Carcinoid Cancer and working

Posted by audra @ajnaudra, Feb 13, 2018

Hi my name is Audra and I was diagnosed with Carcinoid Cancer in 2016. I drove myself to the ER with severe pain and had an immediate CT scan which showed a large mass in my small intestine. Two weeks later over a foot of bowel, part of the colon, and left ovary removed along with lymph nodes and tissue. Three months later I needed a colonoscopy then three months after that a full hysterectomy. CT scans and MRI’s prove I still have tumors in tissue and tiny “spots” in my liver too small to grade as tumors at this time. I am on Sandostatin every 28 days and seem to tolerate it well. My booty hurts for about 2 weeks but is tolerable. I am usually tired for a couple of days and do suffer from extreme diarrhea on and off. I live on the tip of the thumb in Michigan and don’t know anyone to speak with regarding this cancer. I applied for SS benefits and was turned down, not eligible, not old enough, not enough work credit, blah blah blah. The only other thing I can think of is to go back to work to help with our finacial situation before we have to file bankruptcy (which I do not want to do). I also suffer from Fibromyalgia and have not worked outside the home for about 7 years. Any insite would be appreciated!

@ajnaudra Hello Audra,

I'm so glad to hear your good news from the recent CT! I am also glad to hear that you made contact with Dave. He is a great guy to talk with. He has walked down the NET road for many years with all of it's bumps and ruts and yet he does well.

I appreciate the update and I look forward to hearing from you again.



Hello @ajnaudra

I hope that you are continuing to do well. You have probably received an email from Dave Vickery of the Michigan NET support group regarding the September meeting on this part of the state. I hope to see you there.

I would enjoy hearing from you again. Is your fibromyalgia pain under better control now?


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