Chronic pain and medical marijuana

Posted by ladyjane85 @ladyjane85, Jul 16, 2016

A nurse friend tried me on marijuana oil smoked in an electronic pen since nothing works with my pain under everything pain management has tried. I did not respond – can one be immune to it as I am with all procedures on my back and all pain relievers

@ladyjane85

I just tried the oil (smoked) THC from marijuana 3 diff x’s, and more than
a male would use – no reaction at all.
Am being told of sublingual CBD for pain – do not know price. Then told of
testing for diff meds since either I react badly of they do not help at
all. This is called pharmacogenetic testing or PBx or monecular profiling –
will have to talk to my pain management dr. ladyjane85

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lauriedr, Please research your facts regarding medical marijuana in Minnesota. I live here and have taken medical pot since August. I take a 50/50 dose of THC/HBP orally along with a sub-lingual spray of 100% THC for breakthrough pain.

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@ladyjane85

I just tried the oil (smoked) THC from marijuana 3 diff x’s, and more than
a male would use – no reaction at all.
Am being told of sublingual CBD for pain – do not know price. Then told of
testing for diff meds since either I react badly of they do not help at
all. This is called pharmacogenetic testing or PBx or monecular profiling –
will have to talk to my pain management dr. ladyjane85

Jump to this post

Thank you @medic7054. I have begged and begged my primary, neuro, and pain clinic physicians to allow me to try medical Marijuana in MN. Without exception, they all dismissed it immediately as anecdotal and not based on medical facts. It is a Catch-22! If I see another doctor on my own who provides a diagnosis (chronic pain) and recommends medical marijuana for a qualified pharmacist to prescribe, I will immediately be in violation of my pain contract. I would then lose all access to pain medications, biofeedback, acupuncture, botox, nerve ablation, steroid shots and nerve blocks, etc., as well as psychological counseling. It makes me so angry that I do not have the ability to partake in legal medication in my state. It took me well over a year to get off the wait list and obtain comprehensive care at the only accredited pain clinic in the state. I cannot risk losing the coordination of care I receive. I do have a psychiatrist, headache specialist, PT therapist, and other professionals I see separately. But none of them will sign on either. I have been out of work for 10 years; I just turned 50. Why are doctors so afraid of this alternative treatment? They approve e-stim, dry needling, essential oils, mega doses of vitamins, minerals, herbs of all kinds, massage, all kinds of crazy things. But this just stymies me. I did my due diligence, made my case, and never got even a smidgen of hope or medical reasoning to back up their opinions.  It is like they just want to CYA. At the same time, they want me off Fioricet and oxy, with nothing to replace it. Preventives and triptans provide me with little, if any, relief. This has been a 15+ year odyssey for me. I have still not been approved for disability. I am at the end of my rope. Thank you for your concern. Sometimes it helps to vent.Laurie Demit Rusin

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@ladyjane85

I just tried the oil (smoked) THC from marijuana 3 diff x’s, and more than
a male would use – no reaction at all.
Am being told of sublingual CBD for pain – do not know price. Then told of
testing for diff meds since either I react badly of they do not help at
all. This is called pharmacogenetic testing or PBx or monecular profiling –
will have to talk to my pain management dr. ladyjane85

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@lauriedr I don’t understand how/why these doctors object to medical pot so strenuously. Don’t they, as doctors, have YOUR best interest at heart???? At the very least they should let you do a trial, let’s say one month, to determine how much relief you get from medical pot. That would be the humane way of dealing with you, and this should be your reply to their objections. I’m just a retired/disabled Paramedic and this is MY opinion. I’m going on seven months taking medical pot and am like a new man. If I wasn’t so damn old (70 years old) I would be able to work again.
As for your disability, I would find a good attorney who specializes in helping people navigate the process and get you approved. Additionally, Mayo has an excellent Pain Management program that will help you get off Opioids and help you “deal” with your pain. Many insurances will pay for it.

Good luck. If you need anymore help, let me know.

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@ladyjane85

I just tried the oil (smoked) THC from marijuana 3 diff x’s, and more than
a male would use – no reaction at all.
Am being told of sublingual CBD for pain – do not know price. Then told of
testing for diff meds since either I react badly of they do not help at
all. This is called pharmacogenetic testing or PBx or monecular profiling –
will have to talk to my pain management dr. ladyjane85

Jump to this post

Thank you @medic7054 for your thoughtful response. I am a strong self-advocate, but my doctors are all about CYA. I have disability attorneys, but it's appeal after appeal for the last 7 years. For me, opiates are the only meds that provide any pain relief. Preventive and other abortives don't touch my pain. I am in no hurry to get off opiates. I would prefer more of them, actually. In 15 years I have not had problems with addiction or drug-seeking behaviors. I use oxy because vicodin was like taking a tic tac for me. Ever since Prince died from illicit fentanyl, the whole medical community has freaked out. I looked into Mayo last year, but I was told I had to be drug-free for 2 months before I could even make an appointment. No thank you. I cannot surrender the few hours of relief I get each week in exchange for nothing. I am broke from not working, in debt from alternative treatments; two of the best neurologists in the state tell me there are no tools left in the toolbox until new drugs come to market. Medicine today is not about the patient. I have been told by Dr's and pharmacists that they fear for their licenses. I am so tired of it all. If it weren't for my grown but still-dependent children, I would have cashed out years ago. My loving, supportive Husband is now my caregiver. He has to be set free; this unremitting pain has ruined both our lives. I appreciate the time you have taken with me. I will continue to fight for medicinal pot oil, and for my right to pain relief. I will try anything to end the pain, anxiety, depression. I will look into moving to a pro-euthanasia state when my children are settled in careers, or when I can't take the agony any longer. It breaks my heart that relief is out there, in the Form of a responsible opiate regimen and medical Marijuana, and I am not able to have it because I am a law-abiding patient. Thank you again @medic7054. You have been very kind to me and I appreciate that so much. You must have been an excellent paramedic. I wish you many more pain free days ahead for you.

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@ladyjane85

I just tried the oil (smoked) THC from marijuana 3 diff x’s, and more than
a male would use – no reaction at all.
Am being told of sublingual CBD for pain – do not know price. Then told of
testing for diff meds since either I react badly of they do not help at
all. This is called pharmacogenetic testing or PBx or monecular profiling –
will have to talk to my pain management dr. ladyjane85

Jump to this post

For 10 years or more, no one doctor would do anything to help with pain going down right leg. This was in the mid-eighties. Finally, my main doctor put me on darvocet!! At least he tried. Went to back doctor, had surgery after 5 years of paying 3 different doctors, and the shots that never helped. Now, I am diagnosed with an incurable ailment and found a pain management doc that has put me on everything from hydrocodone, fentayl patches and finally med pot. So much better the pain is than anything I take orally. But, SC does NOT support anything to do with illegal goods. Help me figure this out!!!

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@ladyjane85

I just tried the oil (smoked) THC from marijuana 3 diff x’s, and more than
a male would use – no reaction at all.
Am being told of sublingual CBD for pain – do not know price. Then told of
testing for diff meds since either I react badly of they do not help at
all. This is called pharmacogenetic testing or PBx or monecular profiling –
will have to talk to my pain management dr. ladyjane85

Jump to this post

@lauriedr Thank you for the kind words. More and more states are approving medical pot. Maybe yours will soon. You could consider moving to a state where it is legal. As an aside……consider synthetic pot (Marinol). just read about it recently.

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Ladyjane,
I have been researching CBD oil which is a derivative of hemp. Hemp is not psychotropic because it has extremely low or non existant levels of THC in it. The oil comes in different strengths and you have to adjust accordingly to see what strength you need. I just ordered some to try in my vaper cigarette and it has no nicotine or other harsh chemical additives. Some come with a flavor or without or even seperated, oil in one vial flavor in the other vial.
Hemp is not illegal and anyone can purchase it.

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Hi, I have an autoimmune disease (ITP) and now have severe pain at R shoulder. MRI yesterday showed mild tendinosis of the supraspinatus tendon.
My history is that I failed steroid and splenectomy. A month ago when my platelet tanked to 3, I was restarted on steroid and 4 weeks’ of Rituxan (a drug meant for lymphoma pt).
I will begin phyio and possibly oesopath.
I wonder if medical marijuna can help the pain and more importantly if it affects platelet.

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@ujeeniack

what have u “tried”??

*stay off opiates unless at low level. Some opiate combinations are used.
Try high doses of *
*acetominophen.(Tylenol).*

Ask you doctor also about low doses of * ketamine, with or without
“tylenol.*

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I totally agree – regular use can wreck your liver!

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@angelard

Hi, I have an autoimmune disease (ITP) and now have severe pain at R shoulder. MRI yesterday showed mild tendinosis of the supraspinatus tendon.
My history is that I failed steroid and splenectomy. A month ago when my platelet tanked to 3, I was restarted on steroid and 4 weeks’ of Rituxan (a drug meant for lymphoma pt).
I will begin phyio and possibly oesopath.
I wonder if medical marijuna can help the pain and more importantly if it affects platelet.

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Hi all, My name is Angela

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@angelard

Hi, I have an autoimmune disease (ITP) and now have severe pain at R shoulder. MRI yesterday showed mild tendinosis of the supraspinatus tendon.
My history is that I failed steroid and splenectomy. A month ago when my platelet tanked to 3, I was restarted on steroid and 4 weeks’ of Rituxan (a drug meant for lymphoma pt).
I will begin phyio and possibly oesopath.
I wonder if medical marijuna can help the pain and more importantly if it affects platelet.

Jump to this post

Hello @angelard, and welcome to Connect. I moved your discussion and combined it with an existing discussion with many active members on Chronic Pain and medical marijuana. If you are replying by email I suggest you click on the VIEW & REPLY button that will take you in to the long discussion so that you can meet the other members discussing medical marijuana.

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@angelard

Hi, I have an autoimmune disease (ITP) and now have severe pain at R shoulder. MRI yesterday showed mild tendinosis of the supraspinatus tendon.
My history is that I failed steroid and splenectomy. A month ago when my platelet tanked to 3, I was restarted on steroid and 4 weeks’ of Rituxan (a drug meant for lymphoma pt).
I will begin phyio and possibly oesopath.
I wonder if medical marijuna can help the pain and more importantly if it affects platelet.

Jump to this post

angelard IF you live in a state where medical pot is legal, I don’t see what you would have to lose. I would ask the pot doctor for his opinion regarding your platelets.

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