CAR-T - Looking for statistical data for over 70 age group

Posted by joefmsi2020 @joefmsi2020, Oct 18, 2022

After being told this January that my cancer was back (after 20 years of remission) I have undergone several months of chemo. Unfortunately, the cancer has been resistant but my oncologist is suggesting CAR-T. I have tried to find out if results are good for my age group but cannot find much statistically. I will be meeting with the oncology group soon (after having results from last scan). Does anyone know of any statistical data out there for over 70 age group? Thanks in advance.

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Hello @raemark - I would suggest that you ask your health care team this question. There was nothing to indicate in my searches that a person could not undergo the treatment a second time, though I did not find anything that promoted a second treatment.

I see it has been some time since you last posted, how are you doing?

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I had CAR-10 when I was 67. I'm now 69. I assume I'm not a CAR-T candidate because I've already had it. Is that correct?

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@lmn

No, he will be getting it at Medical University of South Carolina. I’m very hopeful!

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MUSC, is a great facility. I asked because Mayo Clinic offers learning sessions prior to CAR-T therapy for patients and their caregivers. They also have one-on-one sessions with a specialized oncology social worker. You may inquire if MUSC offers similar pre-education.

In the meantime, continue to ask questions here. It also helps to learn from other caregivers who have been there. Is there anything that weighing on your mind that you'd like to know about or prepare for?

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@joefmsi2020

I don’t know of an online “education” program. I do know there are some basic outlines and videos that explain the process.

One that was helpful to me was: lls.org/patient-education-videos/car-t-cell-therapy

There is another site for a specific CAR T treatment. As I understand it, there are different versions of CAR T. This is the one I will be using for my condition:

breyanzi.com/

Hope this helps.

Best of luck.o

Joe

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Thank you so much!!
I want to be prepared and understand everything!! I will definitely check out the site!

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No, he will be getting it at Medical University of South Carolina. I’m very hopeful!

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@lmn

Is this an online education process? My boyfriend is starting the treatment and I have many questions! Thanks!

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@lmn, is your boyfriend getting his CAR-T therapy at Mayo Clinic?

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I don’t know of an online “education” program. I do know there are some basic outlines and videos that explain the process.

One that was helpful to me was: lls.org/patient-education-videos/car-t-cell-therapy

There is another site for a specific CAR T treatment. As I understand it, there are different versions of CAR T. This is the one I will be using for my condition:

breyanzi.com/

Hope this helps.

Best of luck.o

Joe

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@joefmsi2020

Bob,

Thank you for the information. My biggest concern is the side affects you refer to. Seem as though that is the biggest risk and concern.

With regard to when it would all start, the doctors are telling me that Nov. 7th would be the first day of the actual process (harvesting). Other than that the schedule has not been finalized at this point. “Team Joe” and I will be going to the CAR T education process on 10/26.

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Is this an online education process? My boyfriend is starting the treatment and I have many questions! Thanks!

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Bob,

Thank you for the response.

Best regards,

Joe

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Joe - I had the treatment in 2018. I read an article out of California where some people of senior age have gone past 10 years. I also learned from a younger person (20’s) that had the treatment at the same time as me, that the treatment had no effect on their cancer whatsoever. As with any other treatments, Car T can vary by person it seems. Feel free to reach out at any time, I will be happy to share my experience with any questions you may have. Enjoy the education class and I wish you the best on these next steps in your treatment.

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