CAR-T Cell Therapy: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Sep 17, 2018

Welcome to the CAR-T Cell Therapy group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people who have experience with CAR-T cell therapy or are caring for someone on CAR-T cell therapy. There are so few people who have experience with this new cancer immunotherapy. Together we can learn from each other, support one another and share stories about living with cancer and coping with the challenges of treatment.

Let’s chat. Why not start by introducing yourself? When did you or your family start therapy? How are you doing today?

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

Bob, Alumni Mentor | @grandpabob | Mar 27, 2023

That is great news Henry. I am sure that getting that result from your doctors was a relief.
Thank you for sharing.

henry55 | @henry55 | Mar 26, 2023

In reply to @henry55 "Hello, I am currently not receiving any cancer treatments. Just a PET scan every 6-8 months..." + (show)

Yes thank goodness for CAR- T. I just got the great news regarding my last PET scan and "all is clear". Now we look forward to my 2 year mark. This is / was my 2nd fight with cancer.... I'm done. I'm so happy your doing well. My CAR-T was August 2021.

Colleen Young, Connect Director | @colleenyoung | Mar 26, 2023

In reply to @ericg "I'm looking for studies on Car-T or other antibody treatment for ovarian cancer- high serous? I've..." + (show)

Hi @ericg, you're right that CAR-T cell therapy is still being studed in solid tumors like ovarian cancer. See this review, albeit from 2017.
- CAR-T cell therapy in ovarian cancer: from the bench to the bedside https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5610030/

Here is a list of current clinical trials at Mayo Clinic in treatment of ovarian cancer https://www.mayo.edu/research/clinical-trials/search-results?studySiteStatusesGrouped=Open/Status%20Unknown&pocId=CON-20375922&_ga=2.45933346.784331118.1679751715-246278321.1677350292

You might also be interested in joining the discussions in the Gynecologic Cancers support group: https://connect.mayoclinic.org/group/gynecologic-cancer/

Colleen Young, Connect Director | @colleenyoung | Mar 26, 2023

In reply to @pgollinger "Hello everyone, I have stage 2 multiple myeloma and will be starting a clinical trial for..." + (show)

@pgollinger, any update? Were you randomized to receive CAR-T cell therapy? If not, what treatment are you getting?

363 | @363 | Mar 13, 2023

In reply to @grandpabob "That is absolutely wonderful news, I hope things continue on a positive path for all of..." + (show)

Thank you again so much..JoAnn just came on ventilator a few hours ago and is now on BPAP for 4 hours for transition...praying and praying she will be able to breathe with just nose piece soon..very much appreciate your kindness.

Bob, Alumni Mentor | @grandpabob | Mar 13, 2023

In reply to @363 "Thank you so much..We did get good news today after 18 days on a ventilator she..." + (show)

That is absolutely wonderful news, I hope things continue on a positive path for all of you.

363 | @363 | Mar 13, 2023

In reply to @363 "Thank you so much..We did get good news today after 18 days on a ventilator she..." + (show)

Thank you so much

363 | @363 | Mar 11, 2023

In reply to @grandpabob "I am so sorry to hear that. It is difficult to understand how treatments help some..." + (show)

Thank you so much..We did get good news today after 18 days on a ventilator she passed the test and they will now start to ween her off it..prayed for this and now will pray for more miracles..

Bob, Alumni Mentor | @grandpabob | Mar 11, 2023

In reply to @363 "Unfortunately the Car-t failed and the cancer has progressed and new tumors..She is currently in ICU..." + (show)

I am so sorry to hear that. It is difficult to understand how treatments help some and yet not others. The only suggestion I can offer is to keep her as comfortable as possible and if possible get another opinion on her prognosis.

363 | @363 | Mar 10, 2023

In reply to @363 "Unfortunately the Car-t failed and the cancer has progressed and new tumors..She is currently in ICU..." + (show)

Thank You

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