Chemotherapy-induced neuropathy: What helps get rid of it?

Hi!
I am happy to be following you all with some similar stories of neuropathy trials and tribulations!
I was diagnosed with Pancreatic Ca July of 2021. I had twelve rounds of chemo (4 drugs) including oxaliplatin and 5-FU.
I also had 15 rounds of proton radiation along with oral chemo and lastly the Whipple procedure in May 2022.
I began to experience neuropathy symptoms probably after my 8th round. Doses were reduced but the neuropathy only got worse. It got substantially worse after my surgery, slightly better over last summer but increased in intensity after an emergency appendectomy in Dec of 22.
I have numbness, pins needles and stiffness in my feet and ankles, sometimes into my calves to the knee. Also I’m my fingers. I have tried gabapentin which really didn’t work and am now on Cymbalta which is not working. I was told that if after a year if you don’t see improvement it probably will never go away. Does anyone have experience with CIPN if so have you seen improvement after so much time? Thank you for anything that you can share.

I also have chemo induced neuropathy. I work with my pain doctor on this. Right now I’m on 600 mg gabapentin 4 times a day. It’s the only thing they can do because the Chemo word out the nerve endings so there’s no “fixing” the problem just treating.

Jldavis23 I’m looking for most recent posts, is this 1923 post? I have what my oncologists refer to as chemo-induced neuropathy and from what I understand this is different from other neuropathy that some get. Mine started when I started chemo for breast cancer, doctors kept telling me it would go away after treatment t was done. All treatment including surgery and radiation was finished in 11/22. Am not on anymore treatment because neuropathy got worse. I still have symptoms, numbness and tingling in feet and fingers. It was improving but numbness in left foot has gotten worse. Also have strength and balance issues, using a cane. Taking Gabapentin 300mg twice a day. Oncologists said to keep taking it. Can’t understand why there is no treatment for this, doctors keep saying there is nothing that can be done. I feel that is not good enough, cancer has been happening for decades and this is doctors answer? Hope you find something to help you.

Jldavis23 I’m looking for most recent posts, is this 1923 post? I have what my oncologists refer to as chemo-induced neuropathy and from what I understand this is different from other neuropathy that some get. Mine started when I started chemo for breast cancer, doctors kept telling me it would go away after treatment t was done. All treatment including surgery and radiation was finished in 11/22. Am not on anymore treatment because neuropathy got worse. I still have symptoms, numbness and tingling in feet and fingers. It was improving but numbness in left foot has gotten worse. Also have strength and balance issues, using a cane. Taking Gabapentin 300mg twice a day. Oncologists said to keep taking it. Can’t understand why there is no treatment for this, doctors keep saying there is nothing that can be done. I feel that is not good enough, cancer has been happening for decades and this is doctors answer? Hope you find something to help you.

I got neuropathy from chemo as well. I haven’t heard of anyone else who had the burning pain I had. It felt like my finger tips and feet bottoms were on fire constantly. I found a regiment of supplements that took away the pain. Living with the numbness that I still have is still a great improvement.

Finished chemotherapy treatment for colon cancer on February 14,2023
Developed neuropathy in fingers and toes that has gotten worse since last
Treatment.both are numb and feels cold . My other side effect is taste,have a
great appitite,but does not enjoy food because of taste.