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Cerebral venous sinus thrombosis (cvst)
I was diagnosed with a CVST a year and a half ago. I've been doing well, but it is always on my mind. It is quite rare and I'm interested in hearing stories from anyone who has been through something similar.
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THANK YOU! This is amazing... Much more information than I've been able to find on-line. I really appreciate your forwarding this link to me. I printed out all 71 pages to read through tonight.
Mayo Clinic has been actively involved in working with the American Heart Association in the development of guidelines regarding your diagnosis. Although the guidelines do not specifically address recurrent CVST, if it would be helpful to you, please see this linked article http://stroke.ahajournals.org/content/42/4/1158.full.
Hi I was diagnosed with a large CVST last September. It came as a massive shock as I consider myself to be relatively healthy and young - 23 at the time. Been through 2 CT scans, 1 week of IV Heparin and 7 months of Warfarin. Had my blood tests taken 1 month after coming off Warfarin and they have come back all clear recently 🙂 Was your vision affected at all? I had really bad double vision for 3 months. My vision is still not perfect but am lucky to be alive! It's great to hear from someone who has had something similar. I think about it every day.