Mayo Clinic Connect
I am reaching out as I am a two time cancer survivor and I have severe PTSD, anxiety and depression and I was wondering if there is a support group for cancer survivors in the phoenix Arizona area?
Liked by JK, Volunteer Mentor, Merry, Volunteer Mentor, Becky, Volunteer Mentor
Hi @jiffer69 and welcome to Mayo Clinic Connect. We're happy to be your online support group with the advantage that you can connect with someone any time from wherever you are. I have moved your message to the Cancer: Managing Symptoms group: https://connect.mayoclinic.org/group/cancer-managing-symptoms/
In this group, you will find members talking about anxiety, depression and PTSD. Check out these discussions:
– Facing Cancer Recurrence, PTSD & Acknowledging Mental Health https://connect.mayoclinic.org/discussion/facing-cancer-recurrence-ptsd-acknowledging-mental-health/
– Anxiety due to Cancer https://connect.mayoclinic.org/discussion/anxiety-due-to-cancer/
– Emotional health after cancer https://connect.mayoclinic.org/discussion/emotional-health-after-cancer/
Fellow members like @merpreb @grandpabob @azkidney57 @cwm1 and others know the emotional toll of cancer. Like you @travelgirl is a two-time cancer survivor. AZKidney may have some Arizona support group tips for you.
In the meantime, Jiffer. Let's get to know a bit more about you. Are you currently in treatment? Did you have to manage anxiety, depression and PTSD before cancer and it became worse or did the emotional upheaval start with cancer? Share as you feel comfortable.
Liked by Teresa, Volunteer Mentor, JK, Volunteer Mentor, Merry, Volunteer Mentor, Becky, Volunteer Mentor
@jiffer69– Good morning and welcome to Connect and the Cancer Management group. I am a 22 years lung cancer survivor and have struggled with PTSD and all it encompasses for the past 12 years. I am a mentor for Connect and you can mostly find me in the lung cancer group and managing cancer group.
I would have answered this before but NE was hit by a terrible, unexpected storm and we lost power until yesterday, mid-afternoon.
I was looking for just what you are more than a year ago and found Connect. I find that writing and reading many posts from all over the world and many different experiences, and a lot of feed back to be more valuable than a support group in a certain socioeconomic area where you meet once a month. I would be glad to talk with you here anytime that you are ready to. Would you like to talk with me?
Liked by Colleen Young, Connect Director, JK, Volunteer Mentor, Becky, Volunteer Mentor
I’m responding even though I don’t have cancer. I had a sudden onset of an autoimmune disease that the doctors here knew nothing about. It has definitely changed my life! But this group has helped me so much. I can whine and complain and ask for help and no one minds. And, thru all my experiences “in the system” I can help others, too.
Liked by JK, Volunteer Mentor, Merry, Volunteer Mentor
Good morning @jiffer69 – I haven't heard back from you and wondering if I can be of any further help?
Liked by Teresa, Volunteer Mentor, Becky, Volunteer Mentor
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Hi. Right now I have expanders and have to decide if I want to use my own tissue or silicone. Any ideas on which works better? I had a double mastectomy a month ago. Thanks
Silicone can cause problems. It is a much longer healing time for natural tissue, but so worth it in the long run. This from experience only with natural tissue.
How long does it take and how long will I need someone staying with me?
Liked by Becky, Volunteer Mentor
Natural tissue will initially take a few months and a more full recovery will be 6-12 months depending on your strength and personal healing abilities
Good Morning! I apologize for not getting back to you! I thought connecting with this would help me but actually I just got overwhelmed with all the different emails I was getting. Maybe it was because I joined several groups and not just one! So you live in New England?
@jiffer69– We are a welcoming bunch for sure. We are also trying not to do just this. Yes, NE. It's beautiful here now. Tell me how I can best help you with your anxiety and PTSD from having cancer. What worries you the most?
Liked by Teresa, Volunteer Mentor
ho to get through the daily struggles, getting out of the house, being comfortable in my own body etc…. I go to counseling but well I still struggle
@jiffer69– After my 2nd cancer I started getting migraines and it was a long time until a doctor figured out what they were- the beginnings of PTSD. My second cancer followed 10 years from my first was 10 years later. The third and fourth were different cancers. I didn't want to go outside, socialize, talk to anyone. I wanted to bury myself in my sheets and stay there. Counseling helped me for a couple of days after but then it would stop. I just couldn't do what she wanted me too. But after a long while I did. I got up and started to do things, exercise, walks, etc. They are the best things to get anyone out of active PTSD. Even if you have to crawl, leave the house. Sit on an outside step and just inhale fresh air. And if this is all you can do, then let it be. Until the next time when you want to put your foot on the next step.
Another thing that I recommend since anxiety is a big thing for me , is make lists of what you can control and what you can't. Put the list away that has the things that you do not have any control over away in a drawer This needs to include your cancer. My fear is multi-fold- fear of dying, a recurrence (very likely for me) not having any treatment options, pain, not being able to breathe….Shall I go on?
These are all natural things to fear. Some of these can be treated and some not. How have you handled stress in the past?
Can you tell me more about your cancer? What is your timeline for treatment?
What kind of cancers did you have ? Thank you i will try it and let you know
i wish we could chat off of here or even via call or text but that would be very expensive being that I live in Arizona and you live in New England
Liked by Teresa, Volunteer Mentor, Merry, Volunteer Mentor, Becky, Volunteer Mentor
@jiffer69 – The first cancer that I had was a fast growing adenocarcinoma. My second one and on going one is multi-focal adenocarcinoma. This is when more than one lesion appears in one or both lungs at a time. They can come and go. Drives me right up a wall.
What is your history?
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