Cardiac Sarcoidosis

Hi All, I wanted to start a discussion on Cardiac Sarcoidosis to share information ! I have Cardiac Sarcoidosis in addition to Mitral Valve Prolapse with severe regurgitation ! I need surgery to fix the valve, however they want to start me on steroids for a "short period" to try and get the heart inflammation down prior to surgery to reduce risks during surgery. I am fairly asymptomatic, meaning my heart function is good (except for valve). Anyone else out there on the same journey to trade info ????