoid being malnourished, but it's hard when my body is rejecting the bland foods that I am giving it. It is slowly starting to feel like my body is withering away and it's frustrating to not have control over it. I have tried prednisone and budesonide with no improvements and only facial swelling, and I have also found that Tylenol will not reduce my fevers but will only sometimes ease the stomach burning/stabbing sensations. It is embarrassing being reduced to tears at my workplace over severe stomach pain and urgent need of the restroom while my body becomes akin to fire. What is worse is when constipation occurs, as I will use everything to try and use the restroom to no avail. Miralax, stool softeners, and once even magnesium citrate were to no effect. I am exhausted. I do not want to waste any doctor's time, but this is getting worse and it's taking me away from everyday life and everything I love. Besides the continuous contact I try to have with my doctors, it is very difficult to get the time or the answers. For the past year, I've practically been relying on a low fiber low residue diet and guided meditations to help me breathe through it all. And yet as I've been experiencing, they can only do so much.