Cerebellar stroke experience, treatment, recovery - want to dialogue

My doctor gave me a prescription for Lorazepam 1 mg when the anxiety gets too much for me. It helps with nausea as much as Zofran did for me. A few months after my basilar artery stroke in Sept 2024 I managed to get shingles then a difficult bronchial infection and lastly I have developed rheumatoid arthritis. So now I get to be on steroids for who knows how long. I'm certain the stroke had something to do with facilitating the later illnesses, all immune deficiency related. I can't imagine having a busy lifestyle like yours; you must be a lot younger than me! Are you putting too much stress on yourself? Maybe it's time for you to slow down a little? A stroke is nothing to be casual about because one stroke may lead to another one someday if you don't take precautions now. Strokes don't seem to care about your age. Just speaking from experience.

I had my stroke Dec. 3, 2016. I got help quick but left side was impaired ( limp & 30% usage in my left hand/shoulder). What about Stem Cell Development? Any good news you heard about this field for Stroke victims?

I know it’s kind of crazy to “report” what would seem insignificant to a lot of folks but to me it was like a hot air balloon ride! I felt now “free”! I praise God for services available like pickup for groceries! I left my review and explained it to them how important it is to people who are unable to do shopping! Baby steps!!

Hello everyone, My husband and I are very new to this... he is 56yrs old and in great health but thursday at 1am he ready to punch the time clock at work... he had felt absolutely fine... when he stood up he felt week on his right side and nauseated my son in helped him to the car but he could hardly walk so he took him to er ... by the time he got there he could not open his eyes or even move without throwing up...his eyes would not focus they took his vitals and said it was vertigo and that his vitals were fine... they were very busy so they parked us in a room... a couple hours later we saw the doctor he took a preliminary Ct scan and an MRI and checked his heart....they were still calling it vertigo but since nothing was helping him to stop throwing up they said they would admit him and preform ultrasounds on his neck and heart and sent him for another more detailed MRI... the next day they told us it had been a cerebral stroke... we are lucky..his left side is weak, he has problems writing and he talks with a very slight mumble if he is sitting in bed talking to you it is very difficult to tell that anything is wrong... However he has no balance and at this time cannot even use the walker...this is very new..but we have no insurance so they are talking about sending him home as soon as I can get a ramp for the home... they also said we would get OT and PT visits at least once a week... we know we are lucky but at this point we are so overwhelmed and lost in the whole process...any advice is welcome

IMPORTANT RELIEF FOR NAUSEA AND DISORIENTATION (at least in my case)- I had a cerebellar stroke in 2018 losing my left cerrubellum and have, after lots of initial rehab, adaptation and such, had a return to a faily normal existence. There are some activities and motions that make me feel nauseous and disoriented and cause me to get "spun up" sometimes and feel "off" for a day or so. I have discovered that taking Zofran (ondansetron) allows me to do intense activities without getting dizzy, nauseous or disoriented. I can ski aggressively and do g force inducing turns and spinning aerials which would previously render me so nauseous and disoriented that I would have to lay down for a period of time- on one occasion in the wet ski area parking lot. In another plug for Zofran, I recently had the opportunity to deliver a 50 foot sailboat 1200 miles in the Pacific from Washington to Southern Californa in what turned out to be extremly rough conditions- like 20 foot waves. When preparing for the trip I was concerned about becoming the seasick crew member that the captain would have to drop off somewhere on the Oregon Coast leaving the boat understaffed. I took Zofran in a moderate dose every 12 hours for 2 weeks straight during the journey and never got seasick! I even read a book while on the boat which is something I would never be able to do under any conditions stroke or not. Zofran is an anti nausea medicine often used by persons undergoing chemotherapy. I'm no pharmacologist but I am convinced the stuff must have some cancelling effect on the signals between ones eyes, vestibular system and cerebelum. Weirdly, the only side effect I have experienced taking Zofran (after intense skiing) is eye soreness. My physican wife has told me that I have mild nystagmus when experiencing this eye discomfort.

Fortunate I am..

I had a cerebellar stroke several years ago and had some lingering but acceptable balance issues. It seems that in the last six to nine months I have been having increasing dizziness most of the time. I have had a recent CT and have been to an ENT, but with no suggestion as to what is causing the change. I have also been told by my GP's nurse that ENT's no longer treat vertigo-related issues. I think my dizziness may be related to sinus issues, but the CT did not find any sinus problems.

Hello, I am Bright Wings. I have been active here at mayo clinic connect since last year. I was getting off my antidepressant of 33 years and was still having withdrawal symptoms months later.
I also write in a group for multiple sclerosis.
But now I need to be here. And I am terrified.
As a young nurse I put a LAW in place that if I had a full on disabling stroke and got put in a nursing home I would choose to die. That policy is still firmly in place, I see.
As a result of going cold turkey when withdrawing from effexor, I had a full on brain event caused by nightmares from the withdrawal.
I dragged myself and my foot to the door, left hand clenched and useless, while drooling.
I completely recovered in less than an hour.
I am here because I had another brain event Thursday. Different this time. But I see it as a huge warning. I will come back and post about this new event in a bit.
So this is my story. I will get to reading. Bright Wings
I see you are here with me @merry, thanks