Chronic Back Pain for Years

Posted by jlfisher56 @jlfisher56, May 2, 2017

6 back surgeries (extensive cervical and lumbar fusions) with neurological complications. Left with chronic pain. Accident happened in Nursing career 1992 and worked with first fusions until 1999 (failed fusions). At my age, and as a former nurse educator, I never wanted to had to rely on medication/s for the severe pain. Having thoroughly exhausted exploring sites using non-pharmaceutical methods, using psychological methods, biofeedback, trying to accept my limitations, i.e., I still believe somewhere...out there...is hope. The strong medicine has caused gastroparesis, further complicating my health problems. They are too numerous to write and I will not focus on them. I am looking for "help" and guidance. If I can be of assistance to anyone throughout their trials, (perhaps similar to some of what I have gone through), I will.

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I'm having pain in my neck, radiating down my left arm. I did not connect it with neuropathy until I just read your post. I think I should see an orthopedist. Or talk to my neurologist. I'll do both. I'm tired of not-feeling-well. I'm not eager to see any more doctors or do any more tests or take any more medicines, (I would prefer physical therapy) but I accept that I might have to. It's time to do something. Thank you for sharing your experience with us. Peggy

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@pfbacon

I'm having pain in my neck, radiating down my left arm. I did not connect it with neuropathy until I just read your post. I think I should see an orthopedist. Or talk to my neurologist. I'll do both. I'm tired of not-feeling-well. I'm not eager to see any more doctors or do any more tests or take any more medicines, (I would prefer physical therapy) but I accept that I might have to. It's time to do something. Thank you for sharing your experience with us. Peggy

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pfbacon,
I noticed you had written you wanted to see an orthopedist. I actually see an Osteopath as my current PCP and she knows both the neurological signs as well as the bones and joints. She was the one who actually sent me to the PT after she examined me with moving my arm around and I guess I winced at all the right places. They also are trained in the medical physician role and I can go to her with medical problems as well. I switched to her after I was 65 as many of my joints have arthritis in them and felt she would have more knowledge about caring for my aches and pains and does so.

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@pfbacon

I'm having pain in my neck, radiating down my left arm. I did not connect it with neuropathy until I just read your post. I think I should see an orthopedist. Or talk to my neurologist. I'll do both. I'm tired of not-feeling-well. I'm not eager to see any more doctors or do any more tests or take any more medicines, (I would prefer physical therapy) but I accept that I might have to. It's time to do something. Thank you for sharing your experience with us. Peggy

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I used to have that problem. Pain down my neck and arm. I had three vertebrae fused in my neck which took care of it. It was the most successful surgery that I've ever had.

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@eileena

@iteachgate, welcome to this chat. I am wondering if you have, but think you must have along the way, had much in the way of therapy for stretching you muscles. The last guy I worked with helped with the Radiculopathy I suffered with. It radiated from C=7/C-8 down my right arm and made me very sick to my stomach. The PT stretched my neck over a period of 6 visits and finally my back muscles were freed up. I had done all I knew and asked for PT and he sure was good at what he did. Have had zero return of that particular problem.

BTW...I can't spell big words unless I verify them, so please just use Phonics to pronounce that big word that means a compressed nerve with radiating pain down the arm.

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You might also want to ask the PT about cranial facial release. If you can find someone who really knows what they're doing it can be a very successful process.

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@wsh66

You might also want to ask the PT about cranial facial release. If you can find someone who really knows what they're doing it can be a very successful process.

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The medical persons who practice cranial sacral release are trained osteopaths. I've encountered one once in my entire life.

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@eileena

The medical persons who practice cranial sacral release are trained osteopaths. I've encountered one once in my entire life.

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Cranial sacral release. Thank you. Any trained person can do it. It is taught at an institute run by the guy that developed it. It might be the Levington Institute. I can check the name with my PT. He decided it was so important that he didn't patent it but rather choose to make his money teaching it. I just called her and got the answering machine so I'll post the name when I get it.

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@eileena

The medical persons who practice cranial sacral release are trained osteopaths. I've encountered one once in my entire life.

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Did you have it done and if so, what did you think?

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@hosta

Hosta here. I would like to join this conversation. My name is Eve. I to have been thru so much with my spine. I had surgery when I was just 19 years old for a herniated lumbar disc. My back problem continued. Another surgery for herniated lumbar disc when I was 32. Then I had kyphoplasty for compression fracture at T7. I had a pain stimulator put in (didn't help at all) Later I fell was told I had internal contusions and would take time to heal. I got to where I couldn't breath. Then had a chest x-ray and found out I had three compression fractures at T3,4,5. By the time I got the referral to see the surgeon, I had to have the stimulator removed (hadn't used for over 2 years) before I had a MRI. Then was told the fractures had healed wrong and that there was nothing could be done, and was also told I had fractures in the lumbar area also. I have had so many injections I have lost count. Now I am scheduled for the Medial Branch Nerve Blocks. One will be done on 7/3 and another on 8/18 in the cervical area. I have so much pain in the upper back and neck when I use my arms. I just don't know any more. I just want some relief from the pain. I have been on pain medications that don't help that much with the pain, just make me sleepy. I have things I want to do and don't want to sleep all the time. Help!!

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Have you looked into having a implanted pain pump installed? If you expect to be in pain for the rest of your life it is the ultimate solution.

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@wsh66

Have you looked into having a implanted pain pump installed? If you expect to be in pain for the rest of your life it is the ultimate solution.

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@wsh66. hi Stephen! Been thinking of you and wondering how you are! My cellulitis and lymphedema were seen by a nurse, 2 phys therapists. Those plus a social worker and OT all agreed I should be in hospital, I went and the wound had progressed to such a point that when the wound care specialist tried to change it, I hit him with a menu! Never experienced such pain in my life! I’m better now but still in the hospital.
I hope you are doing well!

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@karen00

@wsh66. hi Stephen! Been thinking of you and wondering how you are! My cellulitis and lymphedema were seen by a nurse, 2 phys therapists. Those plus a social worker and OT all agreed I should be in hospital, I went and the wound had progressed to such a point that when the wound care specialist tried to change it, I hit him with a menu! Never experienced such pain in my life! I’m better now but still in the hospital.
I hope you are doing well!

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I'm doing well and I'm very glad to hear that you're having your lymphedema taken care of. I was afraid that what happened would happen. I'm glad to know you're getting the care that someone in your position needs. Love and blessings.

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