Long-term effects after cavernous hemangioma removal

Posted by smurfieallena @smurfieallena, Dec 17, 2018

I had a craniotomy done in October of 2005 to remove a cavernoma. I had only been diagnosed for 2 months before surgery, it was fairly quick. I was losing feeling in my left leg and arm, I had daily headaches, clumsiness and short term memory loss. The surgery was a success although I was temporarily paralyzed in my left side. That problem corrected itself over time. 13 years later and I still have horrible memory and I'm extremely clumsy. I have intractable migraines that seem to be very hard to treat. The top of my skull where the bone flap is still hurts at the slightest touch. It is oddly raised and terribly sensitive. Has anyone else experienced any of these side effects years after surgery?

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I am only 3 1/2 months after my craniotomy and I have clumsiness and short term memory loss. I also have noticed that my hands shake a lot and it's noticed by other people. Is this normal after that kind of surgery?? Will the shaking of my hands get better with time?

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@mrector

I am only 3 1/2 months after my craniotomy and I have clumsiness and short term memory loss. I also have noticed that my hands shake a lot and it's noticed by other people. Is this normal after that kind of surgery?? Will the shaking of my hands get better with time?

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@mrector I'm not sure, my hands never shook. I have poor circulation to my hands so they're always cold and I have neuropathy. I'd guess that the shaking will get better over time as your body heals. I'll pray for you.

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Hi @smurfieallena,
I wanted to check in to see how you're doing. I'd also like to bring fellow members @ees1 and @kat9606 into this discussion.

Allena, here are other discussions you may be interested in
– Cavernoma https://connect.mayoclinic.org/discussion/cavernoma/
- Living with Neuropathy - Welcome to the group https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

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