1. < Stroke & Cerebrovascular Diseases

Cerebellum Atrophy

Posted by howardjames @howardjames, Jun 5, 2016

My husband has been diagnosed with cerebral atrophy. Is there anyone with similar diagnosis? In January of 1915 he was given 3 to 4 years to live.

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tamerahunt | @tamerahunt | Sep 18, 2023

You must have meant 2015. I’m glad he is still around. Could it be lack of blood supply to the brain causing atrophy? Brain blockages or vein stenosis.

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1 reply
sally12345 | @sally12345 | Sep 17, 2023

Hi, my 30 year old son has brain atrophy. Suffers from tremors, short and long term memory loss, difficulty walking falls alot.no answers from neurologists. Put him in gabapentin..does not help.

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goodie | @goodie | Sep 15, 2023

From Goodie again!
The rest of the diagnosis on the CT scan was :
Atrophy and scattered areas of hypo density in the cerebral hemisphere white matter! Any tell me what that means when along with small vessel ischemia in white matter disease!

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alexgoldman | @alexgoldman | Jul 24, 2023
In reply to @howardjames "I still have not heard from anyone who has a diagnosis of cerebellum atrophy. Does no..." + (show)
@howardjames

I still have not heard from anyone who has a diagnosis of cerebellum atrophy. Does no one have this dianosis? We have been to Mayo Clinic in Rochester, Mn. who gave him 3 to 4 years to live. He does not have Parkinson's disease although his ability to write has become illegible. His speech is becoming harder to understand. We have tried many sites but most are for Parkinson's studies or Alzheimer's. He has neither. His cerebellum is dying. Should we go somewhere else and where?

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I am sorry for yor suffering. I too have an atrpophied cerbellum. The Medical world holds no answers, only questions. I, myself have seen 4 Neurologists,
walk witha cane in the house, and a walker without.
It is hard to live with this condition, but I readon this site of a child who has this condition and I have a 24 year old friend who has blood cancer...
Alex

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christine6682 | @christine6682 | Jan 17, 2023
In reply to @idfiddler "I was diagnosed with cerebellar atrophy about a year ago. I have problems with walking without..." + (show)
@idfiddler

I was diagnosed with cerebellar atrophy about a year ago. I have problems with walking without a walker and have problems with nystagmus and double vision. I play music and I
am also finding that my reaction time and coordination is declining. I am interested in talking
to anyone with the same problems.

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I had a mri that said I had cerebral atrophy and I also have tremors with this. The nerologist don't know why this is happening and no medications work. I'm losing short and long term memory. This started in 2019 before that I was healthy and vibrant women. I'm 60 now. Feel like I'm 90. And they don't know why I have so many symptoms. Double vision tremors. Gait off. Un balanced. Anyone else suffer this?

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valans | @valans | Dec 21, 2022

hello, new here. diagnosed when I was 15, I'm 37 now, so 22 years living with this. unknown reason, maybe genetics according to doctors (their go-to answer when they don't know the answer). friends says maybe its because of my habit of taking a bath after playing basketball, change of body temperature and stuff, which is possible I guess. its so hard and just so frustrating at first, especially the physical therapy, that was something. looked at it as a curse before, but now I'm not sure (more of a blessing)

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nleejewell | @nleejewell | Feb 26, 2022
In reply to @howardjames "I still have not heard from anyone else having cerebral atrophy diagnosis. Does anyone out there..." + (show)
@howardjames

I still have not heard from anyone else having cerebral atrophy diagnosis. Does anyone out there have a similar problem. Should we go anywhere else beside Mayo Clinic?

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Yes, my husband was recently diagnosed and has had to bleeds in two months requesting hospitalization. He’d apparently had several small bleeds as well as 2 large ones earlier. He was on Eliquis because of AFib and both his neurologist and cardiologist agreed that he needed to stop and avoid all blood thinners to prevent a massive stroke. There is no cure for this rare, totally unpredictable disease. It’s progressive and degenerative. I see people chasing cures, the right doctor, drug, test, cause - it’s irrelevant. None of them is a cure. There are treatments for some types and symptoms, but no cures. I’m terribly sorry. Believe me, I understand completely. Accept it, begin each day as a new day - enjoy what you can as long as you have it. It’s the most anyone gets.

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dkeg | @dkeg | Feb 15, 2022
In reply to @howardjames "I still have not heard from anyone who has a diagnosis of cerebellum atrophy. Does no..." + (show)
@howardjames

I still have not heard from anyone who has a diagnosis of cerebellum atrophy. Does no one have this dianosis? We have been to Mayo Clinic in Rochester, Mn. who gave him 3 to 4 years to live. He does not have Parkinson's disease although his ability to write has become illegible. His speech is becoming harder to understand. We have tried many sites but most are for Parkinson's studies or Alzheimer's. He has neither. His cerebellum is dying. Should we go somewhere else and where?

Jump to this post

Hi. I had my first MRI of several in 2015 with identification of Cerebellar Atrophy. I also have dysarthria, restless legs, loss of balance, neurogenic bladder and more. I have seen numerous neurologists and the last neurologist identified inconsistencies in my MRI's. I'm not sure what is going on. Time will tell. Think positive. Talk with you later. Remember, think positive.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 14, 2021
In reply to @alexgoldman2 "Hello, I have undergone 2 MRI's and several blood tests, XRays, etc. No help! Alex" + (show)
@alexgoldman2

Hello, I have undergone 2 MRI's and several blood tests, XRays, etc. No help! Alex

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Hi @alexgoldman2

When you say that the x-rays and blood test were no help what do you mean? That they were no help in achieving a diagnosis or the cause? How are you feeling?

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oldkarl | @oldkarl | Aug 13, 2021
In reply to @oldkarl "@larryh123 Hi, @Larryh Thanks for your query. As a quick answer, http://www.omim.org/entry/hydrocephalus should give you a..." + (show)
@oldkarl

@larryh123 Hi, @larryh Thanks for your query. As a quick answer, http://www.omim.org/entry/hydrocephalus should give you a lot of 'stuff' on the 500+ genes OMIM lists for involvement in hydrocephalus. Some are recessive, most are dominant. This source is free, and targeted toward professionals, but I am on it almost every day. Another great source is Jackson Lab's human phenotype O (I cannot right now remember the word for O) http://hpo.jax.org for hydrocephalus. Jackson is quite proud of their work in this, and rightfully so. These two will lead you toward legitimate info on almost any gene. More later. oldkarl

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Just remembered the address: But to be certain, look up Jackson Labs on Google HPO is Human Phenotype Ontology. It is a great site for anyone. oldkarl

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