Chronic severe nocturnal hypnic headaches

The nerve block sounds amazing. Could you tell me how long it lasts and what doctor you saw?

Hello. I’m new here and have been taking in the great conversations of this sight. But on this subject I had to reply. Migraines were a continual fact of my life. I have tried so many of the therapies mentioned on this thread. Some of the triptans were somewhat helpful but never totally successful. I had a course of Sphenopalatine Ganglion Blocks, Botox, but nothing worked. Somehow they eventually turned into “alarm clock” (hypnic) headaches. I was prescribed Verapamil but this caused heart issues.
I then moved to Atlanta and started going to Emory. I found a solution. They gave me a “Greater Occipital Nerve Block”. This isn’t a cure but a relief. I received 2 shots in the back of my neck where the Occipital nerves begin and spread across the brain. I HAVE NOT HAD A HEADACHE SINCE!!

@akalsas
I am sorry I did not see this when you posted it on 11/20. In case you are still monitoring Connect here is the link to the tea on Amazon:
https://smile.amazon.com/gp/product/B01N3QDZ74/ref=ppx_yo_dt_b_search_asin_title
It has been more helpful for my wife than anything else she has tried for her headaches. Best, Hank

Unable to find your posts but went to the Shifa web site. Does your wife use the Shifa company tea or another company’s Shifa? Thanks

Thank you. Was it Prednisone?

I also get hypnic headaches. I find that mine can be seasonal. They seem to get worse when the amount of sunlight gets less. My opinion is that it has something to do, then, with melatonin. When mine ramp up again in the fall of the year, I take melatonin. Currently I’m taking 5 mg. of melatonin. I have gradually gone up to 15 mg. in the past with my neurologist’s blessing. I also take gabapentin. I also adjust that slightly up or down depending on my needs. Sometimes a strong 1/2 cup of coffee before bed also helps. Don’t expect a lot of help from your neurologist. These headaches are rare and they likely have not treated many patients with them. Best of luck to you. These headaches are miserable.

My bought with these horrible nocturnal hypnic headaches came on 2 years ago in the early fall. I was desperate to find the answers you seek and any relief I could find. Unfortunately, I never could confirm the source, but after trying many of the drugs, caffeine, melatonin, etc., my neurologist gave me a steroid step down prescription late December and by mid January they stopped. I only had 1 or 2 milder episodes in the following month and nothing after. My neurologist hypothesized that a nerve had been irritated and that the steroid calmed it back down. Hope this helps you. Truly the most frightening and painful thing I’d experienced (outside of childbirth!). Good luck!

There appears to be a mix-up. I did not post to this thread. It seems to be a male person who did.