Chemo every two weeks for the rest of my life?!?
Hi,
I got a Stage 4 squamous cell esophageal cancer diagnosis on October 2. The tumor is near my stomach and cannot be removed surgically, while the cancer has migrated to my shoulder bone, a lymph node in my neck, and a spot on my liver. My MD told me just yesterday that I will have to undergo chemotherapy for about 48 hours per session once every two weeks for the rest of my life, however long it may last.
He says the cancer will resurgence if they let up at all on the chemotherapy. I am in shock. In two weeks I will have finished five weeks of daily radiation and the chemotherapy sessions will ensue.
Has anyone else been told they must have chemotherapy every two weeks for the rest of their life? Can such a treatment program even be tolerable? Please reply if you have any thoughts or advice.
Thanks,
One sad lady!
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@teresamartin
Hi Teresa,
Thanks for sharing this story of your alternative treatment in Mexico. Assuming that you have an esophageal tumor like me, did you get radiation treatment for it? We were both diagnosed in October and my radiation started mid month lasting 28 days.
A Petscan on January 7 just revealed that the 5 cm tumor is all gone. Wow! I can now eat and swallow like anyone.
The metastases to liver, lymph nodes and bone remains, so I will be getting Opdivo immunotherapy next with Folfox. I hope it works.
You may need to get a second opinion about treatment, including radiation if you haven't had it.
Also, please say what all those parasites they claim you had may have been. Bugs? Worms? Sounds so strange!
I hope you get better somehow.
Marcia
@maraca
Teresa, please post what your CT scan and MRI reveal next month!
Marcia
@maraca everything in my neck is gone, it was gone before I left Mexico. It was worms. Like rope worms. I passed thousands. I still see them popping up here and there and I’m still passing them. A warm can show up on a PET scan as Cancer. I go back for a liver MRI next month and also a PET scan for my liver and lungs. I’m anxious to see what’s going on there. No I didn’t do any treatment with radiation or chemo with this bout. I did it a year and a half ago, but it came back. I’m not gonna go that route again, regardless.
@maraca if it’s my time, I do not want to suffer from chemo side effects. I strongly believe from the research and knowledge. I’ve learned that a lot of times people have worms and not cancer. Our country does not teach us to detox two or four times a year. We are about the only country that does not teach that. We go right to chemo and radiation and surgery! I did learn that if somebody has the rope forms that organic coffee animals will bring them out. when you see that you have them, then you treat for them.
@maraca how do you feel since you’ve started the Chemo routine?
I spent three weeks in Mexico
At a clinic. Now I’m doing a three month protocol at home. I’m gaining weight and I feel really good.
Dear Maraca, I too was diagnosed with Stage 4 Esophageal Cancer. Also, I am going through treatment every two weeks for however long my body can tolerate it. The cancer started in the esophagus and spread into the bones. I have had two radiation treatments. The first targeted a spot on the back of the neck and the right iliac. The second attacked a spot on the left iliac. Completed the first round of chemo of which there were 12 of them. I started the immunotherapy in December. My body has so far tolerated the treatments. I have received a lot of support from friends, family, church, and even strangers! My wife and I are planning a trip to Europe later this year. Don’t give up hope.
Sincerely,
Doug B.
@teresamartin
Teresa,
Honestly, I have never heard of worms being confused with cancer or other countries advising detox 3-4 times a year, and since I have friends in a few other countries I tend to doubt what you wrote here.
I have had the chemotherapy with Folded only 4 sessions and mainly doing okay. It's tiring is all.
Now you got me wondering if I have worms!
Glad you are gaining some weight. Do you have esophageal cancer and a tumor in your esophagus?
Marcia
@buckoneill
Hi Doug,
Thanks for your reply. We both are in the same boat looks like, with immunotherapy next. I hope yours knocks out the bone cancer, since that's where mine went too. I met a fellow on Zoom yesterday whose liver metastases got wiped clear of cancer with Opdivo immunotherapy, which is what I will get next. Let us know how you go, okay?
Best wishes,
Marcia
@maraca I had colorectal last year. It came back in my lungs, my liver and lymph nodes in my neck.