Chronic Pain Message Board and Communtiy

Hi Everyone!

My name is Eleanor, and I’m a rising senior in high school. I’ve lived with AMPS since 2021, experiencing constant head and ear pain for a little over five years. I was diagnosed at CHOP, and over time I’ve learned how to develop a positive mindset while growing up and persevering through pain.

Living in pain is not something I would ever choose, but I’m grateful for how it has shaped me. I’ve learned that I can redefine any obstacle — if I can live in constant pain, I can do anything. Still, as much as I try to stay positive, AMPS can be an incredibly lonely condition. Chronic pain in general can be isolating. You don’t always want to talk about your pain to people who might only understand it through pity, but you do want to connect with others who truly get it. From my own experiences and conversations with doctors, that feeling seems to be common among people with AMPS or other chronic pain conditions.

That’s why I started a message board on ampsawarenessassociation.org — to connect kids and teens like me who have AMPS. I believe that reflecting on your pain, writing it down, and sharing it with people who understand can make a huge difference.

I would love to connect with anyone going through the AMPS journey, whether it’s yourself or your child, and feel free to join the forum on our website.

I’m really looking forward to meeting everyone!

♥️ Eleanor