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werock
@werock

Posts: 7
Joined: Aug 30, 2012

Cervical Neck Instability

Posted by @werock, Aug 22, 2016

5 years ago I had a fusion done on my neck c3 thru c6. The surgery went well and I recovered nicely. Now I have cervical neck instability and need work on c1 and c2. Has anyone had this done? If you have, what was the recovery like and how long did it take. Thank you for your response.

REPLY

Posted by @predictable, Aug 23, 2016

I wish I could respond to your plea for similar surgery, @werock. I can only do three things: One, welcome you to our information exchange, Two, help track down others to give us insights on cervical instability after vertebral fusion. Three, briefly relate a case that attracted me to this discussion.

My friend had two degenerating discs in her cervical spine (separating c3, c4, c5). After months of investigation, she went to Germany and had two artificial discs installed. Within a few months, she was back on the golf course — no pain, stable spine, singing like never before. The procedure involving more than one artificial disc was not approved in the US at the time (2007). We can speculate on why American medicine opposes it.

During her recovery, I encountered several spinal experts and asked about problems above and below her three affected vertebrae. Memory of this has faded somewhat, so I hesitate to make any flat statements about them, but rest assured that there are many professionals focusing on the top of the spine and its structural and neural relationships along its entire length. We have to help you track them down!

apportee
@apportee

Posts: 40
Joined: Jun 19, 2016
Posted by @apportee, Aug 24, 2016

No, I have not had a fusion. I have narrowing of c3-c-4, and c5-c5 with severe left shoulder and arm pain. Did you have these systems?

werock
@werock

Posts: 7
Joined: Aug 30, 2012
Posted by @werock, Aug 24, 2016

I don’t remember too much shoulder pain. What I do remember is that every time I sneezed or coughed I felt electrical shocks throughout my body. That is when I knew something wasn’t quite right. The arthritis in my vertabrae was as such that they were pressing on my spinal cord I several areas. The surgery went very well but the total recovery period was about a year.

apportee
@apportee

Posts: 40
Joined: Jun 19, 2016
Posted by @apportee, Aug 24, 2016

I am glad the surgery is behind you. Thanks for the reply.

Posted by @colleenyoung, Aug 24, 2016

Welcome @werock. I’d like to round up a few other members who have experience with cervical spinal fusion. @seanbeck @medic7054 @Renia @srobison @dhuffman may have some experience or advice about post surgical neck instability to share with you.

Werock – is physical therapy an option?

medic7054
@medic7054

Posts: 115
Joined: Mar 23, 2016
Posted by @medic7054, Aug 24, 2016

Yeah, I had C3-6 fused due to an motor vehicle accident. The surgery was a snap I did all the post-surgery things I was told, but I continued to have pain lower in my neck and into my arms. (I did feel a little unstable in my neck area, but my Neurosurgeon said it would get better eventually, which it did.) I had a Botox injections X2 with NO relief. I finally found a Pain specialist who performed Facet Joint Ablations with dramatic relief. Like any such procedure, the pain returned (nerves re-generating). I had this procedure again four times until these nerves finally gave up re-generating. It was such a relief, I was then off all medications until my Peripheral Neuropathy started three months later. My Mayo Neurologist said many people who have had a previous injury to the spine will develop Neuropathy. BTW, I am not and never was a diabetic which is the most common cause of Peripheral Neuropathy.

werock
@werock

Posts: 7
Joined: Aug 30, 2012
Posted by @werock, Aug 24, 2016

I am not sure that it would be because of my fusion on c3 thru c6 doesn’t leave me with very much mobility. Something I could check on though.

medic7054
@medic7054

Posts: 115
Joined: Mar 23, 2016
Posted by @medic7054, Aug 24, 2016

Your decreased mobility probably won’t improve much, but it will soon be your new “normal”.

Posted by @predictable, Aug 24, 2016

@werock, I hope you can follow up on the members suggested above by @colleenyoung. They have a mountain of information they shared with us before. To read each one’s postings, just left-click on one @-identity and wait for their postings to come up on your browser window, then do the same with each of the others. I was blown away by everything I read there!

werock
@werock

Posts: 7
Joined: Aug 30, 2012
Posted by @werock, Aug 24, 2016

Thank you so very much!!

werock
@werock

Posts: 7
Joined: Aug 30, 2012
Posted by @werock, Aug 24, 2016

I have been reading about prolotherapy for c1-c2 instability. Has anyone heard any results using such therapy?

Posted by @predictable, Aug 24, 2016

@werock, I did a quick search for information on prolotherapy aimed at the neck, focusing on the National Library of Medicine which prioritizes medically recognized technologies and treatments. It looks as though the reports on file there address pain more than instability, but you may find more satisfying information in 20 articles on the neck and 25 others on the spine as a whole. Check out http://www.ncbi.nlm.nih.gov/pubmed/?term=prolotherapy first to get a list of the 25, then add “+neck” to the search terms to give you http://www.ncbi.nlm.nih.gov/pubmed/?term=prolotherapy+neck for a list of the 20. These may trigger more responses from other members as well.

werock
@werock

Posts: 7
Joined: Aug 30, 2012
Posted by @werock, Aug 24, 2016

Thank you!!

edda
@edda

Posts: 10
Joined: Feb 22, 2017
Posted by @edda, Fri, Feb 24 1:43pm

I am a candidate for C1-C2 ablation surgery. It is very delicate for the surgeon,
since it can cause a lot of problems. Including paralization. I see that surgery as a last choice.
Does anybody have had this surgery and where?

Renia
@Renia

Posts: 6
Joined: Jan 04, 2016
Posted by @Renia, Fri, Feb 24 7:07pm

I have had three surgeries on c-5-6, and c-6-7, and the fourth surgery was a cleanse, since I caught an infection. I have had blocks and even an increase in MED’s. I suffer with migraines on a daily basis, left shoulder pain as well as numbness in my left hand.i have went to migraine specialists, neurologists, as well as going all the way to Mayo in Minnesota. I have been told that I have a complicated case. But there is nothing that any dr could make it more pain free. Before you go and have surgery, I suggest that you research as well as see which dr would be the best for you. I am now on disability because I can’t stand or sit for long periods of time. i hope this helps you and best of luck….God Bless

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