Chronic belching 10 years..

Posted by danceswithhammer @danceswithhammer, Apr 3, 2023

Chronic belching 10 years

I have worked with 5 GI specialists, but nothing has worked. Only one appeared to take a real interest in me and this condition, I think others had mentioned much more serious things to deal with and burping disorder seemed like no big deal ( but it is!). A couple admitted on day one that chronic conditions/habits like thus for a 63-72 year old rarely can be helped by much of anything. All the alternative and western medicine care listed below has not been even slightly helpful. The drugs and therapies and tests and dieting seriously have had no effect whatsoever. This may not be life threatening, but seriously affects the quality of my life 24/7. If you are in a hurry, you can skip over my laundry list below, just know nothing has worked so far, and problem is likely not physiological.

Baclofen , Pregbalin , Antacids , prescription Prilosec for several months,
FODMAP diet 6, 2, 3 month periods, no positive or negative foods.
SIBO( borderline ) three times. antibiotics, natural supplements, slippery elm, homeopathic remedies, calcium- magnesium, tums for indigestion ( not very often)
Barium swallow test (showed slight leakage of epiglottis, and I cough when eating sometimes, usually due to spicy food)
Stomach emptying test ( fast, 20 minutes)
2017, 2021 endoscopies, not remarkable. Rules out celiac, ulcers
Allergy testing
Biofeedback to eliminate mouth breathing and learn diaphragmatic breathing through nose between speaking phrases. ( failed at this)
Acupuncture, visceral manipulation, homeopathic and naturopathic remedies. Slippery elm tea ( calmed uncomfortable stomach, maybe reduced gas in stomach and gut.)
Fiber supplement every day, about I-2 teaspoon works. I have diverticulitis in colon , no other colon issues.
I eat slowly and carefully, mindful of talking.

After many days of reading online on reputable sites including Mayo, to learn more about the anatomy, supragastric and gastric belching and intestinal gas, causes and conditions and treatments, I have read about several studies that found success with cognitive behavioral therapy and speech therapy, based on the conclusion/assumption that belching syndromes like mine that don’t have a physiological explanation are due to a learned or chosen behavior ( although probably mostly subconscious in my case). I don’t have much anxiety about anything in my life ( except belching !), and reading about CBT seems to only point to “anxiety “ disorders as a possible approach for eating related issue.

Does anyone have personal or clinical experience to share about belching, CBT, maybe hypnotherapy.? I would really appreciate hearing your story and lessons learned. Thanks so much!

Interested in more discussions like this? Go to the Digestive Health Support Group.

@danceswithhammer

EXCITING UPDATE:
I started with a new GI doctor 6 weeks ago. She skimmed through my list in first Mayo posting, and proposed new approach to try.

She prescribed nortriptylene for my belching and gas, telling me she has had good feedback from IBS patients in the past. I started with 10 mg / day, taken at night due to potential drowsiness. The instructions call for raising the dosage 10.mg every 7 days until improvement is noticed, capping at 50mg. This is minuscule dose as compared to when this is prescribed for depression.

I had not been sleeping well due to intestinal and bladder discomfort for over a year, getting up 4-6 times each night after only one time usually for 50 years. Within a day or two I cut down to two times, and have been tracking carefully since, most nights I get up 2 times, with a couple single trips, and a couple 3 trips ( never more). I also noticed right away a reduction in belching, mainly supragastric I think, and intestinal gas discomfort. I also noticed a change in my chronic headache frequency, which used to be much more severe and frequent before, now I have logged two days of zero, one severe one, and most others fairly so minor that I consider after all these years to be a non issue. I used to have 3-5 acute 1-3 hour periods of very uncomfortable belching each week; in 5 1/2 weeks I have only had one, that lasted about an hour. I still have some gastric (maybe not a lot more than healthy normal) and supragastric belching, but maybe a reduction of fifty percent, so subjective it is hard to be sure, as I was not carefully logging before January for all these years.

I started with the 10 mg, but took it for two weeks instead of one since the change had been so profound, then decided to try 20, and now after 3 weeks of higher dose, have decided I may not need even 20 because it didn’t seem to make any difference when I increased to 20, in my symptoms.

She also advised trying speech therapy as another approach, as supragastric belching is a learned behavior, not a natural one like gastric belching. I have not started yet, but intend to right away, finally found a good therapist. I have read in reputable medical articles that CBT has also been used successfully, but plan to stick its the speech therapy for now, which may have a lot of similarities to CBT in this context. She gave me a referral to a psycologist that does CBT as well, but I am going to wait and see if I really need more help after I work with speech therapist.

I started using Azastline for constant nasal congestion about a week before the above treatment, and there is a possibility that it is helping as well as a no longer have to swallow mucous constantly, possibly along with air….. I have worked with ENT and allergist md within the last two years, finding both OTC steroids ( Flonase and something else) to be ineffective, and was told to consider surgery, which I avoided due to the fact that sinus surgery has poor permanent effect , according to the two doctors. My new ENT I found in December suggested the Azelastine, and it continues to work consistently 24/7, a huge relief. I felt like nasal congestion pressure also contributed to my headache and sleep issues.
Other side effects of nortriptylene besides drowsiness ( I have not felt more drowsy than my norm before treatment) are dry mouth and constipation. She encouraged me to try Citrucel oral tablets 6 grams of fiber a day, along with high fiber diet and plenty of water, and although my habits have changed, I have been regular daily. She has found that the powdered flavored fiber supplements can cause bloating, etc. Unfortunately , tablets are pretty pricey. I would be concerned that these side effects could become more of an issue if I have to take more nortriptylene, so I am hoping these positive changes continue.

I plan to provide another update after a few months have gone by, to report on any further changes positive or negative. I wanted to post right away in case someone else might profit from this info. I would also be interested I hearing from anyone has has tried nortriptylene for GI belching regarding efficacy and also if others have found it to help with sleep in this tiny dose. Also, has anyone tried speech therapy for belching?

Talk to your doctor(s) if this might be helpful for you too! This is definitely the most profound improvement in my health in a long time ( last one was using CBT DIY 5 years ago to resolve an insomnia issue that I had for over 20 years, in about 9 weeks (!), with that help of a PAC sleep coach.

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I’ve been suffering 10 long years w/ chronic digestive disorders including 1000’s deep / wet , gross 🤢 belching daily & nightly.
I have many diagnoses and been to many GI and Functional Medicine providers .
I’ve tried everything they make RX wise , supplement wise , holistic wise , diet wise . I’m now also on low dose anti depressant since Oct . I’m not getting relief . This is the 4 th one I’ve tried in 10 years. I have a RX for years for Klonipin low dose as needed .
My most recent GI will do yet another Colonoscopy & Endoscopy on Mar 1 st . My 4 th in 10 years.
I’m so happy you found something that actually works for you !!
Thank you for sharing your story .
I’m hoping one day I’ll finally have some kind of relief 🥲 from this daily nightmare.

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@burp

I am not an anti vax either, but it does seem very coincidental. Did you contact Moderna or Pfizer? The only diagnosis I have had is gastoparesis which cleared on the follow up test. The doctors have blamed it on depression and anxiety. These meds have not worked either. I hope you continue to pursue good health. If I find anything I will certainly share.

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Same here! But my neurologist diagnosed me with abdominal migraines. NutecOTD really helps so does gabapentin for pain.

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@grace29

Same here! But my neurologist diagnosed me with abdominal migraines. NutecOTD really helps so does gabapentin for pain.

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Thank you for your comments. Hang in there

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@calico2000

Hi @danceswithhammer I just came across your post while googling chronic belching. I wondered how you are getting on? Are things any better for you? I’ve had chronic belching for almost two and a half years now - 200+ times a day - stops me sleeping and is exhausting and embarrassing. Like you I have tried numerous things - a lot of what’s on your list too! I’m in the UK. I paid privately to see a gastroenterologist as a last hope, and he did say there is an option of paying for specialised CBT. His top recommendation was low dose Amitriptyline, but I’m a bit worried about the side effects with that. There’s a Reddit sub about Chronic beaching, but other than that it’s not something I’ve heard many other people talk about.

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Calico2000,
I must have missed your September inquiry and information.
Have you tried CBT yet?

I posted a couple days ago on this main thread a post titled “EXCITING UPDATE”. Be sure to read it. This is the first time in 12 + years that anything has had any effect whatsoever on my issues, and it is transformative for me. I am so hopeful that the change is permanent.

As mentioned in update post, I am actually going to try speech therapy specifically for supragastric air swallowing, starting in late March, to work on cutting down frequency even more than now. The nortriptylene appears to have cut frequency at least 50-75%, and severe burp/bloat/fart bouts to only one in 6 weeks now.

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@rozy288

I’ve been suffering 10 long years w/ chronic digestive disorders including 1000’s deep / wet , gross 🤢 belching daily & nightly.
I have many diagnoses and been to many GI and Functional Medicine providers .
I’ve tried everything they make RX wise , supplement wise , holistic wise , diet wise . I’m now also on low dose anti depressant since Oct . I’m not getting relief . This is the 4 th one I’ve tried in 10 years. I have a RX for years for Klonipin low dose as needed .
My most recent GI will do yet another Colonoscopy & Endoscopy on Mar 1 st . My 4 th in 10 years.
I’m so happy you found something that actually works for you !!
Thank you for sharing your story .
I’m hoping one day I’ll finally have some kind of relief 🥲 from this daily nightmare.

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So sorry you are still dealing with this after 10 years too. I will think of you on March 1, hope this sheds new light on the cause of your situation.

I just reviewed my laundry list from beginning thread April 2023, and notice I neglected to mention that I had esophageal manometry, which provides info about how the esophagus muscles work together. It didn’t lead to any significant new treatment at the time about three years ago, but might be a valuable tool for some people to consider.

Good luck!

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In reply to @hikeema123 "What is CBT?" + (show)
@hikeema123

What is CBT?

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CBT. Is “cognitive behavior therapy”. I have read clinical studies ( unfortunately only very small groups) that found it to be transformative for supragastric belching, but NIH website also has more info that is encouraging. None of my numerous doctors , GI and alternative, have ever suggested it as a possibility even, but my new GI referred me for therapy , along with speech therapy ( for which there is also positive feedback in google land on non commercial sites). My last ENT about two years ago would not prescribe it, saying it is not worthwhile. I intend to try it if needed after I do speech therapy and feel like I still need help.

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@danceswithhammer

So sorry you are still dealing with this after 10 years too. I will think of you on March 1, hope this sheds new light on the cause of your situation.

I just reviewed my laundry list from beginning thread April 2023, and notice I neglected to mention that I had esophageal manometry, which provides info about how the esophagus muscles work together. It didn’t lead to any significant new treatment at the time about three years ago, but might be a valuable tool for some people to consider.

Good luck!

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Oh I had the last endoscopy w/ Endo Flip ( which is similar to what you are talking about ).
It was done at Mayo Clinic Jacksonville ( I had Entroscopy CT as well ) and long SIBO breath test there .
Only one Dr. at the Jacksonville Mayo Clinic does the Endoscopy w/ Endo flip .
I have many diagnoses.
Thank you for your kind thoughts 💭.

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@danceswithhammer

Calico2000,
I must have missed your September inquiry and information.
Have you tried CBT yet?

I posted a couple days ago on this main thread a post titled “EXCITING UPDATE”. Be sure to read it. This is the first time in 12 + years that anything has had any effect whatsoever on my issues, and it is transformative for me. I am so hopeful that the change is permanent.

As mentioned in update post, I am actually going to try speech therapy specifically for supragastric air swallowing, starting in late March, to work on cutting down frequency even more than now. The nortriptylene appears to have cut frequency at least 50-75%, and severe burp/bloat/fart bouts to only one in 6 weeks now.

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They suggested speech therapy and like cognitive therapy and the antidepressant.
I take low dose mirazapine 15 mg in afternoon.
I don’t have Supergastric Belching as all the gas in in my stomach and intestinal trac . It’s not starting in my esophagus like super gastric belching would .
It goes up my esophagus of course and comes out wet and nasty 🤢 tasting like stomach lining . 1000’s a day . Gut constantly churning too ( whether hungry or empty ).
It’s a real mess in this body .
I’m so weary of it all .

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Does NOTRIPTYLENE help with easing belching burping??

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