Cerebellum Atrophy

Posted by howardjames @howardjames, Jun 5, 2016

My husband has been diagnosed with cerebral atrophy. Is there anyone with similar diagnosis? In January of 1915 he was given 3 to 4 years to live.

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@lupita1407

My wife at 53 years of age was diagnosed with cerebellar atrophy and has severe ataxia and vertical double vision. Cannot walk without a walker. I am wondering if anyone has read any articles about studies that have been done for treatment. I read one stating high doses of vitamin E and another about starting a gluten-free diet. We know there is no cure but am looking for anything to halt the progression or alleviate some of the ataxia

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My cousin has cerebellar ataxia. She is mostly bed-bound but we too use a high dose of Vit E & B and as close to gluten-free as we can. It does seem to help but she still has bad days. I have been doing a lot of research and this particular disease, as so many, could be the result of a vaccine injury. Here is the link that shows there may be a relationship. Something to consider perhaps. I know vaccines awareness is growing and perhaps for a legitimate reason. The ingredients are totally horrible (you can read them on the CDC web site) and Pharmacuetical companies have ZERO liabilty for the vaccines produced thanks to the National Childhood Vaccine Injury Act of 1986 of which takes liability away from the pharma cos. https://www.icandecide.org/wp-content/uploads/2019/09/VaccineSafety-Version-1.0-October-2-2017-1.pdf (pages 7-9 states ataxia and nueroligical diseases for the first time)

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Boy what a dead spot for this issue! My cousin has cerebellar ataxia/atrophy. If you have any information that would be awesome!!

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@colleenyoung

Frustrating that this thread has not yet attracted others to the community who have cerebral atrophy. Have you been seen at Mayo Clinic?

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I had an MRI and have it plus other problems

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@howardjames

I still have not heard from anyone else having cerebral atrophy diagnosis. Does anyone out there have a similar problem. Should we go anywhere else beside Mayo Clinic?

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I have it and just found out with an MRI and am scared. Also ischemic too.

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@lisalucier

Hi, @lupita1407 - welcome to Mayo Clinic Connect. Not being able to walk without a walker sounds challenging. It sounds as though you are being an excellent advocate for your wife.

Hoping that @flo1957 @steph73 @menville @howardjames may have some input for you on studies they have read about or participated in. @johnbishop also may have some insight on relevant studies.

How is the vertical double vision impacting your wife's day-to-day life presently?

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She closes one eye when she needs to read something.

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@johnbishop

Hello @lupita1407 -- I'm wondering if the following eye exercises for double vision might be helpful?
https://www.livestrong.com/article/226753-double-vision-eye-exercises/

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Thank you I will let my wife know

Michael

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Hello @lupita1407 -- I'm wondering if the following eye exercises for double vision might be helpful?
https://www.livestrong.com/article/226753-double-vision-eye-exercises/

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@lupita1407

My wife at 53 years of age was diagnosed with cerebellar atrophy and has severe ataxia and vertical double vision. Cannot walk without a walker. I am wondering if anyone has read any articles about studies that have been done for treatment. I read one stating high doses of vitamin E and another about starting a gluten-free diet. We know there is no cure but am looking for anything to halt the progression or alleviate some of the ataxia

Jump to this post

Hi, @lupita1407 - welcome to Mayo Clinic Connect. Not being able to walk without a walker sounds challenging. It sounds as though you are being an excellent advocate for your wife.

Hoping that @flo1957 @steph73 @menville @howardjames may have some input for you on studies they have read about or participated in. @johnbishop also may have some insight on relevant studies.

How is the vertical double vision impacting your wife's day-to-day life presently?

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@colleenyoung

Frustrating that this thread has not yet attracted others to the community who have cerebral atrophy. Have you been seen at Mayo Clinic?

Jump to this post

My wife at 53 years of age was diagnosed with cerebellar atrophy and has severe ataxia and vertical double vision. Cannot walk without a walker. I am wondering if anyone has read any articles about studies that have been done for treatment. I read one stating high doses of vitamin E and another about starting a gluten-free diet. We know there is no cure but am looking for anything to halt the progression or alleviate some of the ataxia

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Hi everyone,

I'd like to invite you to join us today, Wednesday, May 1 at 12pm CT for a video Q&A. Drs. William (David) Freeman and Rabih Tawk will be discussing all aspects of stroke, and will answer questions during the live broadcast.
Simply click https://connect.mayoclinic.org/webinar/video-qa-about-stroke-2/ for details.
Drs. Freeman and Tawk will answer questions live. Post your questions before and during the broadcast.

Return to this page, https://connect.mayoclinic.org/webinar/video-qa-about-stroke-2/ to take part in the video Q&A live on May 1 at noon CT. It will also be archived on this page.

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