Chemotherapy doubts: Male breast cancer

Posted by agingrobert @agingrobert, Oct 2, 2020

I’m looking for opinions. I was diagnosed with stage 3 breast cancer. As a male, I learned there are no statistics related to male breast cancer because it’s so rare. My odds of non-recurrence in 5 years are 60 percent, post-tumor removal, which was done. My odds improve only by 15 points, to 75 percent, if I undergo 20 weeks of chemotherapy, radiation, and hormone therapy. These numbers are based on WOMEN who were diagnosed with the same cancer, so I don’t have much faith in the accuracy of the numbers. I’m at week 6 of the Taxol toxin and it is taking its toll. I’d like to learn if there’s any knowledge out there related to the impact of discontinuing my chemotherapy after Taxol (12 weeks), and not undergoing the A/C toxins for the last 8 weeks. The A/C toxins present far more risk of permanent damage to my body, and my gut is telling me that the “cure may be worse than the disease”. Regardless of my decision on chemotherapy I would still do the radiation and hormone therapies but thinking to eliminate the A/C. Just looking for more information to learn if anyone knows of trials or research related to the use of Taxol only for breast cancer. Thanks, in advance, for sharing.

Don’t know if this will help, But the gene mutation CHEK2 causes Male Breast cancer. It is rare but
if you have CHEK2 there are other cancers to be screened for. Thyroid, Colorectal, Kidney. I was told
CHEK2 was rare in 2015, but after 10 family members tested 8 were positive. I’m sure there are many more in my family but they don’t want to know. The reason they thought it was rare is because unless you have the full testing done it
isn’t found. I believe they are screening now for mutations other than BRCA. Prayers for all

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thank you for sharing this information. I did have genetic testing done but need to check with the technician to validate CHEK2. great information!

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@agingrobert

thank you for sharing this information. I did have genetic testing done but need to check with the technician to validate CHEK2. great information!

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Glad i could help God Bless

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@agingrobert, how are you doing? Have you made a decision about continuing with chemo or not? Did you talk about it with your oncologist?

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@colleenyoung

@agingrobert, how are you doing? Have you made a decision about continuing with chemo or not? Did you talk about it with your oncologist?

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Hello Colleen. I'm still undecided. I'm in week 10 of Taxol chemotherapy and plan to complete the 12 week plan, however I'm not sure if I will do the AC toxin, which is prescribed next (for 8 weeks). I learned from my Oncologist that 5 year survival odds worsen by 2 or 3 percent if I bypass AC and move directly to radiation and hormone therapies. Not a huge amount, but enough to think about. I need to talk to more folks who have undergone AC to better understand the experience and risks. Still undecided, but I don't want the cure to be worse than the disease.

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