Cardiac Sarcoidosis (Autoimmune Disease) and the use of Prednisone.

@yubigood
I wish you the best as you taper off. It can be really hard. You definitely need to do it slowly so your body doesn’t get further damage by an overacting immune system.

1. https://www.drugs.com/medical-answers/good-prednisone-taper-schedule-3570111/
2. https://prednisonepharmacist.com/side-effects-solutions/how-to-taper-prednisone/
3. https://www.mayoclinic.org/prednisone-withdrawal/expert-answers/faq-20057923
4. https://www.verywellhealth.com/does-prednisone-tapering-minimize-withdrawal-190242
5. https://prednisonepharmacist.com/education/10-tips-for-tapering-prednisone-safely/
6. https://connectedrheumatology.com/getting-off-prednisone-the-right-way/
7. https://www.healthcentral.com/condition/rheumatoid-arthritis/prednisone-withdrawal
8. https://www.goodrx.com/classes/corticosteroids/steroid-taper

Hello @yubigood, I would like to add my welcome to Connect along with @dlydailyhope and others. There is another discussion that I think you might find very helpful.

-- How to Slowly and Safely Taper Off Prednisone but ... no set rules.
https://connect.mayoclinic.org/discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules/

Thank you. Yes, I have reviewed that piece.
By the way ... what is proper ettiquitt when receiving replies to a posting ?
Thanks, don

@yubigood You’re asking about proper etiquette when you receive an answer to a posting. There really is no proper way to answer. We do ask that you use the @ sign and their “handle” or “avatar.” This allows the message to go directly to the person so they will know that you responded. Well, I guess that is proper etiquette!
Have you started this prednisone taper yet? I know that it is hard to do, but so much better for your heart and your body so it can make more prednisone as you taper off.
You have been on prednisone for 14 years; why do you want to get off quickly?