Cardiac Sarcoidosis (Autoimmune Disease) and the use of Prednisone.

Posted by yubigood @yubigood, 1 day ago

Cardiac Sarcoidosis is a rare / uncommon autoimmune disease which affects the heart, causing Heart & Kidney failure and risk of an untimely V Tach death. Diagnosis is difficult and successful treatment usually includes Prednisone plus an Internal Converter Defibrillator (ICD). My situation: after fourteen (14) years of treatment with eleven (11) drugs (including 10mg of Prednisone daily) plus an excellent ICD, results in slowly progressing Heart & Kidney failure. My present goal is to STOP the prednisone asap and am seeking information regarding a realistic and successful prednisone TAPER schedule for my situation.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

dlydailyhope | @dlydailyhope | 1 day ago

@yubigood
I wish you the best as you taper off. It can be really hard. You definitely need to do it slowly so your body doesn’t get further damage by an overacting immune system.

1. https://www.drugs.com/medical-answers/good-prednisone-taper-schedule-3570111/
2. https://prednisonepharmacist.com/side-effects-solutions/how-to-taper-prednisone/
3. https://www.mayoclinic.org/prednisone-withdrawal/expert-answers/faq-20057923
4. https://www.verywellhealth.com/does-prednisone-tapering-minimize-withdrawal-190242
5. https://prednisonepharmacist.com/education/10-tips-for-tapering-prednisone-safely/
6. https://connectedrheumatology.com/getting-off-prednisone-the-right-way/
7. https://www.healthcentral.com/condition/rheumatoid-arthritis/prednisone-withdrawal
8. https://www.goodrx.com/classes/corticosteroids/steroid-taper

John, Volunteer Mentor | @johnbishop | 1 day ago

Hello @yubigood, I would like to add my welcome to Connect along with @dlydailyhope and others. There is another discussion that I think you might find very helpful.

-- How to Slowly and Safely Taper Off Prednisone but ... no set rules.
https://connect.mayoclinic.org/discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules/