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Cancer risks of Tymlos
I am 62 and have osteoporosis. The doc suggested Tymlos and between side effects and risks of cancer I’m petrified to start this process. It is a huge leap for me to take something like this, I barely take aspirin or Advil. For those who have taken it, was there a huge benefit? Did the benefits continue after stopping or did it just buy you a little time with bone density?
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@windyshores That is so encouraging!
Before this fracture I would go to the gym 5 days a week, garden for a couple hours, cook and clean my own house. This last fracture has left me in a lot of pain after 3 months and its very discouraging! Hoping with some PT it will improve.
@mary1951 I have 7 spinal fractures. Recovery is very painful and since I live alone, I felt unable to do laundry, dishes, cook. Some mornings I would roll out of bed (literally, PT taught me that) and crawl on the floor I was in so much pain.
Three months is very early in recovery. It DID get better. I am back to doing tai chi and even teaching it. I still have trouble with lifting much, and slide pots along the counter. Some windows are an issue.
Tymlos brought me from severe to borderline osteoporosis. My bones suffered from cancer treatment and after Tymlos they were better than before cancer.
Do you have a brace? I was told to use it sparingly. I did not have a hard brace, just a neoprene type with velcro. I still use it if I am moving stuff or for pain relief, but not often anymore. Much of the pain is from muscles that are confused by our spinal changes!
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3 Reactions@mary1951, I'm a little jealous because I crave salt, but I'll tell you my dxa anyway.
I was -3.3 in the spine from 2017 to 2023. In 2024 a little over a year on Forteo I'm at -2.8 in the spine. My hips are essentially unchanged. though I lost a point in my left, and gained one in my right. -2.9 on the left to -3.0 right 2.6 to 2.5
TBS adjusted fracture risk
Major 15% in 2023 to 13% and 12% in 2024
I'm content with the changes. My expectations are for the third year. And I feel so safe on this medication.
I suspect it will go very well for you. Tymlos has a stronger effect and most patients have better results than my on Forteo.