Chronic pain since 10 years

Posted by chronicpain223 @chronicpain223, 1 day ago

Hello,

I'll try to keep this brief.

For more than 10 years, my 40-year-old brother has been suffering from chronic back pain. It started seemingly at random and has only gotten worse over time.

In addition to that, part of his back has become numb.

His pain is described as burning and electric-shock-like, and it often makes him scream in agony. The affected areas of his back seem to be expanding over the years. Even something as simple as wearing a T-shirt can trigger severe pain episodes, as can walking on hard surfaces.

He can no longer move around normally, sit comfortably, or carry things.

Neurologists and pain clinics have been unable to find any explanation or effective treatment.

He also eventually developed epilepsy. When he has seizures, we almost always have to call an ambulance because they do not stop on their own.

He is already being treated for epilepsy with multiple medications, which cause numerous side effects.

He simply no longer has a life. We live in Belgium, and he has seen virtually every specialist and expert in the region.

Who should we turn to now? We are running out of options, and this situation has become unbearable.

Thank you.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Could it be fibromyalgia or some form of neuropathy? Surely though based on all the specialist involved this has been discussed. Best of luck.

REPLY

I think that he doesn't fit all the things for the fibromyalgia.

Thank you 🙁

REPLY

@chronicpain223 How awful for your brother. Certainly sounds like some kind of neuropathy. I am not a doctor, but my neuropathy gives some of the same symptoms... numbness, electric shocks, and burning. All things which bother me. Did the docs perform an EMG to determine how the nerves are doing? I wish you well on your journey for your brother.

REPLY
Please sign in or register to post a reply.