Northwest biotherapeutics is coming out with a vaccine for cancer right now. It’s approved in the UK. The FDA should be approving it Soon in the states, you should look it up.
I took the 80mg everyday same time for a little over a month. I couldn’t handle the side effects which included fatigue, occasional diarrhea, skin dryness, itchiness, and almost constant mild headache. My oncologist dropped me to one 80mg pill every other day and I feel so much better. The side effects do come back on the day I take the pill but overall I’m much better. I’m stage 1b cancer with no Mets and an upper lobectomy a 3.5 months ago. So the Tagrisso is purely to help stop any cancer returning. I hope the lower frequency works 🙏🙏🙏….Stay strong !!
The steroid pack just finished and was extremely helpful. His appetite is coming back and his cough and energy level is improved. Tagrisso is approved for his EGFR marker following surgery and two rounds of chemo. His doctor is waiting for tests and improvement after chemo. He received the tagrisso pills and reviewed the side effects. He's scared. Any advice?
I took the 80mg everyday same time for a little over a month. I couldn’t handle the side effects which included fatigue, occasional diarrhea, skin dryness, itchiness, and almost constant mild headache. My oncologist dropped me to one 80mg pill every other day and I feel so much better. The side effects do come back on the day I take the pill but overall I’m much better. I’m stage 1b cancer with no Mets and an upper lobectomy a 3.5 months ago. So the Tagrisso is purely to help stop any cancer returning. I hope the lower frequency works 🙏🙏🙏….Stay strong !!
The steroid pack just finished and was extremely helpful. His appetite is coming back and his cough and energy level is improved. Tagrisso is approved for his EGFR marker following surgery and two rounds of chemo. His doctor is waiting for tests and improvement after chemo. He received the tagrisso pills and reviewed the side effects. He's scared. Any advice?
@eeileen and @fivec, I've been on Tagrisso for three and a half years now. Nail splitting was the second symptom I noticed. I take 10mg of Biotin daily and occasionally rub Vitamin E oil into the nails and cuticles. My Oncologist approves of the Biotin and assures me it doesn't interact with anything else I'm taking.
@eeileen, There is no numbness or tingling, though. I've never heard of that as a Tagrisso side effect. I recommend letting your doctor know.
Yes, my fingernails had the same ridges. They also kept breaking. I have been taking Biotin pills. With less than one bottle, I am happy to say, my nails look great and are strong.
Yes, my fingernails had the same ridges. They also kept breaking. I have been taking Biotin pills. With less than one bottle, I am happy to say, my nails look great and are strong.
@eeileen and @fivec, I've been on Tagrisso for three and a half years now. Nail splitting was the second symptom I noticed. I take 10mg of Biotin daily and occasionally rub Vitamin E oil into the nails and cuticles. My Oncologist approves of the Biotin and assures me it doesn't interact with anything else I'm taking.
@eeileen, There is no numbness or tingling, though. I've never heard of that as a Tagrisso side effect. I recommend letting your doctor know.
Hi. I have been taking Tagrisso for a couple of months. Shortly after I started it, I noticed numbness and tingling in my fingertips and horizontal ridges on my fingernails. Has anyone else had these side effects? I'm wondering if the symptoms could be from something else and they just appeared coincidentally when I started Tagrisso.
Yes, my fingernails had the same ridges. They also kept breaking. I have been taking Biotin pills. With less than one bottle, I am happy to say, my nails look great and are strong.
Hi. I have been taking Tagrisso for a couple of months. Shortly after I started it, I noticed numbness and tingling in my fingertips and horizontal ridges on my fingernails. Has anyone else had these side effects? I'm wondering if the symptoms could be from something else and they just appeared coincidentally when I started Tagrisso.
@babs1956,when listening to peoples' experiences, remember that every body is different. That's why doctors can't tell you how you'll react to treatment. For example, I also had 4 rounds of chemo after surgery back in 2018. In my case, I had 33 rounds of radiation going on at the same time. Zero nausea. No hair loss. The main effect of the chemo was tiredness, and that was primarily the first two days after.
Also, not all chemo drugs are alike. I have an EGFR Exon 19 mutation, so platinum-based chemo is recommended. In my case, I had Carboplatin and Pemetrexed. Before chemo, I asked my oncologist about nausea, and he replied, "No, I won't let that happen." He had me take two 4mg tablets of Dexamethasone the day before and after chemo treatments. Also, the first bag they hung during treatment was Dex.
I'm a huge fan of asking, asking, asking questions. Your oncologist is probably the most cancer-knowledgeable person in your world, so get your information from the source. I have an Android phone that lets me to create Notes. I start one with each of my doctor's names as the title. Every time I think of a question, I add it to the note. The next time I see them, I take out my phone and ask away!
Also, if you're seeing your oncologist by yourself, I strongly encourage you to bring your spouse, relative, or friend with you. This can be an emotional journey that doesn't help memory. Plus, these things happen when we're older and are already starting to forget . . . What was I saying? Oh yes. Memory. You get my point. 🙂
All the best to you. You've found a good support group. Let us know how your next visit goes.
That would be wonderful, but I wonder if the oncologists are going to accept it. They may lose money. I wonder if they know about it I’m sure they do
Thanks for your update, Mollie. It sure is helpful to know other people's experiences. Appreciate it. My best to you.
I took the 80mg everyday same time for a little over a month. I couldn’t handle the side effects which included fatigue, occasional diarrhea, skin dryness, itchiness, and almost constant mild headache. My oncologist dropped me to one 80mg pill every other day and I feel so much better. The side effects do come back on the day I take the pill but overall I’m much better. I’m stage 1b cancer with no Mets and an upper lobectomy a 3.5 months ago. So the Tagrisso is purely to help stop any cancer returning. I hope the lower frequency works 🙏🙏🙏….Stay strong !!
The steroid pack just finished and was extremely helpful. His appetite is coming back and his cough and energy level is improved. Tagrisso is approved for his EGFR marker following surgery and two rounds of chemo. His doctor is waiting for tests and improvement after chemo. He received the tagrisso pills and reviewed the side effects. He's scared. Any advice?
Thanks. Yes I think I need to discuss this with my doctor.
Thanks. I will look into it.
@eeileen and @fivec, I've been on Tagrisso for three and a half years now. Nail splitting was the second symptom I noticed. I take 10mg of Biotin daily and occasionally rub Vitamin E oil into the nails and cuticles. My Oncologist approves of the Biotin and assures me it doesn't interact with anything else I'm taking.
@eeileen, There is no numbness or tingling, though. I've never heard of that as a Tagrisso side effect. I recommend letting your doctor know.
Yes, my fingernails had the same ridges. They also kept breaking. I have been taking Biotin pills. With less than one bottle, I am happy to say, my nails look great and are strong.
Hi. I have been taking Tagrisso for a couple of months. Shortly after I started it, I noticed numbness and tingling in my fingertips and horizontal ridges on my fingernails. Has anyone else had these side effects? I'm wondering if the symptoms could be from something else and they just appeared coincidentally when I started Tagrisso.
Thank you so much