Chronic Myeloid Leukemia now Myelofibrosis: Anyone had both?

Posted by winniegirl @winniegirl, Feb 19 6:59pm

Does anyone else have both? I was diagnosed August 2025 with CML, treated with Dasatinib 100 MG BCR ABLE down to 0.02 in 6 months but white count still between 19,000 23,000 and platelets 556, so another bone marrow biopsy and now also diagnosed with Myelofibrosis. My Hematologist said he is going to write a paper on me as this is very rare. Anyone else or am I alone?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Lori, Volunteer Mentor | @loribmt | Feb 21 10:08am

Hi @winniegirl Welcome to Mayo Clinic Connect. It can feel pretty lonely with an uncommon diagnosis. So I’m very happy you joined Connect. This is a great place to come for support!

Both CML and MF belong to a group of blood cancers/conditons called myeloproliferative neoplasms (MPNs). There are several conditions associated with MPNs and sometimes, from my understanding, they can run concurrently. But they may require different forms of treatment.
Has your doctor discussed a potential treatment plan for you?

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