Chronic kidney disease (CKD) support: Introduce yourself and connect

Posted by Kelly, Moderator @klp, 16 hours ago

Welcome to the chronic kidney disease (CKD) support group on Mayo Clinic Connect.

This is a welcoming, safe space for anyone living with chronic kidney disease, at any stage of the journey. You’re invited to share your experiences, ask questions big or small, and offer encouragement to others walking a similar path.

Please take these steps to participate in the group:
- Follow the group.
- Browse the topics.
- Use the group search to find answers to your questions.
- Introduce yourself.

Whether you’re adjusting to a new diagnosis, managing CKD long-term, or caring for a loved one, you’ll find support, shared experiences, and practical advice here.

Let’s chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with CKD? (i.e., stage, how long since diagnosis, how it’s managed)?

Do you have a question to ask or a story to share?

Interested in more discussions like this? Go to the Chronic Kidney Disease (CKD) Support Group.

Kelly, Moderator | @klp | 15 hours ago

Welcome to the new support group dedicated to CKD.

I’d love to hear from some of you who have shared your experiences before: @sharlea1313, @katherine65, @abritabroad, @rene123, @maggieinfp, @njwrstlr, @gwladj76, @sallylynn, @ellerbracke, @lbrockme, @kidneyq13, @ggr, @swbwnwsictis1, @lightgoddess, @shotta609, @annc999, @mrainne, @lovely83, @gingerw, @loriel, @cehunt57, @ldrlaw, @popcorn369, @margarethill, @thenazareneshul, @drcoco, @kndaustin71, @susangail53

Check it out. There's new group on Mayo Clinic Connect dedicated to CKD (https://connect.mayoclinic.org/group/chronic-kidney-disease/). Your discussions have been moved to this new group. Be sure to follow the group to get notified of new posts.

So let’s get connected. Take a moment and introduce yourself. If you’ve been managing CKD for a while, what’s one tip or coping strategy that has helped you? And if you’re newer to this journey, what’s a question you’d like to ask the group?

nova1976 | @nova1976 | 3 hours ago

I was. Diagnosed with 3b CKD as a result of being obese all my life
Although I lost a tremendous amount of weight, kidneys remained damaged but stable

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