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Capecitabine side effects are really tough: What helps?
Taking this drug finished 3rd cycle
1st 14 days was 3,900 mg day had severe mucositis with bleeding gums &scabs and bleeding nose sick stomach caused poor appetite but no nausea or vomiting - then 13th day diarrhea and blisters scabbing on chest so I quit 18 days not healed doc reduced dose 3,000 day
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Hello @ogf78
Good to hear you also enjoy getting out on your bike and going skiing. My reaction to capecitabine was not severe - mainly tiredness which quickly improved during the week off in each cycle, 2 weeks on and one week off. That lasted for 3 months and I've had no chemo since.
Just starting some ablation of lung cancer now but looking forward to the ski season!
All best.
Martin
@martin77
So great to hear about your ski and bike trips. Absolutely my loves as well . What was your reaction to capecitabine ? After 2.5 days and half dose I developed a scarlet itchy rash across my chest , neck and face. Dr discontinued . Im taking 10mg prednisone and my face is better but the rash on my chest and neck persist. I am also awaiting results of a DYPD test to see if I am unable to metabolize the drug . Just a nightmare.
https://connect.mayoclinic.org/discussion/tumour-position/?pg=3#chv4-comment-stream-header
Hello Denise. There are some comments about capecitabine in the above thread which I hope may be useful.
There is light at the end of the tunnel. After my bowel cancer surgery in Nov 2022 and liver cancer surgery in August 2024 I'm now enjoying skiing in the French Alps and planning a long bike ride in June!
Happy New Year.
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5 Reactions@denise134, you may also be interested in these related discussions:
- Anyone taking Capecitabine Chemo for bile duct cancer? https://connect.mayoclinic.org/discussion/anyone-taking-capecitabine-chemo/
- After Bone marrow transplant: Mucositis, post care and follow ups
https://connect.mayoclinic.org/discussion/bone-marrow-transplant-mucositis-post-care-and-follow-ups/
I'm also tagging fellow members like @gamaryanne @stevm @wifemom3 @canfriend @martin77 @cjay who have experience with capecitabine and managing side effects.
Denise, how are you doing on the lower dose?